Link to the article https://www.europarl.europa.eu/news/en/press-room/20200615IPR81245/me-cfs-meps-call-for-more-funds-for-research-into-complex-illness
"Senator Kevin Cramer joined a bipartisan letter led by Senator Ed Markey (D-MA) today calling on Senate Leadership to prioritize medical research funding for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in any upcoming coronavirus relief package.
Click here for the text of the...
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"The Human Frontier Science Program is a program of funding for frontier research in the life sciences. It is implemented by the International Human Frontier Science Program Organization (HFSPO) with its office in Strasbourg."
further details here...
Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (R01 Clinical Trials Not Allowed)
Funding Opportunity Announcement (FOA) Number PAR-20-165
This Funding Opportunity Announcement (FOA) encourages investigator(s)-initiated applications that propose to examine the etiology...
Dear Friends,
Throughout 2019, I reported on our advocacy gains for ME/CFS. Thank you for standing with me and our advocacy partners during a particularly turbulent year while we fought for ME/CFS in Washington D.C.
Today, with this final FY20 budget update, I’m so happy to report that our...
Sign up! Your support could help win funding for a game-changing ME/CFS study
January 8, 2020 Simon McGrath Comments 0 Comment
Researchers and patients are about to submit an application to the UK’s two big medical research funders for a 20,000-patient genetic study. The team want people...
This article was originally behind a paywall.
full text here:
https://www.bmj.com/content/367/bmj.l7064?utm_source=twitter&utm_medium=social&utm_term=hootsuite&utm_content=sme&utm_campaign=usage
Some of the commonly proposed explanations for the current lack of funding (of everything):
Misogynism, because ME/CFS affects more women than men.
Wessely and others said it's deconditioning and (basically) hypochondria and that's why people don't see a need to do biomedical research into...
Dr Zack Shan (who has been working with the NCNED group at Griffith University, and is now based at University of Sunshine Coast) has been awarded a $1.2m grant to undertake an ME/CFS neuroimaging project. This is an NHMRC grant (NHMRC is the equivalent of NIH here in Australia), and it’s the...
The following posts have been moved or copied from this thread.
With all due respect, don't you all think it's more important that orgs like MEAction be pressed on issues like taking more radical direct action (a la ACT UP) ensuring greater funding for this illness, than petition them about...
From an email from Solve ME/CFS Initiative
What you Need to Know:
The Senate Appropriations Committee included our ME/CFS Advocacy Day request for Defense.
If approved in the final budget, ME/CFS will be an eligible topic area for the Peer-Reviewed Medical Research Program (PRMRP), which is...
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