eds

  1. M

    EDS, hypermobility, and the link, if any, to ME/CFS

    Moderator note: This post has been copied and posts responding to it have been moved from this thread: Jen Brea: My ME is in remission Hypermobility is also discussed on this thread: Concerns about craniocervical instability surgery in ME/CFS Jen, we need to be careful here. hEDS does not...
  2. Andy

    ME Association Monthly Survey, April 2019: Co-morbidities

    In addition to ME/CFS, do you have a diagnosis of any of the following conditions? Endometriosis Fibromyalgia Hypermobility/Ehlers Danlos syndrome Interstitial Cystitis Irritable Bowel Syndrome Jaw pain - Temperomandibular Jaw Dysfunction Migraine Multiple Chemical Sensitivities Postural...
    • Andy
    • Thread
    • co-morbidity eds endometriosis fibromyalgia hypermobility ibs interstitial cystitis mea migraine multiple chemical sensitivity pots survey tmj
    • Replies: 3
    • Forum: General ME/CFS news
  3. Andy

    Factors affecting quality of life in children and adolescents with hypermobile Ehlers-Danlos syndrome/hypermobility spectrum disorders,2019,Mu et al

    Paywalled at https://onlinelibrary.wiley.com/doi/abs/10.1002/ajmg.a.61055
  4. Liessa

    Video: Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders

    Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders First 20 minutes are an introduction and offsetting MCAS against mastocytosis. After that he focuses on the type of MCAS that overlaps with POTS and EDS, mentioning the following article: JJ Lyons et...
  5. Daisybell

    NZ Herald running a series on EDS

    The main paper in NZ is running a series of articles on people getting diagnosed with fictitious illness disorder. It seems to be people with EDS suffering from this. Here are the links to the articles so far: https://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=12133645...
  6. J

    Treatment of ME patients in ERs and Hospitals

    Hi all! I'm working to improve the quality of information for patients with ME, fibro, EDS, POTS, mast cell activation disorder having surgery as well as crowdsourcing a set of best practices for hospitals. The former will eventually be packaged into handouts patients can give their surgeon...
    • JenB
    • Thread
    • eds hospital hospitalisation jen brea mast cell activation syndrome mcas mepedia neck spine surgery
    • Replies: 34
    • Forum: General Advocacy Discussions
  7. Jonathan Edwards

    EDS and ME - is there a connection? hEDS

    Moderator note: This thread has been split from https://www.s4me.info/threads/feedback-from-stakeholder-engagement-workshop-for-the-nice-guidelines-on-me-jan-2018.1964/ I think I may be a knowledgeable specialist in this field since I did the initial study of mitral valve prolapse in...
  8. Andy

    BBC Newsbeat: " Stansted Airport staff told me I 'don't look ill enough' to be disabled "

    http://www.bbc.co.uk/newsbeat/article/42556222/stansted-airport-staff-told-me-i-dont-look-ill-enough-to-be-disabled
Back
Top Bottom