2019

  1. Andy

    Trial By Error: My Talk in Newry, Northern Ireland

    http://www.virology.ws/2019/11/13/trial-by-error-my-talk-in-newry-northern-ireland/
    • Andy
    • Thread
    • 2019 bristol university david tuller northern ireland trial by error
    • Replies: 0
    • Forum: General ME/CFS news
  2. Sly Saint

    Veterans with Gulf War Illness exhibit distinct respiratory patterns during maximal cardiopulmonary exercise, 2019, Lindheimer et al

    https://journals.plos.org/plosone/article?id=10.1371%2Fjournal.pone.0224833&utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+plosone%2FPLoSONE+%28PLOS+ONE+-+New+Articles%29
  3. Sly Saint

    Towards an institute for patient-led research - Trish Greenhalgh, BMJ blog November 12, 2019

    Trish Greenhalgh is professor of primary care health sciences at the University of Oxford. https://blogs.bmj.com/bmj/2019/11/12/trisha-greenhalgh-towards-an-institute-for-patient-led-research/ see also this thread...
  4. Andy

    The longitudinal effects of seated isometric yoga on blood biomarkers, autonomic functions, & psychological parameters of [PwCFS], 2019, Oka et al

    Full title: The longitudinal effects of seated isometric yoga on blood biomarkers, autonomic functions, and psychological parameters of patients with chronic fatigue syndrome: a pilot study Open access, https://bpsmedicine.biomedcentral.com/articles/10.1186/s13030-019-0168-x
  5. Andy

    Editorial: Autonomic markers, chronic fatigue syndrome, and post-exertion states, 2019, Friedberg

    Paywall, https://www.sciencedirect.com/science/article/abs/pii/S0022399919309055 Scihub, https://sci-hub.se/10.1016/j.jpsychores.2019.109845
    • Andy
    • Thread
    • 2019 autonomic exertion friedberg hrv me/cfs
    • Replies: 8
    • Forum: ME/CFS research
  6. Sly Saint

    Developing and pretesting a new patient reported outcome measure for paediatric CFS/ME: cognitive interviews with children, 2019, Crawley et al

    Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children full paper https://jpro.springeropen.com/articles/10.1186/s41687-019-0156-8 eta:
  7. John Mac

    A logistic regression analysis of risk factors in ME/CFS pathogenesis. Lacerda et al. 2019

    https://bmcneurol.biomedcentral.com/articles/10.1186/s12883-019-1468-2
    • John Mac
    • Thread
    • 2019 etiology geraghty kingdon lacerda me/cfs multiple sclerosis nacul paper pathogenesis uk me/cfs biobank
    • Replies: 25
    • Forum: ME/CFS research
  8. Trish

    Open letter to Dr Peter Fisher, Liverpool University, about a research survey on emotional distress and CFS. 2019

    I wrote this personal open letter as a response to taking a survey detailed on this thread. University of Liverpool survey: 'Emotional Distress in Chronic Fatigue Syndrome', 2019 I will post any reply I receive here too.
  9. Andy

    Differentiating post-polio syndrome from myalgic encephalomyelitis and chronic fatigue syndrome, 2019, Jason et al

    Paywall, https://www.tandfonline.com/doi/abs/10.1080/21641846.2019.1687117 Not available via Scihub at time of posting
    • Andy
    • Thread
    • 2019 enterovirus leonard jason me/cfs paper pem post-polio syndrome symptoms
    • Replies: 18
    • Forum: ME/CFS research
  10. Sly Saint

    Article - UM launches CAR-T clinical trial for patients with myasthenia gravis - Nov 2019

    https://www.news-medical.net/news/20191105/UM-launches-CAR-T-clinical-trial-for-patients-with-myasthenia-gravis.aspx
  11. J

    CBT to reduce healthcare use for medically unexplained symptoms: systematic review and meta-analysis (2019) Jones, Williams

    https://bjgp.org/content/69/681/e262.short
  12. Cheshire

    ME/CFS as a hyper-regulated immune system driven by an interplay between regulatory T cells & chronic human herpesvirus infections (2019) Nacul et al.

    Nuno Sepúlveda, Jorge Carneiro, Eliana M. Lacerda and Luis C. Nacul https://www.frontiersin.org/articles/10.3389/fimmu.2019.02684/abstract Study made with the UK ME/CFS Biobank Full text not available yet, will be published soon.
    • Cheshire
    • Thread
    • 2019 ebv herpesvirus me/cfs nacul paper sepulveda t-cells
    • Replies: 32
    • Forum: ME/CFS research
  13. Andy

    Mindfulness-based therapy for psychogenic nonepileptic seizures, 2019, Baslet, Ehlert, Oser and Dworetzky

    Paywall, https://www.epilepsybehavior.com/article/S1525-5050(19)30736-X/fulltext Not available via Scihub at time of posting
  14. Dolphin

    The increased cellular permeability syndrome manifesting as severe idiopathic type urinary incontinence, 2019, Check & Check

    Free full text: https://s3.amazonaws.com/academia.edu.documents/61042125/CEOG_Canada_full_dergi20191028-29026-1rwjffk.pdf
    • Dolphin
    • Thread
    • 2019 cellular stress check me/cfs paper urinary
    • Replies: 4
    • Forum: ME/CFS research
  15. Andy

    Development of a Scale to Measure an Unemployment Syndrome: Items Generation and Content Validity, 2019, Bocchino et al

    Definitely not a recommendation. Paywall, https://onlinelibrary.wiley.com/doi/abs/10.1111/2047-3095.12261 Not available via Scihub at time of posting.
  16. Andy

    Effects of attachment-based compassion therapy on brain-derived neurotrophic factor and inflammation among fibromyalgia patients, 2019, Montero-Marin

    Full title: Effects of attachment-based compassion therapy (ABCT) on brain-derived neurotrophic factor and low-grade inflammation among fibromyalgia patients: A randomized controlled trial Open access, https://www.nature.com/articles/s41598-019-52260-z
  17. Trish

    Video: Upright Activity and Exercise Intolerance: Critical Concepts in the Evaluation of Chronic Fatigue, Dr Lucinda Bateman, 2019

    Conference details: http://aaemconference.com/speakers/bateman.php
    • Trish
    • Thread
    • 2019 bateman bateman horne center exercise exercise intolerance video
    • Replies: 28
    • Forum: ME/CFS research news
  18. Andy

    Solve ME/CFS Initiative: Ramsay Grant program 2019 awards

    2019 is our biggest year yet! We have over 30 researchers working across seven projects. The group represents 12 academic centers and organizations. Three of the studies will be done collaboratively, integrating scientists from different labs. “Altered T cells in Myalgic...
    • Andy
    • Thread
    • 2019 award ramsay grant program solve mecfs initiative
    • Replies: 21
    • Forum: ME/CFS research news
  19. Dolphin

    "Ehlers-Danlos syndromes: new labels confuse everyone", 2019, Williams, letter to BMJ, includes comments about CFS

    https://www.bmj.com/content/367/bmj.l6095.full Extract:
  20. Dolphin

    Mediation analysis re: cognitive behavioural therapy in Q fever fatigue syndrome, 2019, Knoop et al

    https://www.sciencedirect.com/science/article/abs/pii/S0022399919305410
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