2018

http://investinme.org/IIMER-Newslet-181201.shtml

Devendorf, A. R., Brown, A. A., & Jason, L. A. Chronic Illness Paywall https://journals.sagepub.com/doi/10.1177/1742395318815965

Australia’s Health Minister, Greg Hunt, has met with us (ME Australia) twice about the urgent need for biomedical research funding and updated treatment guidelines. Minister Hunt had a second meeting with recently with ME Australia, this time along with Prof Paul Fisher, head of microbiology at...

https://www.mdpi.com/2218-1989/8/4/90

https://www.tandfonline.com/doi/full/10.1080/15592294.2018.1549769?scroll=top&needAccess=true Abstract published. Article behind a paywall. Research financed by Solve ME/cfs.

New paper - has a number of red flags. Focuses on fatigue description and " payback" as a description for PEM without much definition. Questionnaire based, pre diagnosed Mild/ moderate but not housebound I don't know if any comorbidities (OI, EDS etc) have even been thought about I have not...

BMJ and Bristol's Ethics Exemptions Earlier today, I sent the following e-mail to Dr Fiona Godlee, editorial director of BMJ. I cc’d Carol Monaghan MP, Darren Jones MP, and Nicky Morgan MP. I also cc’d Teresa Allen of the Health Research Authority.

https://www.actionforme.org.uk/uploads/images/2018/12/cmrc-board-minutes-nov-2018_2.pdf Highlights are establishment of working groups, no conference next year, the high level report is on hold, the priorities partnership meetings have begun, the MRC have asked for further submissions regarding...

New post by @dave30th

Another good article by Sasha Nimmo: OZ Guidelines – Disability can be defeated through treatment full article here: https://meaustralia.net/2018/11/30/difference-between-australian-chronic-fatigue-syndrome-guidelines-and-me/

Poll can be found on their homepage, https://www.meassociation.org.uk/, middle column, towards the bottom of the page.

Apologies if it has been posted before. I've heard about it, but haven't seen this official statement from Cochrane about it. It's not dated, but listed on 3.rd place on the front page of Cochrane, so I gather the statement is new? Cochrane considering the repositioning of Chronic Fatigue...

Don't know who this flyer is being given/sent to: http://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/documents/PCFS005_PCFSME_Research_Flyer.pdf

https://www.thetimes.co.uk/edition/the-sunday-times-magazine/how-it-feels-to-be-exhausted-24-hours-a-day-28cx59bn9 I think this is a really good article! Written by someone who became ill in 2016. ‘Two years ago, Joseph Luke went from healthy to housebound when he was struck down by ME. He...

Paywalled at https://www.plefa.com/article/S0952-3278(18)30053-X/fulltext

This is a letter we sent from S4ME to NICE as discussed in a voting thread for those members who have posted enough to have voting rights. We are posting here so that it and the responses are available publicly. To: Dr Peter Barry Chair, NICE ME/CFS Guideline committee cc...

It’s good that they haven’t just rolled over and accepted whatever Larun et al have resubmitted. Sounds like they might be stretching it to allow them another chance tho. How do others read the statement?

Autonomic dysfunction and HPV immunization: an overview.

Rituximab Serum Concentrations and Anti- Rituximab Antibodies During B-Cell Depletion Therapy for Myalgic Encephalopathy/Chronic Fatigue Syndrome Rekeland, Fluge, Mella et al (only the abstract is available for now) Findings There were no significant differences in mean serum rituximab...

https://www.csp.org.uk/frontline/article/childrens-pain-we-can-make-it-better links to FITNET another of NICE guidelines committee members.