2019

  1. Kalliope

    Conceptualising illness and disease: reflections on Sharpe and Greco (2019) Wilshire and Ward

    Moderator note This post has been copied and the discussion moved from the thread on Sharpe's original paper here: https://www.s4me.info/threads/michael-sharpe-mind-medicine-and-morals-a-tale-of-two-illnesses-2019-bmj-blog-and-published-responses.9729/page-16#post-224660 A response from Carolyn...
  2. Dolphin

    "How nurses can support people with ME", 2019, Gilchrist

    Comment How nurses can support people with ME Posted 02 October 2019 - 12:20 Often referred to as the ‘invisible illness’, ME can be a highly debilitating condition https://rcni.com/primary-health-care/opinion/comment/how-nurses-can-support-people-me-153746 I'd be interested in seeing a...
  3. Sly Saint

    Elevated blood lactate in resting conditions correlate with post-exertional malaise severity in patients with ME/CFS - Ghali et al Dec 2019

    full paper https://www.nature.com/articles/s41598-019-55473-4
  4. Dolphin

    Minireview for Chronic Fatigue Syndrome and its Medical Attention recently, 2019, Son

    Free full text: https://www.jkom.org/upload/jkm-40-4-84.pdf J Korean Med. 2019;40(4):84-90 http://dx.doi.org/10.13048/jkm.19043 pISSN 1010-0695 • eISSN 2288-3339
  5. Sly Saint

    USA - Mayo clinic

    This thread has been formed by merging several threads about the Mayo clinic and it's approach to treating ME/CFS Supposed treatments for ME CFS - plus overview by Mayo clinic https://www.drugs.com/condition/chronic-fatigue-syndrome-cfs.html Content supplied by Mayo clinic...
    • Sly Saint
    • Thread
    • 2018 2019 2021 cbt central sensitization david tuller get mayo clinic me/cfs motivational treatment trial by error usa video website
    • Replies: 160
    • Forum: USA clinics and doctors
  6. Sly Saint

    ME/CFS Research Update: November 2019 Bedside Chat with Ben H. and Ron Davis

    thanks to @Ben H eta: youtube generated transcript pt 1
    • Sly Saint
    • Thread
    • 2019 cci clonal expansion me/cfs omf red blood cell deformability research ron davis t cells trypanosome video
    • Replies: 2
    • Forum: ME/CFS research
  7. Sly Saint

    BBC Radio 4 - Acceptance and commitment therapy -feat Trudie Chalder Nov 2019

    https://www.bbc.co.uk/programmes/m000bmyf not listened to this yet
  8. R

    Paediatric chronic fatigue syndrome patients’ and parents’ perceptions of recovery - Harland, Crawley et al 2019.

    https://bmjpaedsopen.bmj.com/content/3/1/e000525.full Full text is open. I find it depressing that 'return to pre-morbid condition' is not strongly endorsed. This is pretty damn clear. Yes, there are problems, and athletes returning to 'normal' person activity might not be quite recovered...
  9. Dolphin

    Transient receptor potential melastatin 2 channels are overexpressed in myalgic encephalomyelitis/chronic fatigue syndrome patients, 2019, Balinas

    Free full text: https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-019-02155-4
  10. Sly Saint

    (ME/CFS): Investigating care practices pointed out to disparities in diagnosis and treatment across European Union - Strand, Nacul (EUROMENE) 2019

    full paper here https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0225995
    • Sly Saint
    • Thread
    • 2019 diagnosis euromene europe guidelines me/cfs nacul paper treatment
    • Replies: 34
    • Forum: ME/CFS research
  11. ringding

    MEAction: How did your local service perform?

    MEAction performed a survey earlier this year, gathering data to submit to NICE for their review of the ME guideline. I think there’s already a link to the full report on the forum but just in case, it can be found here...
  12. Sly Saint

    Article: Tesco launch sunflower lanyard scheme to help shoppers with hidden disabilities Dec 2019

    https://www.edinburghlive.co.uk/news/uk-world-news/tesco-sings-up-sunflower-lanyard-17367389 (could be good but not sure it will be that discreet if everyone knows what it stands for)
  13. Sly Saint

    Circulating levels of GDF15 in patients with myalgic encephalomyelitis/chronic fatigue syndrome, 2019, Melvin, Lacerda, Nacul et al

    https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-019-02153-6 eta: can someone explain the conclusions
    • Sly Saint
    • Thread
    • 2019 blood cellular stress gdf15 lacerda me/cfs melvin nacul paper serum
    • Replies: 11
    • Forum: ME/CFS research
  14. Dolphin

    Post-exertional malaise in veterans with gulf war illness, 2019, Lindheimer Cook et al

    https://www.sciencedirect.com/science/article/abs/pii/S0167876019305495
  15. Andy

    UK: Chronic Illness Inclusion Project poll: What should be done about Universal Credit?

    https://docs.google.com/forms/d/e/1FAIpQLScJ5IipE8NAu5OvIjiqD75a-YE_YTnqVJnDriHadOi10MyY6A/viewform
  16. Sly Saint

    Changes in circulating microRNA after recumbent isometric yoga practice by patients with ME/CFS: pilot study, 2019, Takakura,Oka,Sudo

    https://link.springer.com/article/10.1186/s13030-019-0171-2 eta: surprisingly 'tailored' to ME symptoms but uses CFQ
  17. Andy

    Blog: BMJ Opinion: Tessa Richards: Should patient advocates adopt guerilla tactics?

    https://blogs.bmj.com/bmj/2019/11/26/should-patient-advocates-adopt-guerilla-tactics/
  18. Andy

    Survey: Consultation on the MULTI-ACT Patient Engagement Strategy

    This was highlighted in the December Invest in ME newsletter. https://www.surveymonkey.com/r/87GSGGY
  19. Suffolkres

    Top research priorities in healthcare-associated infection in the UK, 2019, Wilson et al.

    Sent to me by very supportive patient advocate for ME and CFS in Norfolk for nearly 40 years Dr Patrick Thompson ! "There is a mismatch between research questions which are considered to be important by patients, carers and healthcare professionals and the research performed in many fields of...
  20. Sly Saint

    Body mass in adolescents with chronic pain: observational study - Gauntlett-Gilbert, Bhat,Clinch 2019

    https://adc.bmj.com/content/early/2019/11/28/archdischild-2019-317843?rss=1
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