invisible illness

CC: In The Invisible Kingdom, you write that if every age has its “signature disease,” ours is the type of chronic illness that tends to go unrecognized in tests and is often viewed with skepticism by the medical establishment. This includes post-treatment Lyme disease syndrome, which you were...

Physicians depend on the measurability and empirical verifiability of symptoms. Still, some symptoms defy observation and measurement, which can cause patients with a wide variety of conditions—including chronic fatigue syndrome, endometriosis, fibromyalgia, many psychiatric illnesses, multiple...

https://journalofethics.ama-assn.org/article/importance-listening-treating-invisible-illness-and-long-haul-covid-19/2021-07

Merged thread: 'Stock photos are terrible at depicting illness' http://www.slate.com/articles/health_and_science/medical_examiner/2017/11/stock_photos_are_terrible_at_depicting_mental_and_physical_illness.html They are particularly deplorable for ME... More threads on this topic Psychosocial...

https://the-slow-lane.com/

by Giada Da Ros https://www.academia.edu/43500038/_THATS_WHY_THEY_DONT_BELIEVE_YOU_YOU_DONT_LOOK_SICK_CREATING_MEDICAL_CREDIBILITY_AND_PATIENT_VISIBILITY_FOR_ME_CFS_THROUGH_TELEVISION eta: the author Giada Da Ros @Giada_Da_Ros TV critic; President of the CFS/ME Italian Association (and...

details here http://sacfs.asn.au/news/2020/07/07_02_survey_making_the_invisible_visible.htm @Penelope McMillan

https://openscholarship.wustl.edu/cgi/viewcontent.cgi?article=1075&context=bfa The thesis contains some photographs.

short article; rest here http://www.thestar.co.nz/features/research-unveiling-the-invisible-illness/

Ragnhild Holmås has suffered from ME for nine years. She is now publishing a book where she challenges prejudice against chronic and invisible illnesses. She's inspired by Maya Dusenbery and her method is to use a combination of humour and information. There will probably be several articles...

full article here https://www.sbs.com.au/news/insight/i-m-18-years-old-and-living-with-three-chronic-conditions-you-can-t-see_1

https://www.bbc.co.uk/news/av/uk-northern-ireland-51467408/chronic-fatigue-syndrome-living-with-an-invisible-illness

The application for the Disability Tax Credit does not 'fit' our reality. I was receiving the DTC for over 25 years, but it appears that the CRA has made it more difficult to obtain in the last few years. https://globalnews.ca/news/6474047/canadians-disabilities-can-lose-tax-credit/

Open access, https://escires.com/articles/Health-1-176.pdf

It doesn't actually mention ME, but it does apply, and is quite a good article. https://www.huffingtonpost.co.uk/entry/what-people-with-invisible-illnesses-want-you-to-know_uk_5e380677c5b69a19a4b2d94d?utm_campaign=share_twitter&ncid=engmodushpmg00000004&guccounter=1

https://www.edinburghlive.co.uk/news/uk-world-news/tesco-sings-up-sunflower-lanyard-17367389 (could be good but not sure it will be that discreet if everyone knows what it stands for)

Contibutions from Dr Sarah Jarvis, Charles Shepherd (MEA), Sonia Chowdhury(AfME), Leonard Jason. although they do say it's not just 'tiredness' they do seem to focus on it! at least they didn't ask Michael Sharpe for his opinion.. full article here...

Not a particularly bad article that quotes #MEAction a lot (The Myalgic Encephalomyelitis Action Network). However, I question the bit at the end re Lady Gaga being an ME/CFS sufferer (I thought she had Fibromyalgia(?)) @JaimeS But then looking through it again, in the middle of the article is...

https://metro.co.uk/tag/you-dont-look-sick/ A weekly series published every Sunday telling the stories of people with invisible illness and disabilities. I hope they will do one for ME/CFS

Sunday Times publishes three readers accounts of their personal experiences of ME. https://www.thetimes.co.uk/magazine/style/readers-stories-myalgic-encephalomyelitis-me-chronic-fatigue-syndrome-7ghbwdkbj And at the bottom Shame they don't tackle their own ignorance..