I have no idea what this is like.
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https://journals.sagepub.com/doi/full/10.1177/23743735211034962
Successful Psychological Strategies of Experienced Chronic Fatigue Patients: A Qualitative Study
Katherine H Hall, BSc(Med), BA, MBBS, PhD, FRNZCGP, Claire Amos, BSc(Hons)...
Split from the NZ News thread
The 2020 Brain Health Research Centre Lecture
Emeritus Professor Warren Tate will present the 2020 BHRC Lecture, entitled "Understanding the biological basis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and its sudden increase in public profile...
Note from moderators:
First two posts copied/moved from thread here
https://www.s4me.info/threads/news-from-new-zealand-and-the-pacific-islands.4230/page-18#post-235524
New article in the NZ Herald from the Complex Chronic Illness Support team...
Split from the New Zealand thread
This looks new - a case study for working with me/cfs patients from University of Auckland, Goodfellow unit... written by Dr Vicki Mount, General Practitioner, MBChB, DipPaeds, with expert review by Dr Rosamund Vallings...
I used to think - wrongly - that HealthPathways was a NZ thing. Turns out there's a long list of Australian health districts participating, plus three British ones.
https://www.healthpathwayscommunity.org/About.aspx
So that's one set of guidelines. We all know about the NICE guidelines. And...
Come along and hear about recent research that is informing guidance for management of Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Dr Eiren Sweetman from the University of Otago will overview recent key research findings from the US, Norway, Australia, and Otago...
Posts on this thread have been moved from different threads links added at the end of the posts
The GP education program was possible thanks to a grant from ME/CFS Australia. Emerge Australia worked with ThinkGP, an organisation that offers free, continuing professional education for GPs in...
Intro:
M.E. Awareness NZ are investigating how we can bring quality education sessions on ME/CFS to the 2020 RNZCGP (Royal NZ College of GPs) conference (perhaps cover MUS also?). This conference is being combined with WONCA Asia Pacific, so there will be a lot of overseas GPs attending as...
Our social media post... :)
We really would welcome any feedback at any time!
n.b. The website might look a little familiar with those that visited the 20000Missing.nz site that was used around May 2019 Awareness week in NZ (and set up by two parents of young adults with ME based in...
Copied from the News from New Zealand and the Pacific Islands
Just came across the NZ Health Survey.
https://www.health.govt.nz/nz-health-statistics/national-collections-and-surveys/surveys/new-zealand-health-survey
It looks like it could be a vehicle for getting prevalence figures of ME and...
Moderator note:
Thread moved from 'General ME/CFS News'.
It’s interesting to listen to the last 2 minutes of this short 9 minute video, so starting at 7 minutes, where one of the doctors, the Chairman I believe, poses a question as if he is a ME patient. The response illustrates the...
https://mro.massey.ac.nz/bitstream/handle/10179/14653/02_whole.pdf?sequence=2&isAllowed=y
New Zealand study of PEM using 2xCPETs at 48 or 72 hours.
ABSTRACT
PURPOSE: To investigate the timeline of post-exertional malaise (PEM) using objective and subjective measures in Myalgic...
My very supportive dr has suggested perhaps applying for the Supported Living Payment (WINZ benefit type that appears to cover 2 years instead of the 3 months of the Sickness Benefit). My yearly review case worker at WINZ also encouraged me to apply. Two or three months later I finally got to a...
@Ravn brought this article in a NZ magazine to our attention in the New Zealand thread.
Marc Wilson is a regular columnist in the Listener, a mainstream magazine in New Zealand that is currently claiming to be New Zealand's Bestselling Current Affairs Magazine (although I imagine a lot of...
"Dr. Rosamund Vallings Talks
The Irish ME/CFS Association is pleased to announce that it has arranged for Dr Ros Vallings, a leading international ME expert from New Zealand, to give 5 ME/Chronic Fatigue Syndrome talks in Ireland this May. The talks will include questions-and-answers sessions."...
The recently revised Auckland clinical guidance document is not officially available to the public (just medical professionals) but has been circulated by some advocates; this is how I first obtained a copy of the document.
Some of the issues are:
Name: Chronic Fatigue Syndrome - does not give...
Paul Milner & Berni Kelly (2009) Community participation and inclusion: people with disabilities defining their place, Disability & Society, 24:1, 47-62, DOI: 10.1080/09687590802535410
Disability‐related public policy currently emphasises reducing the number of people experiencing exclusion...
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