new zealand

  1. Dolphin

    Successful Psychological Strategies of Experienced Chronic Fatigue Patients: A Qualitative Study, 2021, Hall et al

    I have no idea what this is like. Free full text https://journals.sagepub.com/doi/full/10.1177/23743735211034962 Successful Psychological Strategies of Experienced Chronic Fatigue Patients: A Qualitative Study Katherine H Hall, BSc(Med), BA, MBBS, PhD, FRNZCGP, Claire Amos, BSc(Hons)...
  2. John Mac

    Changes in DNA methylation profiles of myalgic encephalomyelitis/chronic fatigue syndrome patients reflect systemic dysfunctions, Helliwell et al 2020

    https://clinicalepigeneticsjournal.biomedcentral.com/articles/10.1186/s13148-020-00960-z
  3. Sly Saint

    NZ: The 2020 Brain Health Research Centre Lecture - Professor Warren Tate - 23 November 2020

    Split from the NZ News thread The 2020 Brain Health Research Centre Lecture Emeritus Professor Warren Tate will present the 2020 BHRC Lecture, entitled "Understanding the biological basis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and its sudden increase in public profile...
  4. Ravn

    New Zealand Video: Exercise and ME/CFS, 2020, Lyn Hodges

    Thread split from News from New Zealand and the Pacific Islands *********** The talk is now available on Youtube (haven't watched it yet).
  5. Sly Saint

    Article by Prof Warren Tate (NZ): Research unveiling the ‘invisible illness’ May 2020

    short article; rest here http://www.thestar.co.nz/features/research-unveiling-the-invisible-illness/
  6. R

    The heart-breaking experiences of mothers with ME (NZ Herald, Feb 2020)

    Note from moderators: First two posts copied/moved from thread here https://www.s4me.info/threads/news-from-new-zealand-and-the-pacific-islands.4230/page-18#post-235524 New article in the NZ Herald from the Complex Chronic Illness Support team...
  7. R

    Goodfellow Medcases CPD - Managing CFS/ME in general practice: new ideas, 2019, Mount and Vallings

    Split from the New Zealand thread This looks new - a case study for working with me/cfs patients from University of Auckland, Goodfellow unit... written by Dr Vicki Mount, General Practitioner, MBChB, DipPaeds, with expert review by Dr Rosamund Vallings...
  8. Ravn

    HealthPathways, RACP & NICE guidelines - how do they fit together?

    I used to think - wrongly - that HealthPathways was a NZ thing. Turns out there's a long list of Australian health districts participating, plus three British ones. https://www.healthpathwayscommunity.org/About.aspx So that's one set of guidelines. We all know about the NICE guidelines. And...
  9. John Mac

    NZ: Seminar: Update on research into Chronic Fatigue Syndrome

    Come along and hear about recent research that is informing guidance for management of Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Dr Eiren Sweetman from the University of Otago will overview recent key research findings from the US, Norway, Australia, and Otago...
  10. Simone

    Australia and New Zealand - ME/CFS Medical Education - ThinkGP online program

    Posts on this thread have been moved from different threads links added at the end of the posts The GP education program was possible thanks to a grant from ME/CFS Australia. Emerge Australia worked with ThinkGP, an organisation that offers free, continuing professional education for GPs in...
  11. R

    2020 RNZCGP /WONCA Conference in Auckland, NZ

    Intro: M.E. Awareness NZ are investigating how we can bring quality education sessions on ME/CFS to the 2020 RNZCGP (Royal NZ College of GPs) conference (perhaps cover MUS also?). This conference is being combined with WONCA Asia Pacific, so there will be a lot of overseas GPs attending as...
  12. R

    M.E. Awareness NZ launches website

    Our social media post... :) We really would welcome any feedback at any time! n.b. The website might look a little familiar with those that visited the 20000Missing.nz site that was used around May 2019 Awareness week in NZ (and set up by two parents of young adults with ME based in...
  13. R

    New Zealand Health Survey - opportunity to include ME/CFS questions

    Copied from the News from New Zealand and the Pacific Islands Just came across the NZ Health Survey. https://www.health.govt.nz/nz-health-statistics/national-collections-and-surveys/surveys/new-zealand-health-survey It looks like it could be a vehicle for getting prevalence figures of ME and...
  14. A

    Video clip of a Australasian conference on MUS, mentions ME.

    Moderator note: Thread moved from 'General ME/CFS News'. It’s interesting to listen to the last 2 minutes of this short 9 minute video, so starting at 7 minutes, where one of the doctors, the Chairman I believe, poses a question as if he is a ME patient. The response illustrates the...
  15. Hutan

    The Timeline of Post Exertional Malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2018, Nielsen, Hodges

    https://mro.massey.ac.nz/bitstream/handle/10179/14653/02_whole.pdf?sequence=2&isAllowed=y New Zealand study of PEM using 2xCPETs at 48 or 72 hours. ABSTRACT PURPOSE: To investigate the timeline of post-exertional malaise (PEM) using objective and subjective measures in Myalgic...
  16. theJOYdecision

    New Zealand Supported Living Benefit Application

    My very supportive dr has suggested perhaps applying for the Supported Living Payment (WINZ benefit type that appears to cover 2 years instead of the 3 months of the Sickness Benefit). My yearly review case worker at WINZ also encouraged me to apply. Two or three months later I finally got to a...
  17. Hutan

    NZ Listener - Ills thought out - Wilson 2019

    @Ravn brought this article in a NZ magazine to our attention in the New Zealand thread. Marc Wilson is a regular columnist in the Listener, a mainstream magazine in New Zealand that is currently claiming to be New Zealand's Bestselling Current Affairs Magazine (although I imagine a lot of...
  18. Sly Saint

    Ros Vallings (NZ) to give series of talks in Ireland - May 2019

    "Dr. Rosamund Vallings Talks The Irish ME/CFS Association is pleased to announce that it has arranged for Dr Ros Vallings, a leading international ME expert from New Zealand, to give 5 ME/Chronic Fatigue Syndrome talks in Ireland this May. The talks will include questions-and-answers sessions."...
  19. Hutan

    NZ Auckland CFS Clinical Guidance Revision 2019

    The recently revised Auckland clinical guidance document is not officially available to the public (just medical professionals) but has been circulated by some advocates; this is how I first obtained a copy of the document. Some of the issues are: Name: Chronic Fatigue Syndrome - does not give...
  20. W

    Community participation and inclusion: people with disabilities defining their place. Milner, Kelly

    Paul Milner & Berni Kelly (2009) Community participation and inclusion: people with disabilities defining their place, Disability & Society, 24:1, 47-62, DOI: 10.1080/09687590802535410 Disability‐related public policy currently emphasises reducing the number of people experiencing exclusion...
Back
Top Bottom