housebound

Objectives The objective of this study was to examine individuals with myalgic encephalomyelitis and chronic fatigue syndrome who are confined to their homes due to severe symptomatology. The existing literature fails to address differences between this group, and less severe, nonhousebound...

Medscape: Pandemic Boosts Care for Serious Illnesses at Home Yet another silver-lining of COVID for those of use with ME/CFS? I already get primary care in my own home (including blood draws) and have even been able to get an ultrasound in my bedroom. But to be able to avoid hospital stays in...

full article here https://uk.sports.yahoo.com/news/mysterious-condition-leaving-women-home-043200000.html

https://www.mdpi.com/2227-9032/9/2/168

https://www.psychologytoday.com/gb/blog/turning-straw-gold/202007/how-stay-home

full text download https://www.mdpi.com/2227-9032/8/3/197 eta: (This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected)

full blog here https://www.bbc.co.uk/blogs/natureuk/entries/ac4a09d4-1337-4fd2-b75e-2731e36a8a22

https://www.virology.ws/2020/04/02/trial-by-error-a-long-time-patient-reflects-on-a-stay-at-home-world/

Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal their daily struggle with the crippling condition...

This was recognisable, amusing and clever. It contains 12 points on being housebound. https://superpooped.blogspot.com/2020/01/what-no-one-tells-you-about-being.html

I am looking for the paper that shows that 25% ofME patients are housebound or bed bound. Thanks!

article here https://www.cornwalllive.com/news/cornwall-news/woman-trapped-inside-home-describes-3286934 (not sure why she is having to crowd fund for this(?) there is the Motability scheme) https://www.motability.co.uk/about-the-scheme/personal-independence-payment/

I also have not read this yet but seems relevant https://www.vox.com/the-goods/2018/9/13/17846864/homebody-economy-netflix-wine-namastay-in-bed-sleep-brands

https://www.meaction.net/2018/05/21/just-invisible-medical-access-issues-for-homebound-bedridden-people/

Perhaps some of you remember the study Housebound versus non housebound patients with myalgic encephalomyelitis and chronic fatigue syndrome from last year by Tricia Pendergrast, Abigail Brown, Madison Sunnquist, Rachel Janice, Julia L. Newton, Elin Bolle Strand and Leonard A. Jason...

https://www.thesociologicalreview.com/blog/being-a-housebound-digital-academic.html Edit: @Anna Wood is a member!

What it's like to travel again after 14 years of being housebound: http://www.telegraph.co.uk/travel/destinations/europe/united-kingdom/scotland/articles/my-first-adventures-after-four-years-of-being-housebound/ This article is written by someone who was diagnosed with CFS (acute onset...