2021

  1. Sly Saint

    Limbic Perfusion Is Reduced in Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2021, Xia Li et al

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an illness characterized by a diverse range of debilitating symptoms including autonomic, immunologic, and cognitive dysfunction. Although neurological and cognitive aberrations have been consistently reported, relatively...
  2. Andy

    Supporting patients with long COVID return to work, 2021, Madan, Briggs and Chew-Graham

    Post-COVID-19 syndrome, often called ‘long COVID’ refers to signs and/or symptoms that develop following COVID-19 infection, which continue for more than 12 weeks and are not explained by an alternative diagnosis.1 Long COVID presents with clusters of symptoms, often overlapping, can affect any...
  3. ProudActivist

    NHS England web pages on ME/CFS

    I was looking at the MS page in the NHS website yesterday and noticed that it has a clear link to a guide for accessing care services at the bottom of the page. https://www.nhs.uk/conditions/multiple-sclerosis/ I thought I would check the CFS/ME page...
  4. Andy

    Clinical Heterogeneity in ME/CFS. A Way to Understand Long-COVID19 Fatigue, 2021,Murga et al

    The aim of present paper is to identify clinical phenotypes in a cohort of patients affected of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Ninety-one patients and 22 healthy controls were studied with the following questionnaires, in addition to medical history: visual analogical...
  5. Andy

    Multi-‘omics of gut microbiome-host interactions in short- and long-term myalgic encephalomyelitis/chronic fatigue syndrome patients, 2023, Xiong

    Study now printed, see https://www.s4me.info/threads/preprint-multi-omics-of-host-microbiome-interactions-in-short-and-long-term-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-2021-xiong.23022/#post-459931 for abstract and link Preprint: Multi-omics of host-microbiome interactions in...
  6. Science For ME

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Stakeholder submissions and NICE responses This thread is for discussion of the published tables of stakeholders submissions to the NICE ME/CFS guideline draft, which also include responses from NICE. The submissions were made by stakeholders in December 2020. These tables with both the...
  7. Wyva

    Saliva fatigue biomarker index as a marker for severe ME/CFS in a community based sample, 2021, Jason et al

    ABSTRACT Objective The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been estimated from an ethnically and sociodemographically diverse community-based random sample of 10,119 youth aged 5–17. We assessed whether a salivary biomarker of fatigue could...
  8. Andy

    Exploring the scope of homoeopathy in combating the unfortunate consequences of post-COVID-19 survivors based on non-COVID conditions, 2021, Dixit

    Abstract Objectives The long-term consequences of COVID-19 survivors care and post-coronavirus infection are not yet well understood. The review aims to see whether homoeopathy can help COVID-19 survivors recover from its consequences and improve their quality of life. Content A systematic...
  9. Andy

    Using evidence-based psychotherapy to tailor treatment for patients with functional neurological disorders, 2021, Myers et al

    Highlights • Existing evidence-based psychotherapeutic modalities for FNDs are based on different theoretical foundations. • However, there is considerable overlap between modalities regarding tools and targets. • Congruence between treatment rationale and patient characteristics may guide...
  10. S

    A selective antibiotic for Lyme disease, Leimer et al. 2021

    Merged thread For the abstract of the paper and a link to it, see this post. The discovery that a chemical is deadly to the bacterium that causes Lyme disease but harmless to animals might allow the disease to be eradicated in the wild. “Lyme disease is well-positioned to be eradicated,”...
  11. Andy

    Prevalence of fibromyalgia 10 years after infection with Giardia lamblia: a controlled prospective cohort study, 2021, Hunskar et al

    Abstract Objectives To investigate whether acute infection with Giardia lamblia is associated with fibromyalgia 10 years after infection and whether fibromyalgia is associated with irritable bowel syndrome (IBS) and chronic fatigue (CF) in this setting. Methods A cohort study was established...
  12. Andy

    UK: The Neurological Alliance: "My Neuro" survey, 2021 (close 6th Feb 2022)

    From the website: Support #MyNeuroSurvey and help improve neuro services Take My Neuro Survey online here. Take My Neuro Survey now Or call the survey partners, Quality Health on 0800 783 1775 (Freephone) to: hear and complete the survey over the phone in any language ask for a paper copy to...
  13. Andy

    Case Report: Idiopathic combined adrenocorticotropin and growth hormone deficiency mimicking chronic fatigue syndrome, 2021, Tokumasu et al

    Abstract A 42-year-old man who had suffered from severe fatigue for 5 years was diagnosed as having chronic fatigue syndrome (CFS) and fibromyalgia. Endocrinological workup using combined anterior pituitary function tests showed that the patient had adrenocorticotropin hormone (ACTH)...
  14. J

    Webinar: Massachusetts ME/CFS & FM research update - 23 October 2021

    Copied post: USA: Massachusetts ME/CFS & FM Association news Seminar Tomorrow—Advances in Our Understanding of ME/CFS and the Effects of Long Covid https://sites.google.com/massmecfs.org/2021annualmeeting
  15. rvallee

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    https://kclpure.kcl.ac.uk/portal/en/publications/evidence-based-care-for-people-with-chronic-fatigue-syndrome-and-myalgic-encephalomyelitis(536398c9-3ebe-4faf-b3bc-e01257e82c65).html Abstract (Paragraphs mine for legibility) Chronic fatigue syndrome (CFS), sometimes referred to as myalgic...
  16. Andy

    BBC Article Oct 2021: Gene silencing medicine transforms crippling pain

    Quote: An innovative type of medicine - called gene silencing - is set to be used on the NHS for people who live in crippling pain. The drug treats acute intermittent porphyria, which runs in families and can leave people unable to work or have a normal life. Clinical trials have shown severe...
  17. boolybooly

    Cortical autonomic network connectivity predicts symptoms in ... ME/CFS., 2021, Zinn, Jason.

    Cortical autonomic network connectivity predicts symptoms in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) IntJPsychophysiol 2021 Oct 15; Online ahead of print. Authors. Mark A Zinn, Leonard A Jason. Abstract Myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS)...
  18. Sly Saint

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): An Overview, 2021, Deumer et al

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic systemic disease that manifests via various symptoms such as chronic fatigue, post-exertional malaise, and cognitive impairment described as “brain fog”. These symptoms often prevent patients from keeping up their...
  19. Suffolkres

    United Kingdom: Petition, Create a Task Force to Oversee Drug Procurement for ALL Post Viral Conditions - deadline 20 November 2021

    Moved post Patients of post viral being taken seriously? Following petition started by patient from Norfolk and Suffolk Service ME and CFS area. Please consider supporting and promoting please. https://petition.parliament.uk/petitions/585780
  20. Adam pwme

    New Video: NICE pause ME/CFS guideline

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