A longish read. I skimmed through. An interesting quote from near the end: The activists questioned the gold standard of medical intervention...
Although it doesn't say it's about CFS, the funding and references might suggest otherwise, also talks about chronic fatigue. Abstract Fatigue...
The Body - The Complete HIV/AIDS Resource Journalist Olivia G. Ford Using Lessons From HIV Activism, People With Chronic Fatigue Syndrome Fight...
https://www.washingtonpost.com/national/health-science/hiv-infected-people-are-living-for-years-but-age-related-diseases-set-in-early/2018/04/13/ee...
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