The National Institute of Health and Care Excellence (NICE) is rewriting the UK ME guidelines. As part of this process, the Forward ME Group...
When you have fibromyalgia (FMS) or chronic fatigue syndrome (CFS or ME/CFS), it's common for well-meaning people to say things like, "If you'd...
So there's some news from Belgium. The government has extended its ME/CFS-convention until 2020. In parliament our Minister of Health said the...
This thread is intended for collecting evidence of harms from GET and other therapies that involve increasing activity and/or exercise....
Of all the confusing places to find this information, I found it on another exercise -is-medicine industry, CrossFit. (though they want to add...
Free full text: http://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx Reporting of Harms Associated with Graded Exercise...
Caroline Struthers' letter to Cochrane Governing Board I noticed on Anil about ME's Facebook page the following link:...
Another 'who said' post! I've got Vink's paper (2016). Even the PACE authors themselves say there was no difference between groups in lost...
The issue of GET and safety has of course been much discussed, especially regarding the the PACE trial authors' claims to have demonstrated its...
https://in.reuters.com/article/us-health-chronicfatigue-dispute/exclusive-science-journal-to-withdraw-chronic-fatigue-review-amid-patient-activist-...
I am delighted to announce a new ME project, Dialogues for a neglected illness, which Josh Biggs and myself, Natalie Boulton, will be working on,...
A blog about personal experience of PACE recommended 'treatments' published earlier this year. The PACE trial - a complaint. This is a tough...
The analysis of the 2017 Cochrane review reveals flaws, which means that contrary to its findings, there is no evidence that graded exercise...
In Dagens Medicine by Benedikte Monrad-Krohn Cochrane has taken dubious methodological steps, and the scientific background for the ME / CFS...
[MEDIA]
https://www.dailymail.co.uk/health/article-6197085/ASK-DR-ELLIE-CANNON-clear-big-lump-throat.html I have recently been diagnosed with ME. How...
Seems like MS still has friends in the UK at Oxford University: [MEDIA] An ode to Michael's tremendous work (wondering who wrote this, I nearly...
A few years ago I had the idea of starting up a website in which hospitals, institutions or individual psychiatrists and psychologists who coerce...
Note from the moderators: The discussion in this thread is focussed on the BPS theory of deconditioning. There is another thread for discussing...
This post and subsequent posts have been copied and/or moved from this thread: David Tuller: Trial By Error: The Cochrane Controversy ..... The...
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