2019

Chris Burton, who is on the NICE panel reviewing the ME/CFS guidelines, is behind this study apparently. Note that an earlier version used the term chronic fatigue syndrome instead of chronic fatigue. http://www.isrctn.com/editorial/retrieveFile/6b3d6b51-92b3-4825-89a8-9060bf0da471/35773...

This study was posted today on the German 'ME -Pacing mit Pulsuhr'-Facebook page: The Abnormal Cardiac Index and Stroke Volume Index Changes During a Normal Tilt Table Test in ME/CFS Patients Compared to Healthy Volunteers, are Not Related to Deconditioning C.(Linda) M.C. van Campen,Frans C...

"Date January 24, 2019 Time 11:30am - 2:00pm Location Fairmont Waterfront, 900 Canada Pl, Vancouver BC Illuminations is our much-anticipated signature luncheon focusing on the work of the Women’s Health Research Institute. The luncheon offers members of the community the opportunity to join us...

The Norwegian ME Association is organising a CFS/ME conference for researchers together with The Norwegian Institute of Public Health and the National Competence Service for CFS/ME. This will take place 26th - 27th Nov. As part of this conference, they invite the public to an open seminar about...

Thursday, April 25th, 2019 18:00 - 18:45 Childhood maltreatment and treatment resistance in adult psychiatric disorders Carmine Pariante (King's College London, United Kingdom) Saturday, April 27th, 2019 9:00 - 9:45 CBT-resistance Trudie Chalder (King's College London, United Kingdom)...

" Invest in ME Research has announced dates for events taking place in London for their International Conference Week in May 2019 on biomedical research into ME (Myalgic Encephalomyelitis). The second Thinking the Future conference for young or early career researchers will be on 28th May 2019...

https://bmjopen.bmj.com/content/8/9/e020775

The stand will be manned or womanned from 4-6 Oct. Workshops are on 4 Oct. "Dr Charles Shepherd, Hon. Medical Adviser, ME Association. Following a meeting last year with Professor Kamila Hawthorne, Vice Chair Professional Development at the Royal College of General Practitioners (RCGP), it...

@Cheshire first posted about this here, but I thought it was important enough to warrant its own thread. https://www.actionforme.org.uk/news/pace-trial-and-behavioural-treatments-for-me/

Generic legal battle I don't think Pregabalin can even be marketed to insurance companies and pharmacies until 2019, so my insurance probably won't cover it until 2020. Then, it probably won't be a preferred generic making it more expensive than most generics.

These posts have been moved from this thread: Sweden: ACT for ME/CFS - an Open Case Trial This is from the ethical approval application document. It says, roughly translated: "Treatment The aim of the treament is to get the participants to return to an active life, which means to gradually...

" Summary The goal of this research project is to evaluate if our well-researched behavior medicine treatment model for chronic pain, based on Acceptance and Commitment Therapy, is safe and effective in increasing quality of life and functioning also in Myalgic Encephalomyelitis/Chronic Fatigue...

Well done to Carol for getting this done. Details here: https://www.meaction.net/2018/06/06/uk-secures-westminster-hall-debate-on-me/ I don't know whether this precludes a debate in the House of Commons...