2018

Review article is provisionally accepted and full text will be published soon Neuroinflammation and cytokines in ME/CFS: A critical review of research methods We argue that the vast majority of ME/CFS neuroimaging has failed to use optimal techniques for studying brainstem, despite its...

Open access at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6220213/

Paywalled at https://www.sciencedirect.com/science/article/pii/S0889159118307967?via%3Dihub

#MEAction: Fall advocacy round-up - a season of protest and petition An extensive summary of this autumn's advocacy work around the world. Quite impressive list! :) Includes petitions, introduction of new staff members, news from different parts of the world, protests, and updates on among...

https://www.parliament.uk/business/committees/committees-a-z/commons-select/science-and-technology-committee/news-parliament-2017/my-science-inquiry-launch-17-19/ The Committee are asking people in the science community to submit topics that they think the committee should look into. 200 word...

Llewellyn King interviews David Tuller

Brain abnormalities in myalgic encephalomyelitis/chronic fatigue syndrome: Evaluation by diffusional kurtosis imaging and neurite orientation dispersion and density imaging. Kimura Y1, Sato N1, Ota M2,3, Shigemoto Y1, Morimoto E1, Enokizono M1, Matsuda H4, Shin I5, Amano K6, Ono H7, Sato W7...

Forum member @JaimeS and her assistant Julia has written an extensive news roundup for September and October. It contains among other news from research, conferences and talks, medical news, science advocacy news, books & media and even Science4ME's 1. anniversary. Well done! #MEAction: Sept...

Station: University of Minnesota / SMCI / YouTube Date: November 13, 2018 WebTV: Item: Medical education ME/CFS-event at the University of Minnesota On November 7, SMCI in partnership with the Minnesota ME/CFS Alliance co-sponsored a medical education event at the University of Minnesota...

The UK ME/CFS Biobank: a disease-specific biobank for advancing clinical research into myalgic encephalomyelitis/ chronic fatigue syndrome This narrative paper describes how people with ME/CFS, together with a multidisciplinary team of researchers, have established the UK ME/CFS Biobank...

Source: IntechOpen Paper 80714 Date: November 5, 2018 URL: https://www.intechopen.com/online-first/culturing-adult-stem-cells-for-cell-based-therapeutics/ https://cdn.intechopen.com/pdfs/63496.pdf Culturing adult stem cells for cell-based therapeutics: neuroimmune applications...

" One of the ME Association’s recent research initiatives was to critically examine the theoretical basis and clinical application of the use of Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET) in ME/CFS. We felt that a closer examination of these therapies was vital...

Emerge Australia CEO, Heidi Nicholl, and Sydney patient, Jade Barclay, appeared on the Today show on Channel 9 in Australia this morning. The segment runs for just over 10 mins. (Sorry, I can’t figure out how to embed the clip. Feel free to let me know if you do!)...

I've summarised some information about the appointed NICE committee members in the attached pdf-document. I've focused on committee members with a BPS-bias, and did not delve into the lay members and ME-experts. This thread can be used to challenge or verify the information in the pdf-document...

Source: Frontiers in Neurology Preprint Date: November 5, 2018 URL: https://www.frontiersin.org/articles/10.3389/fneur.2018.00992/abstract Hand grip strength as a clinical biomarker for ME/CFS and disease severity ---------------------------------------------------------- Luis C. Nacul(*)...

Paywalled at https://onlinelibrary.wiley.com/doi/abs/10.1111/cch.12626

Ten organisations ask congress to create legislation for ME/CFS On Friday, November 2nd, #MEAction, the Solve ME/CFS Initiative, and eight other ME/CFS organizations sent a letter to our champions in the House of Representatives – Representatives Eshoo (CA18), Lofgren (CA19), McGovern (MA02)...

https://www.meassociation.org.uk/2018/11/me-association-statement-re-nice-me-cfs-guideline-review-and-committee-appointments-09-november-2018/ ME Association Statement re: NICE ME/CFS Guideline Review and Committee Appointments | 09 November 2018 Dr Charles Shepherd, Hon. Medical Adviser, ME...

Australian government tender for clinical pathway development for tick related diseases https://www.tenders.gov.au/?event=public.atm.show&ATMUUID=04A87C7D-0E3F-EB19-7ABD47FD0E8FA550&fbclid=IwAR0BJ6W5-LXFY8tz0XySjVsJFHKoPE8ueJ1N8Ct24FhvXVgj9JO6sqJnjKs

An Australian Exchange with Professor Sharpe Below is an exchange between members of the Australian ME/CFS community and Professor Michael Sharpe. The open letter from patients and advocates was prompted by a tweet this week from Professor Sharpe that many considered offensive. He has since...