new zealand

Posts on this thread have been moved from different threads links added at the end of the posts The GP education program was possible thanks to a grant from ME/CFS Australia. Emerge Australia worked with ThinkGP, an organisation that offers free, continuing professional education for GPs in...

Intro: M.E. Awareness NZ are investigating how we can bring quality education sessions on ME/CFS to the 2020 RNZCGP (Royal NZ College of GPs) conference (perhaps cover MUS also?). This conference is being combined with WONCA Asia Pacific, so there will be a lot of overseas GPs attending as...

Our social media post... :) We really would welcome any feedback at any time! n.b. The website might look a little familiar with those that visited the 20000Missing.nz site that was used around May 2019 Awareness week in NZ (and set up by two parents of young adults with ME based in...

Copied from the News from New Zealand and the Pacific Islands Just came across the NZ Health Survey. https://www.health.govt.nz/nz-health-statistics/national-collections-and-surveys/surveys/new-zealand-health-survey It looks like it could be a vehicle for getting prevalence figures of ME and...

Moderator note: Thread moved from 'General ME/CFS News'. It’s interesting to listen to the last 2 minutes of this short 9 minute video, so starting at 7 minutes, where one of the doctors, the Chairman I believe, poses a question as if he is a ME patient. The response illustrates the...

https://mro.massey.ac.nz/bitstream/handle/10179/14653/02_whole.pdf?sequence=2&isAllowed=y New Zealand study of PEM using 2xCPETs at 48 or 72 hours. ABSTRACT PURPOSE: To investigate the timeline of post-exertional malaise (PEM) using objective and subjective measures in Myalgic...

My very supportive dr has suggested perhaps applying for the Supported Living Payment (WINZ benefit type that appears to cover 2 years instead of the 3 months of the Sickness Benefit). My yearly review case worker at WINZ also encouraged me to apply. Two or three months later I finally got to a...

@Ravn brought this article in a NZ magazine to our attention in the New Zealand thread. Marc Wilson is a regular columnist in the Listener, a mainstream magazine in New Zealand that is currently claiming to be New Zealand's Bestselling Current Affairs Magazine (although I imagine a lot of...

"Dr. Rosamund Vallings Talks The Irish ME/CFS Association is pleased to announce that it has arranged for Dr Ros Vallings, a leading international ME expert from New Zealand, to give 5 ME/Chronic Fatigue Syndrome talks in Ireland this May. The talks will include questions-and-answers sessions."...

The recently revised Auckland clinical guidance document is not officially available to the public (just medical professionals) but has been circulated by some advocates; this is how I first obtained a copy of the document. Some of the issues are: Name: Chronic Fatigue Syndrome - does not give...

Paul Milner & Berni Kelly (2009) Community participation and inclusion: people with disabilities defining their place, Disability & Society, 24:1, 47-62, DOI: 10.1080/09687590802535410 Disability‐related public policy currently emphasises reducing the number of people experiencing exclusion...

A conversation in the 'News from New Zealand and the Pacific Islands' thread led to the idea that 'we'* work together on ensuring that people with ME and CFS have access to Disability Support Services (DSS). These conditions are not currently included in the eligibility criteria for DSS, but...

I saw this posted on the "ME/CFS-Evolving Science" facebook page... Changes in the transcriptome of circulating immune cells of a New Zealand cohort with myalgic encephalomyelitis/chronic fatigue syndrome Eiren Sweetman, Margaret Ryan, Christina Edgar, Angus MacKay, Rosamund Vallings, Warren...

https://anzmes.org.nz/looking-for-participants-for-a-research-study-on-the-effects-of-exercise-at-anaerobic-threshold-on-post-exertional-malaise-in-individuals-with-me-cfs/

The UK biobank have shared samples with Karl Morten at Oxford University to look for metabolites & other chemical clues. http://cureme.lshtm.ac.uk/biobank-samples-received-dr-karl-morten/

The main paper in NZ is running a series of articles on people getting diagnosed with fictitious illness disorder. It seems to be people with EDS suffering from this. Here are the links to the articles so far: https://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=12133645...

At the ANZMES (Association of NZ ME Societies) annual general meeting yesterday, Dr Ros Vallings gave a research update. Dr Vallings is NZ's only physician focused on ME. She talked positively about the presentation of Dr Markku Partinen at this year's Invest in ME C13 conference. I'll cover...

Superb article for psychologists originally published in the June 2018 edition of the Journal of the New Zealand College of Clinical Psychologists (NZCCP). In the course of her research, the author spoke to @Carolyn Wilshire.

The Royal Australasian College of Physicians Annual Congress was held in May in Sydney https://www.racp.edu.au/fellows/resources/congress-presentations-2018 There was a Tuesday session on 'Medically Unexplained Symptoms - Is it all in your head?' with four speakers. Professor Lorimer Mosely -...

The News from Scandinavia is such an interesting and useful thread, so I thought it could be worth seeing if we could sustain a similar one for New Zealand. We do have some good research being done, some active advocates and even a suggestion from David Tuller that he might get here in the next...