2019

Source: Scientific Reports Preprint Date: January 15, 2019 URL: http://sro.sussex.ac.uk/81281/ Ref: http://www.nature.com/srep/ MtDNA population variation in Myalgic encephalomyelitis/Chronic fatigue syndrome in two populations: A study of mildly deleterious variants...

This is a private initiative from Stryn, Norway. They've organised ME-conferences before with great programme and results. This year there will be conference for everyone who wishes to attend at Tuesday March 26th from 16.30 - 20.30. Nest day, at Wednesday 27th, there is a conference for health...

From Health Rising, an article about CPET testing by Caroline Christian. It has useful definitions and links.

This post and the following ones have been moved from this thread.

https://www.bbc.co.uk/news/uk-england-derbyshire-46880547 A debate has been held in parliament about a chronic pain condition after a petition attracted more than 115,000 signatures. Toby Perkins, MP for Chesterfield, organised the debate along with constituent and fibromyalgia campaigner...

I saw this posted on the "ME/CFS-Evolving Science" facebook page... Changes in the transcriptome of circulating immune cells of a New Zealand cohort with myalgic encephalomyelitis/chronic fatigue syndrome Eiren Sweetman, Margaret Ryan, Christina Edgar, Angus MacKay, Rosamund Vallings, Warren...

Open access at https://www.frontiersin.org/articles/10.3389/fped.2019.00012/abstract ETA: Change "Paywall" to "Open access"

#MEAction article with Forward ME Group statement here Take the Survey The survey closes on 31st January 2019. We are counting on the ME community to spread this across all of their networks, both online and in-person. Tag me if any technical problems with survey and I'll make sure they...

Open access at https://onlinelibrary.wiley.com/doi/full/10.1111/hex.12857

Chronic fatigue syndrome in the emergency department https://www.dovepress.com/chronic-fatigue-syndrome-in-the-emergency-department-peer-reviewed-article-OAEM Purpose: Chronic fatigue syndrome (CFS) is a debilitating disease characterized by fatigue, postexertional malaise, cognitive...

@Action for M.E. has launched Walk with M.E. 2019: https://www.actionforme.org.uk/make-a-difference/fundraise/walk-with-me-2019/ It has received quite a lot of criticism on its Facebook page from those who feel it is inappropriate and sends out the wrong messages:

Opinion piece in STAT by Jennifer Spotila https://www.statnews.com/2019/01/10/nih-obstacles-thwart-myalgic-encephalomyelitis-research/

Yesterday the Belgium assessment report from the ME/CFS centre in Leuven came out. There are a lot of bad things in this report. CBT was for example said to be successful when the improvements were probably no larger than natural progression of the disease (discussion of the report here). But...

Introductions and Apologies. Parliamentary Ombudsman’s Office Questions and Discussions Minutes of meeting held on 17 July and matters arising RCGP Conference NICE Public Relations. Research DWP CMRC AOCB http://www.meresearch.org.uk/news/forward-me-group-minutes-21st-november-2018/

https://www.meassociation.org.uk/2019/01/me-association-website-survey-what-are-the-most-important-things-a-gp-needs-to-know-about-m-e-08-january-2019/ To go straight to the survey, visit https://www.meassociation.org.uk/ and scroll down until you find it, it looks like this

More Thoughts on the Interferon Study I was surprised recently when the UK press made a big splash about what was, in the end, a modest study from a team led by Carmine Pariante, a professor of psychiatry at Kings College London. I was less surprised when I realized that the Science Media...

A study from South Korea (Epub ahead of print): https://www.ncbi.nlm.nih.gov/pubmed/30605994

(I don't understand why it says 'The Telegraph' when it seems to be a Yahoo article, but I'm just copying what came) Source: The Telegraph Datd: January 5, 2019 Author: Simon Briggs URL: https://uk.sports.yahoo.com/news/katie-boulter-exclusive-interview-apos-080000913.html Katie Boulter...

https://www.gordonmedical.com/event/touro-integrative-medicine-symposium/ eta: don't know anything about this doctor. (still digging). https://www.gordonmedical.com/eric-gordon-md-speaking-on-the-challenge-of-diagnosing-the-complex-chronic-patient/

Abstract published today: Abstract Myalgic encephalomyelitis (ME) is a neuromuscular disease with two distinctive types of symptoms (muscle fatigability or prolonged muscle weakness after minor exertion and symptoms related to neurological disturbance, especially of sensory, cognitive, and...