2021

  1. Hutan

    Pentosan polysulfate sodium for Ross River virus-induced arthralgia: a phase 2a, ... double-blind, placebo-controlled study, 2021, Krishnan et

    Abstract Background Alphaviruses, such as Ross River (RRV) and chikungunya virus (CHIKV), cause significant global morbidity, with outbreaks of crippling joint inflammation and pain, leaving patients incapacitated for months to years. With no available vaccine or specific therapeutic for any...
  2. Kalliope

    This Week in Virology: Long COVID and ME/CFS with David Tuller

    New interview by Vincent Racaniello with David Tuller! - David Tuller returns to TWiV to revisit his work to expose the methodological and ethical problems with the PACE trial, and the post-acute sequelae to SARS-CoV-2 infection, also known as long COVID.
  3. Andy

    Short-term and Long-term Rates of Postacute Sequelae of SARS-CoV-2 Infection, 2021, Groff et al

    Abstract Importance Short-term and long-term persistent postacute sequelae of COVID-19 (PASC) have not been systematically evaluated. The incidence and evolution of PASC are dependent on time from infection, organ systems and tissue affected, vaccination status, variant of the virus, and...
  4. Sly Saint

    Royal College of General Practitioners Conference, Oct 14th - 15th, 2021

    https://www.rcgpac.org.uk/programme/ speakers include Dr Amy Small Professor Chew-Graham Dr Julia Newton https://www.rcgpac.org.uk/speakers-2021/
  5. Sly Saint

    Network Analysis of Symptoms Co-Occurrence in Chronic Fatigue Syndrome, 2021, Kujawski, Staines,Newton et al

    Abstract Chronic fatigue syndrome (CFS) is a heterogenous disorder of multiple disabling symptoms with complex manifestations. Network analysis is a statistical and interrogative methodology to investigate the prevalence of symptoms (nodes) and their inter-dependent (inter-nodal) relationships...
  6. Andy

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    [Can be signed by anybody] Quote: Our Pleas to the German Bundestag We ask the German Bundestag to commit itself to the provision of healthcare appropriate to the disease severity of ME/CFS, in particular by amending § 116b SGB V as well as through awareness campaigns. Further, we ask the...
  7. Sly Saint

    Potential Implications of Mammalian Transient Receptor Potential Melastatin 7 in the Pathophysiology of ME/CFS, 2021, Du Preez, Staines et al

    Abstract The transient receptor potential (TRP) superfamily of ion channels is involved in the molecular mechanisms that mediate neuroimmune interactions and activities. Recent advancements in neuroimmunology have identified a role for TRP cation channels in several neuroimmune disorders...
  8. Revel

    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    Another date for our diary, Esther Crawley confirmed as a speaker at the European Society for Paediatric Infectious Diseases (ESPID) later this year: http://espidmeeting.org/2018/scientific-information/confirmed-invited-speakers#.WkuWyJCnzMI
  9. Sly Saint

    Clinical Heterogeneity in ME/CFS. A Way to Understand Long-COVID19 Fatigue, 2021, Murga et al

    The aim of present paper is to identify clinical phenotypes in a cohort of patients affected of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Ninety-one patients and 22 healthy controls were studied with the following questionnaires, in addition to medical history: visual analogical...
  10. Kalliope

    "Can someone as Young as You Really Feel That Much Pain?" - A survey on How People With Fibromyalgia Experience Healthcare in Sweden, 2021, Hasselroth

    SAGE Open Nursing "Can Someone as Young as You Really Feel That Much Pain?" - A Survey on How People With Fibromyalgia Experience Healthcare in Sweden - Hasselroth et al - 2021 Research show that fibromyalgia has low credibility in healthcare, leading to poor treatment, lack of knowledge and...
  11. Sly Saint

    Impact of Life Stressors on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Symptoms: An Australian Longitudinal Study, 2021, Balinas,Staines et al

    Abstract (1) Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, multifaceted illness. The pathomechanism, severity and progression of this illness is still being investigated. Stressors have been implicated in symptom exacerbation for ME/CFS, however, there is...
  12. Andy

    Musculoskeletal disorders due to chikungunya virus: A real experience in a rheumatology department in Neiva, Huila, 2021, Segura-Charrya et al

    Abstract Background Chikungunya (CHIKV), is an endemic RNA virus in some regions of Asia and Africa. In Colombia in 2014, its spread started explosively and quickly. The presentation of CHIKV is a febrile condition, with musculoskeletal symptoms, which can progress to erosive arthropathy and...
  13. Dolphin

    Is ... COVID-19 causing an increased risk of psychological distress, psychotropic prescribing or sleep and fatigue problems? 2021, Abel, Chalder et al

    https://kclpure.kcl.ac.uk/portal/en/publications/is-infection-with-covid19-causing-an-increased-risk-of-psychological-distress-psychotropic-prescribing-or-sleep-and-fatigue-problems(a1979edd-3821-454a-b488-b9c716e49e7b).html Is infection with COVID-19 causing an increased risk of psychological...
  14. ahimsa

    ME/CFS Alert with Llewellyn King and Deborah Waroff - Episode 128: Interview with Dr. Lucinda Bateman, Bateman Horne Center

    "Interview with Dr. Lucinda Bateman, founder and medical director of the Bateman Horne Center in Salt Lake City, Utah. She is recognized worldwide as an expert in the diagnosis and treatment of ME/CFS. In this episode, Llewellyn King talks with Dr. Bateman about how she became involved in the...
  15. Andy

    The impact of Post-COVID-Syndrome on functioning – results from a community survey..., 2021, Lemhöfer et al

    Full title: The impact of Post-COVID-Syndrome on functioning – results from a community survey in patients after mild and moderate SARS-CoV-2-infections in Germany Abstract Background In COVID-19 survivors a relatively high number of long-term symptoms have been observed. Besides impact on...
  16. Hutan

    Female Patients with ME/CFS or Idiopathic Chronic Fatigue: Comparison of Responses to a Two-Day CPET Protocol, 2021, van Campen and Visser

    https://www.mdpi.com/2227-9032/9/6/682 C. (Linda) M. C. van Campen Frans C. Visser Abstract Introduction: Multiple studies have shown that peak oxygen consumption is reduced in the majority of ME/CFS patients, using the golden standard for measuring exercise intolerance: cardiopulmonary...
  17. Dolphin

    Interview with Dr. John Greally on his ME/CFS research he is fundraising for (ME/CFS advocate Liz Carlson also talks)

  18. Andy

    Functional neurological disorder: lighting the way to a new paradigm for medicine, 2021, Edwards

    Latest empire building spam from Edwards. Abstract What if the patients most health professionals actively seek to avoid, people with “medically unexplained” or functional symptoms, were those who hold the key to a more successful, more rewarding and more just system of medical practice for...
  19. Sly Saint

    Persistent clotting protein pathology in Long COVID/PASC is accompanied by increased levels of antiplasmin, 2021, Pretorius et al

    " Inflammatory micro clots in blood of individuals suffering from Long COVID Date: October 4, 2021 Source: Stellenbosch University Summary: Researchers have found an overload of various inflammatory molecules, 'trapped' inside insoluble microscopic blood clots (micro clots), in the blood of...
  20. Andy

    Central sensitisation in chronic fatigue syndrome and fibromyalgia; a case control study, 2021, Bourke, White et al

    Highlights • Central sensitisation (CS) was assessed using quantitative sensory tests (QST). • Dynamic QST showed complete agreement in all subjects regarding the presence of CS. • The large majority of CFS and fibromyalgia cases demonstrated CS. • This could be either a cause or an effect of...
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