david tuller

This is a private initiative from a family who has previously organised two large conferences in Stryn, Norway. They also do fundraising for biomedical research into ME. All money goes to Fluge, Mella and their team at Haukeland University Hospital. (more about their fundraising in English...

https://www.virology.ws/2021/01/26/trial-by-error-my-exchange-with-minnesota-medical-center-holding-me-cfs-patient/

https://adc.bmj.com/content/105/Suppl_1/A188.1 PDF

A few years ago, my friend and colleague Steven Lubet, a law professor and scholar at Northwestern University, wrote the following account of the start of his struggle with what was then largely called chronic fatigue syndrome. While his story does not directly relate to current events, Steve’s...

https://crowdfund.berkeley.edu/project/22602

On Wednesday, September 23 the CDC helt its ME/CFS Stakeholder Engagement and Communication (SEC) conference call ant the #MEAction community showed up to make our voices heard! Here is our initial summary of what you need to know. ... We’ve divided this summary into the following sections, so...

https://www.bmj.com/content/370/bmj.m3565 It's basically a manifesto for care and research.

A great Stat news article by David Tuller @dave30th Seeking the causes of post-Covid symptoms, researchers dust off data on college students with mononucleosis From 2014 to 2018, DePaul University psychologist Leonard Jason and colleagues collected personal information and blood samples from...

Trial By Error: What Is the Dynamic Neural Retraining System? 2 September 2020 David Tuller https://www.virology.ws/2020/09/02/trial-by-error-what-is-the-dynamic-neural-retraining-system/

Very troubling study by prof Knoop et al. "ONDERZOEKSVRAAG To investigate whether delivering timely Cognitive Behavioural Therapy [CBT], an evidence-based treatment for chronic fatigue, is effective in preventing the development of post-COVID-19 chronic fatigue. URGENTIE A substantial...

https://www.statnews.com/2020/07/21/chronic-fatigue-syndrome-keys-understanding-post-covid-syndrome/

David Tuller: Trio of Trials Shows Limits of CBT for Medically Unexplained Symptoms https://www.virology.ws/2020/06/17/trial-by-error-trio-of-trials-shows-limits-of-cbt-for-medically-unexplained-symptoms/

full article here https://www.healthaffairs.org/do/10.1377/hblog20200603.471204/full/

Mod note: The reply by Lubet and Tuller was in response to an article by Sharpe and Greco, discussed here: Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses By Steven Lubet & David Tuller. Abstract: Link...

Interesting article I had not seen before; features Len Jason, PACE trial, David Tuller, Mary Dimmock, Wessely, White, Esther Crawley, Steven Holgate, Jo Edwards and more. just pop this bit in here o_O https://goodmenproject.com/the-good-life/worklife-balance/fighting-over-fatigue/

Read more, and donate, at https://crowdfund.berkeley.edu/project/20159

https://www.virology.ws/2020/04/08/trial-by-error-a-post-about-lupus-and-mus-not-covid/

https://www.virology.ws/2020/04/02/trial-by-error-a-long-time-patient-reflects-on-a-stay-at-home-world/

http://www.virology.ws/2020/03/18/trial-by-error-what-now/

http://www.virology.ws/2020/03/02/trial-by-error-new-biopsychosocial-study-of-fatigue-in-hiv-patients/