2019

Eleonora Gentile, Katia Ricci, Marianna Delussi, Filippo Brighina, and Marina de Tommaso, “Motor Cortex Function in Fibromyalgia: A Study by Functional Near-Infrared Spectroscopy,” Pain Research and Treatment, vol. 2019, https://doi.org/10.1155/2019/2623161...

Now published, see https://www.s4me.info/threads/preprint-pathological-mechanisms-underlying-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2019-fisher-et-al-now-published.10412/#post-190278 Preprint. Open access at https://www.preprints.org/manuscript/201907.0196/v1

Abstract only, from "Immunology 2019™ Meeting Abstracts" www.jimmunol.org/content/202/1_Supplement/126.39

[They do subgroup analyses comparing those with and without CFS] https://www.tandfonline.com/doi/abs/10.1080/09638288.2019.1636315 Original Article Conceptualizing the benefits of a group exercise program developed for those with chronic fatigue: a mixed methods clinical...

MEA Summary Review: The Role of Mitochondria in ME/CFS | 13 July 2019 https://www.meassociation.org.uk/2019/07/mea-summary-review-the-role-of-mitochondria-in-me-cfs-13-july-2019/ Charlotte Stephens, Research Correspondent, ME Association. Introduction For many years, a leading theory of...

BMJ has "corrected" the Lightning Process study but has allowed its conclusions to stand, as far as I can tell. I will have more to say about this. Apparently, the authors have convinced the journal that the outcome swapping had nothing to do with the fact that the revised primary outcome had...

https://www.ncbi.nlm.nih.gov/pubmed/31282597 https://onlinelibrary.wiley.com/doi/abs/10.1111/papr.12817?af=R&

https://www.biorxiv.org/content/10.1101/693465v1?rss=1

Viewpoint Advances in Understanding the Pathophysiology of Chronic Fatigue Syndrome - Anthony L. Komaroff Conclusions A great deal more is known today than 35 years ago about the underlying biology of ME/CFS. It is clear that many biological measurements clearly distinguish patients with...

Open access at https://www.mdpi.com/2075-4418/9/3/70

I thought I would open a thread on this as I'm aware of a number of people who have been nominated. Also votes numbered in the hundreds seem to have been enough to get into the final so it's not unachievable for people to become a finalist. For example, some people I recall who were finalists...

My aim with this is to draw together brief details of all the ME/CFS (and all other variants on that name) research funded by a public, private or charity UK source that is currently ongoing today. I’m relying on information that has been made publicly available, so there is a good chance I...

More rodent torture. They may well have established chronic fatigue through over-training the mice but they haven't proven this as a mouse model for ME/CFS. Open access at https://www.jstage.jst.go.jp/article/bpb/42/7/42_b19-00009/_html/-char/en

Moderator note: Moved from this thread: Trial By Error: FOI Response from Bristol about LP Study; Correction in BJGP about MUS I have e-mailed the following letter to Professor Carolyn Chew-Graham of Keele University, who has repeatedly mis-quoted a key data point about the cost of so-called...

Open access at https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-019-1948-6

Study conducted by a Hospital CFS/ME unit in Barcelona, Spain. https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-019-7225-z

We were delighted that Andy from the forum was able to speak to Prof Simon Carding, of the Quadram Institute in Norwich, about his ME/CFS research work, which focuses on the gut and its microbiome. You can read more about Prof Carding here, https://quadram.ac.uk/people/simon-carding/ And about...

Abstract The use of graded exercise therapy and cognitive behavioural therapy for myalgic encephalomyelitis/chronic fatigue syndrome has attracted considerable controversy. This controversy relates not only to the disputed evidence for treatment efficacy but also to widespread reports from...

full debate here https://www.theyworkforyou.com/whall/?id=2019-06-25a.294.0&s=Chronic+Fatigue+Syndrome#g294.1

Agenda topics of interest NICE GDG Call to Tender RCGP Conference 2019 (Liverpool) Research DWP Any other business http://www.forward-me.org.uk/8th%20May%202019.htm