Copied post The Norwegian ME Association is organising a webinar with prof. Brian Hughes on the NICE guidelines. Anyone can register on zoom for...
Very PACE trial based information. eg" Adverse effects Surveys by patient groups of their members have suggested that GET may be harmful to some...
"The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and...
This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and...
https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-by-which-m-e-c-f-s-patients-can-report-harm...
(Note - this post was actually made on 4 Jul 2022) Note from the moderation team: This thread is for posts about ME/CFS services in the United...
https://kclpure.kcl.ac.uk/portal/en/publications/evidence-based-care-for-people-with-chronic-fatigue-syndrome-and-myalgic-encephalomyelitis(536398c...
Open access: https://jnnp.bmj.com/content/86/10/1113 Glenn Nielsen, Jon Stone, Audrey Matthews, Melanie Brown, Chris Sparkes, Ross Farmer,...
Primary and specialty care clinicians strive to base diagnoses and treatment on specific, measurable abnormalities. Yet those with invisible,...
From the News from Germany thread: The IQWIG revealed their method of creating a report about the current situation of ME/CFS for the german...
Abstract Objective We investigated the effectiveness of Graded Exercise Therapy (GET) delivered to patients with Chronic Fatigue Syndrome...
Apart from the US and the UK, of course. I'm looking for any other countries, even if they just quietly removed the CBT/GET recommendations, so...
Video: Fatigue, Pacing and PEM Management | Lessons from ME/CFS - With Dr Ben Marsh I know this video has been mentioned on another thread but I...
https://www.sciencedirect.com/science/article/abs/pii/S0022399921001781 Journal of Psychosomatic Research Available online 28 May 2021, 110533 In...
Part of: BJPsych Advances Cochrane Corner and Round the Corner Collection Published online by Cambridge University Press: 11 April 2018 "...
Highlights • Guided graded exercise self-help (GES) can lead to sustained improvement in patients with chronic fatigue syndrome. • There was no...
Full title: Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review of Economic...
(This was about SARS, not properly controlled either) A randomised controlled trial of the effectiveness of an exercise training program in...
Abstract: Background Postural orthostatic tachycardia syndrome (POTS) is an autonomic nervous system disorder causing an abnormal cardiovascular...
Problem Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) severely impacts the quality of life of sufferers. Most ME/CFS patients will...
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