2018

Presentation (PDF Available) · July 2018 with 37 Reads DOI: 10.13140/RG.2.2.29883.52009 British Association of Behavioural and Cognitive Psychotherapy, DOI:10.13140/RG.2.2.29883.52009...

Caroline Struthers' letter to Cochrane Governing Board I noticed on Anil about ME's Facebook page the following link: https://healthycontrolblog.wordpress.com/2018/11/29/my-complaint-to-the-cochrane-governing-board-about-the-cochrane-review-of-exercise-for-chronic-fatigue-syndrome/ Caroline...

David Tuller is giving a talk soon in Drammen, Norway about the PACE-trial. It'll be live-streamed here at 18.00 PM (GMT+1)

English overview, http://www.steungroep.nl/images/her_keuring_WIA_of_WAO/Her_keuringen_algemeen/Summary Ervaringen met UWV150dpi.pdf Dutch full report...

"The Improving Access to Psychological Therapies (IAPT) Pathway for People with Long-term Physical Health Conditions and Medically Unexplained Symptoms. Full implementation guidance"...

www.bloodjournal.org/content/132/Suppl_1/4874 At the moment, the full article is not yet available. Edit: We have 3 threads on related or the same research by the same team: Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018) Altered Erythrocyte...

2018 Campaign week from the Norwegian ME Association to increase knowledge The Norwegian ME Association is launching a week long campaign to raise awareness and knowledge about ME. It starts off tomorrow and ends Saturday. It's the first time a campaign like this has been done in Norway, and...

Abstract only before print, http://www.eurekaselect.com/167495/article

Open access at https://www.sciencedirect.com/science/article/pii/S097594761730116X?via%3Dihub#bib1

Open access at https://www.frontiersin.org/articles/10.3389/fped.2018.00330/full

:woot::woot::woot::woot::woot::woot::woot::woot: Thanks to all those who've long researched and written about PACE - it's those many, many years of work by patients such as @Tom Kindlon and others who spotted the problems from the get-go, and the support of academics such as @dave30th David...

Surf champion Tyler Wright reveals struggle with chronic fatigue Australian pulls out of final event of season in Hawaii ‘My brain hurts,’ says two-time world champion https://www.theguardian.com/sport/2018/nov/21/surf-champion-tyler-wright-reveals-struggle-with-chronic-fatigue

https://stumblingintonormality574663971.wordpress.com/2018/11/20/the-chronic-illness-inclusion-project-and-a-focus-group-response/

Appointees will not be changed...so surprising! I sent my email using ME Action tool so assume a generic reply going to all. They can ignore us with no consequences whatsoever. Email below Thank you for your recent email to the National Institute for Health and Care Excellence (NICE), in which...

https://www.frontiersin.org/articles/10.3389/fpsyt.2018.00613/full Highlighted in this post by @Roy S ,https://s4me.info/threads/me-cfs-and-the-biopsychosocial-model-a-review-of-patient-harm-and-distress-in-the-medical-encounter-geraghty-et-al-2018.4707/page-5#post-123442 Keith Geraghty says...

https://www.actionforme.org.uk/news/%E2%80%8Bwe-need-your-help-connect-me-survey/

Some thoughts about NICE In fact, a robust debate about ME/CFS treatments rooted in scientific principles would be welcome, since such a debate has been largely absent in the UK. But it would require the NICE committee to include, in addition to a group of apparent GET/CBT proponents, a...

The abstract made it sound like another study that tries to confuse association and causation where their data didn't really support their narrative, but I stopped reading before getting to their results... too many infuriating unfounded claims to read before bed in just the intro. Funded by MS...

The Netherlands – VGCt. Vereniging voor Gedragstherapie en Cognitieve Therapieën. Dutch Association for Behavioural and Cognitive Therapies, DABCT. James Coyne was invited to be on the Nov VGCt panel, but they then withdrew the offer.... the sound is not very good. eta: mentions the...

Review article which is provisionally accepted. Full text published soon. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in the era of the human microbiome: persistent pathogens drive chronic symptoms by interfering with host metabolism, gene expression and immunity ME/CFS may be driven by...