The Guardian: 'Church' to offer 'miracle cure' despite FDA warnings against drinking bleach
https://www.theguardian.com/us-news/2019/apr/19/church-group-to-hold-washington-event-despite-fda-warnings-against-miracle-cure
You may recall when ME Action Network started there were mentions of ACT UP. This was the campaign in the 1980s by the LGBT community to get more research into AIDS (mainly in the US)
There was a documentary made around 2012 called United in Anger and it's available on YouTube.
The programme...
Source: Frontiers in Pediatrics
Preprint
Date: March 19, 2019
URL: https://www.frontiersin.org/articles/10.3389/fped.2019.00131/abstract
Advances in ME/CFS: Past, Present and Future
--------------------------------------------
Kenneth J. Friedman1
- Kenneth J. Friedman, Medical School...
A longish read. I skimmed through.
An interesting quote from near the end:
The activists questioned the gold standard of medical intervention research – the randomised, controlled trial – and showed how a series of normative assessments are made in all medical research, for example how study...
Although it doesn't say it's about CFS, the funding and references might suggest otherwise, also talks about chronic fatigue.
https://link.springer.com/article/10.1007/s10461-018-02384-6
full paper here sc-ihub:
https://sci-hub.tw/10.1007/s10461-018-02384-6
The Body - The Complete HIV/AIDS Resource
Journalist Olivia G. Ford
Using Lessons From HIV Activism, People With Chronic Fatigue Syndrome Fight for the #MillionsMissing
Simpson and Wilder both use the skills they've gleaned over decades as HIV activists to understand who has the power to make...
https://www.washingtonpost.com/national/health-science/hiv-infected-people-are-living-for-years-but-age-related-diseases-set-in-early/2018/04/13/ee26f74e-3120-11e8-8abc-22a366b72f2d_story.html?utm_term=.bfe3e5279ad8
Excerpts:
“Most people assume that the medicines have worked and that...
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