government

Article from The Sick Times: Now offline: Government resources about Long COVID as a disability (headline refers to the US government)

Moderation note: Please note the title of the thread and keep on-topic. Restrict your posting to information that is highly relevant to ME/CFS and Long Covid. Consider our rules, particularly this part of Rule 11, before posting: ******* Not good. https://wapo.st/3UEZWaZ Florida surgeon...

This committee hearing is a pretty big deal and I was kind of waiting for someone to start a thread when it was announced so here we go. Today was held a historic committee hearing on Long Covid, with some discussion of the commonality of chronic illness and its history as it relates to ME/CFS...

I'm not sure this has been posted yet (it's dated 17th Nov 2023). https://www.federalregister.gov/documents/2023/11/17/2023-24586/announcement-of-intent-to-establish-federal-advisory-committee-on-long-covid Office of the Assistant Secretary for Health, Office of the Secretary, Department of...

A thread to collate studies and reports on the historical (or current) level of ME/CFS research funding in the UK. I'm primarily interested in public funding, but reports and studies on charity funding can also be included here. I'll start with the UberResearch/Action for ME report from 2016.

Institute for Government "This report – written jointly report by the Institute for Government and Public First, and funded by the Health Foundation – assesses why NHS hospitals are failing to deliver higher activity despite higher spending on the service and higher levels of staffing over the...

Moved from News from Scandinavia Pressträff med socialministern och sjukvårdsministern om regeringsuppdrag relaterade till postcovid https://www.regeringen.se/pressmeddelanden/2023/04/presstraff-med-socialministern-och-sjukvardsministern-om-regeringsuppdrag-relaterade-till-postcovid/

I saw this post by @MEFoggyDog on Mastodon so I thought I'd share. This same hashtag - #MPDoYourJobForME - is also being used on twitter so you can search for it there. I did not watch the whole video, but the title of the document linked in the post is: Politician's Guide: How To Advocate...

Published 28 February 2023 This guidance is intended to support the diagnosis and management of ME/CFS in primary care, and was originally published in 2010. The Scottish Government has partially updated it to insert key recommendations from the NICE Guideline on ME/CFS published in October...

Westminster (England only) Dept of H&SC Ministerial Responsibilities as of December 2022 full detail pdf= https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/1124948/2022-12-15_-_List_of_Ministerial_Responsibilities_final_for_publication.docx.pdf...

https://www.pmlive.com/pharma_news/uk_government_announces_800m_boost_to_support_innovation_and_improve_patient_safety_1456936 eta: see also https://www.nihr.ac.uk/news/new-multimillion-investment-to-help-turn-research-discoveries-into-treatments-for-patients/31653 (includes list of NIHR...

I found the following announcement at the bottom of this page - https://solvecfs.org/finding-resources-and-creating-opportunity-2020-me-cfs-federal-advocacy-report/ - and thought it deserved its own thread.

https://www.meaction.net/2020/07/15/take-action-graded-exercise-harming-people-with-me-and-covid-long-haulers/

"Senator Kevin Cramer joined a bipartisan letter led by Senator Ed Markey (D-MA) today calling on Senate Leadership to prioritize medical research funding for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in any upcoming coronavirus relief package. Click here for the text of the...

The Solve M.E. group is organizing another ME/CFS Advocacy Week this year for April 19 – 26, 2020. A limited number of folks can get financial aid to help them to make the trip to Washington, DC. You must register to be eligible. The deadline is Friday, February 21. There are a lot of links...

07/01/2020 - Agenda item, Petitions Committee P-05-926 To Provide a Chronic Fatigue Department in Wales http://www.senedd.assembly.wales/mgIssueHistoryHome.aspx?IId=26835&Opt=0 Research brief http://www.senedd.assembly.wales/documents/s96850/Research Brief.pdf My comments on the above: Don't...

On Wed 4th December 2019 members of ME Advocates Ireland (MEAI) met with Minister for Health, Simon Harris TD. By Joan Byrne full blog here https://meadvocatesireland.blogspot.com/2019/12/positive-preliminary-meeting-with.html

Some threads have been merged to create this news thread The future of the NHS: no longer the envy of the world? Picked up from social media. Article in the Lancet London School of Economics have this project with an independent commission looking to identify big challenges faced by the NHS...

https://www.bbc.co.uk/news/uk-wales-48229907

https://politicsandinsights.org/2016/11/29/rogue-company-unum-had-a-profiteering-hand-in-the-governments-work-health-and-disability-green-paper/ Somebody sent me and a few others this today, saying: I haven't read it myself, thus far.