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  1. Liessa

    Video: Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders

    Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders First 20 minutes are an introduction and offsetting MCAS against mastocytosis. After that he focuses on the type of MCAS that overlaps with POTS and EDS, mentioning the following article: JJ Lyons et...
  2. Daisybell

    NZ Herald running a series on EDS

    The main paper in NZ is running a series of articles on people getting diagnosed with fictitious illness disorder. It seems to be people with EDS suffering from this. Here are the links to the articles so far: https://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=12133645...
  3. J

    Treatment of ME patients in ERs and Hospitals

    Hi all! I'm working to improve the quality of information for patients with ME, fibro, EDS, POTS, mast cell activation disorder having surgery as well as crowdsourcing a set of best practices for hospitals. The former will eventually be packaged into handouts patients can give their surgeon...
    • JenB
    • Thread
    • eds hospital hospitalisation jen brea mast cell activation syndrome mcas mepedia neck spine surgery
    • Replies: 34
    • Forum: General Advocacy Discussions
  4. Jonathan Edwards

    EDS and ME - is there a connection? hEDS

    Moderator note: This thread has been split from https://www.s4me.info/threads/feedback-from-stakeholder-engagement-workshop-for-the-nice-guidelines-on-me-jan-2018.1964/ I think I may be a knowledgeable specialist in this field since I did the initial study of mitral valve prolapse in...
  5. Andy

    BBC Newsbeat: " Stansted Airport staff told me I 'don't look ill enough' to be disabled "

    http://www.bbc.co.uk/newsbeat/article/42556222/stansted-airport-staff-told-me-i-dont-look-ill-enough-to-be-disabled
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