eds

  1. J

    Treatment of ME patients in ERs and Hospitals

    Hi all! I'm working to improve the quality of information for patients with ME, fibro, EDS, POTS, mast cell activation disorder having surgery as well as crowdsourcing a set of best practices for hospitals. The former will eventually be packaged into handouts patients can give their surgeon...
    • JenB
    • Thread
    • eds hospital hospitalisation jen brea mast cell activation syndrome mcas mepedia neck spine surgery
    • Replies: 34
    • Forum: General Advocacy Discussions
  2. Jonathan Edwards

    EDS and ME - is there a connection? hEDS

    Moderator note: This thread has been split from https://www.s4me.info/threads/feedback-from-stakeholder-engagement-workshop-for-the-nice-guidelines-on-me-jan-2018.1964/ I think I may be a knowledgeable specialist in this field since I did the initial study of mitral valve prolapse in...
  3. Andy

    BBC Newsbeat: " Stansted Airport staff told me I 'don't look ill enough' to be disabled "

    http://www.bbc.co.uk/newsbeat/article/42556222/stansted-airport-staff-told-me-i-dont-look-ill-enough-to-be-disabled
Back
Top Bottom