article

Useful resource. built in search facility http://www.margaretwilliams.me/

Thought it might be nice to have a list of the best and/or biggest ME articles of 2019 in main stream media. Here's a start. Medscape Chronic Fatigue Syndrome: It's Real, and We Can Do Better - By Elizabeth Unger - February 2019 Stanford Medicine Biomarker for chronic fatigue syndrome...

full article here https://www.dailyrecord.co.uk/news/scottish-news/author-who-endures-crippling-chronic-21172609

https://www.thesun.co.uk/fabulous/10615282/eight-years-convince-docs-me-unrecognisable/ eta: I wish they would get away from this thing that the 'pain' side of things is Fibro; ie ME causes pain too.

Title : Are Regulatory Bodies Prioritising Drug Company Interests Over Public Safety? Subtitle : The Disturbing Case of the Street Drug Ketamine https://www.madinamerica.com/2019/12/are-regulatory-bodies-prioritising-drug-company-interests-over-public-safety/ Article continues at ...

Editorial in Acta Pædiatricia: Myalgic Encephalomyelitis (ME) in the Young. Time to Repent - Ola Didrik Saugstad A reorientation of the understanding and attitude to ME patients occurs worldwide. ME patients, especially the worse cases, suffer enormously. Among them, the paediatric patients are...

https://www.examinerlive.co.uk/news/west-yorkshire-news/picture-hides-illness-can-make-17432787 I feel sorry for the author

full article here https://www.en24.news/2019/12/the-disease-that-nobody-knows-tsuri-ch-mirsindtsuri.html do we have any contact/member in Switzerland?

full article here https://www.statnews.com/2019/12/13/bmj-should-retract-flawed-chronic-fatigue-syndrome-research-paper/

Paywalled: https://www.thetimes.co.uk/article/gut-instinct-leads-enterobiotix-scientists-to-a-microbiome-wonder-drug-8fw8k0t3d It's partly publicity for an event being sponsored by the paper:

I just wanted to share an article that was recently posted to our Facebook group on ME/CFS and structural diagnoses. A woman in it who meets ME/CFS criteria was recently diagnosed with bilateral internal jugular vein stenosis (IJVS). This is considered a congenital condition, however she never...

https://www.nytimes.com/2019/12/07/us/dna-bone-marrow-transplant-crime-lab.html Interesting... wonder if pwmecfs could benefit from a bone marrow transplant, especially since all of the blood will have the donor’s genotype. In other words, maybe the blood after transplant won’t have...

full article: https://snowbrains.com/oliver-vaughan-jones-has-big-plans-for-improvement-to-the-adaptive-ski-industry/

full blog here https://elemental.medium.com/diagnosis-is-a-process-not-an-event-db1e6ae2ac35

https://www.psychologytoday.com/intl/blog/digital-world-real-world/201911/does-mobile-phone-radiation-cause-symptoms eta: just found it interesting how they identify key methodological errors in the research, only to then replace with alternative theories with equally dodgy research evidence.

https://www.medpagetoday.com/blogs/revolutionandrevelation/75045 Amen

full article here https://overland.org.au/2019/11/anti-vax-anti-science-and-the-pitfalls-of-sharing-a-rare-condition-with-a-celebrity/

I haven't seen this posted. It's a personal account by a UK pwME who participated in a study, pre-PACE, using GET/CBT. Very unfortunately, and fairly predictably the author of this story worsened from this treatment. She notes that some others in the study did not have symptoms like hers...

Interesting read. don't know if there is any way for people to show support to the creator of sci-hub? https://www.theguardian.com/science/2017/jun/27/profitable-business-scientific-publishing-bad-for-science?CMP=share_btn_tw

or "Stop telling women they're mad when they're really ill"