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  1. M

    Autonomic Dysfunction in Autism Spectrum Disorder (2021) Owens et al.

    This came into my mailbox. i thought i’d share. Full text here . Interestingly the authors are affiliated to King’s College in London. Abstract Background: There have been previous reports of enhanced sympathoexcitation in autism spectrum disorder (ASD). However, there has been no formal...
  2. cassava7

    The [ME/CFS] Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing..., 2021, van Campen et al

    The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing Than Patients without Hypermobility: A Case Control Study Linda M.C. van Campen Stichting CardioZorg, Planetenweg 5, 2132 HN...
    • cassava7
    • Thread
    • 2021 cerebral blood flow eds ehlers-danlos syndrome hypermobility me/cfs orthostatic intolerance paper pots tilt table test van campen
    • Replies: 1
    • Forum: ME/CFS research
  3. Andy

    Pain Management through Neurocognitive Therapeutic Exercises in Hypermobile Ehlers–Danlos Syndrome Patients with Chronic Low Back Pain, 2021, Celletti

    Abstract Background. The hypermobile type of Ehlers–Danlos syndrome (hEDS) is likely the most common hereditary disorder of connective tissue mainly characterized by joint hypermobility. Patients with hEDS suffer joint pain, in particular low back pain, commonly resistant to drug therapy. The...
  4. Andy

    The Role of Cell Adhesion & Cytoskeleton Dynamics in the Pathogenesis of the Ehlers-Danlos Syndromes & Hypermobility Spectrum Disorders, 2021, Malek

    The Ehlers-Danlos syndromes (EDS) are a group of 13 disorders, clinically defined through features of joint hypermobility, skin hyperextensibility, and tissue fragility. Most subtypes are caused by mutations in genes affecting the structure or processing of the extracellular matrix (ECM) protein...
  5. MeSci

    Nil-by-mouth foodie: The chef who will never eat again - hypermobile Ehlers-Danlos Syndrome

    This is a long article about someone with EDS. Nil-by-mouth foodie: The chef who will never eat again - BBC News By Kirstie Brewer BBC News Loretta Harmes hasn't eaten for six years, but she hasn't lost her passion for cooking. Even though she cannot taste her recipes, she has a growing...
  6. Andy

    Ehlers–Danlos syndrome-associated craniocervical instability with cervicomedullary syndrome: Comparing outcome.., 2021, Spiessberger et al

    Full title: Ehlers–Danlos syndrome-associated craniocervical instability with cervicomedullary syndrome: Comparing outcome of craniocervical fusion with occipital bone versus occipital condyle fixation Abstract Introduction: Ehlers–Danlos syndrome (EDS) predisposes to craniocervical...
  7. Mij

    Prevalence of gastrointestinal, cardiovascular, autonomic, and allergic... in hospitalized patients with EDS: a case... study, 2021, Brooks et al.

    Full title: Prevalence of gastrointestinal, cardiovascular, autonomic, and allergic manifestations in hospitalized patients with Ehlers-Danlos syndrome: a case-control study https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/keaa926/6067343
  8. Andy

    Ehlers-Danlos Syndrome and Hypermobility Syndrome Compared with Other Common Chronic Pain Diagnoses, 2020, Molander et al

    Open access, https://www.mdpi.com/2077-0383/9/7/2143/htm
  9. Hoopoe

    Dermal fibroblast-to-myofibroblast transition sustained by αvß3 integrin-ILK-Snail1/Slug signaling is a common feature for hEDS and HSD

    https://www.sciencedirect.com/science/article/pii/S0925443918300061
  10. Sly Saint

    Article: Anti-vax, anti-science and the pitfalls of sharing a ‘rare’ condition with a celebrity, Nov 2019

    full article here https://overland.org.au/2019/11/anti-vax-anti-science-and-the-pitfalls-of-sharing-a-rare-condition-with-a-celebrity/
  11. Dolphin

    "Ehlers-Danlos syndromes: new labels confuse everyone", 2019, Williams, letter to BMJ, includes comments about CFS

    https://www.bmj.com/content/367/bmj.l6095.full Extract:
  12. J

    Lucky Dog Show—EDS episode

    Saw this on TV by chance. Found it on the internet.
  13. Saz94

    Case report on rheumatological presentation of bartonella (Mozayeni et al, 2018)

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5944489/#__ffn_sectitle
  14. MSEsperanza

    Mast cell activation syndrome: Importance of consensus criteria and call for research (J Allerg Clin Immunol), Valent et al 2018

    Mast cell activation syndrome: Importance of consensus criteria and call for research, Valent, Peter et al. 2018, Journal of Allergy and Clinical Immunology, Volume 142, Issue 3, 1008 - 101, https://www.jacionline.org/article/S0091-6749(18)30854-6/fulltext (letter to the editor) I found this...
  15. Hutan

    The phenotype of the musculocontractural type of Ehlers-Danlos syndrome, 2016, Janecke et al

    The Phenotype of the Musculocontractural Type of Ehlers-Danlos Syndrome due to CHST14 Mutations https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5115638/ Abstract The musculocontractural type of Ehlers-Danlos syndrome (MC-EDS) has been recently recognized as a clinical entity. MC-EDS represents a...
  16. MeSci

    Hidden disability: The young film-maker shining a light on hidden illness (EDS)

    With her blonde hair, youthful complexion and brown eyes, Ashleigh Harley looks every inch the model, social media influencer and budding writer and film-maker. But, for Ashleigh, that's a problem she is addressing in a new documentary. Ashleigh is one of millions of people who live with a...
  17. ME/CFS Science Blog

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Concerns about craniocervical instability surgery in ME/CFS CCI/AAI has little in common with ME/CFS Three ME/CFS patients, Jeff, Jennifer, and Matt, have reported improvements of their ME/CFS symptoms following surgical interventions for craniocervical instability (CCI) and atlantoaxial...
  18. M

    EDS, hypermobility, and the link, if any, to ME/CFS

    Moderator note: This post has been copied and posts responding to it have been moved from this thread: Jen Brea: My ME is in remission Hypermobility is also discussed on this thread: Concerns about craniocervical instability surgery in ME/CFS Jen, we need to be careful here. hEDS does not...
  19. Andy

    ME Association Monthly Survey, April 2019: Co-morbidities

    In addition to ME/CFS, do you have a diagnosis of any of the following conditions? Endometriosis Fibromyalgia Hypermobility/Ehlers Danlos syndrome Interstitial Cystitis Irritable Bowel Syndrome Jaw pain - Temperomandibular Jaw Dysfunction Migraine Multiple Chemical Sensitivities Postural...
    • Andy
    • Thread
    • co-morbidity eds endometriosis fibromyalgia hypermobility ibs interstitial cystitis mea migraine multiple chemical sensitivity pots survey tmj
    • Replies: 3
    • Forum: General ME/CFS news
  20. Andy

    Factors affecting quality of life in children and adolescents with hypermobile Ehlers-Danlos syndrome/hypermobility spectrum disorders,2019,Mu et al

    Paywalled at https://onlinelibrary.wiley.com/doi/abs/10.1002/ajmg.a.61055
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