Here is a place collecting stories about access (or not) to Medicare home health services in the USA. You can choose who they will anonymously...
The MEAction website has info on how to set up or participate in #MillionsMissing protests on May 12, 2018....
Help Fuel SMCI's Fight in Washington DC! Last year, 52 ME/CFS patients and advocates met with more than 80 members of Congress and their...
" In 2017, Jen Brea did the impossible. She catapulted ME/CFS onto the public stage, and into the international spotlight, all in one fell swoop...
Maybe somebody might find this of interest, maybe not. Top 5 Twitter Patient Leaders to Watch WEGO Health | February 19, 2018...
For those of you who are interesting in seeing the ME landscape change by supporting advocacy, I would like to ask for your feedback. I am...
We already have an extensive discussion thread on the subject here,...
Hi, I guess you've all seen the other thread (or got the email) that the planning for the Millions Missing protests have started:...
and it looks pretty good, mainly due to being written by Mary Dimmock, Susan Levine and Terri Wilder. Introduction Myalgic encephalomyelitis...
Lacking the resources to write more -- just would like to let you know how the German Patient Organisation for MS "AMSEL" handles the issue of...
The Unrest film team sent out a rather long email today. At the bottom of the mail there are links to three actions to take. I thought the action...
Merged thread Our international advocacy work will be done from Geneva, Switzerland, where key international organisations are based. We are...
My head would lift a bit, I could get part of a shoulder up, but even when I groaned with effort, my spine didn’t budge. My muscles weren’t...
http://www.cnn.com/2017/12/17/world/amy-wright-2017-cnn-hero-of-the-year/index.html Amy Wright is 2017 CNN Hero of the Year Wright advocates for...
Here's an idea (one of many) for spreading the word about ME while the film Unrest is getting media attention. It started back in October but...
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