new zealand

A conversation in the 'News from New Zealand and the Pacific Islands' thread led to the idea that 'we'* work together on ensuring that people with ME and CFS have access to Disability Support Services (DSS). These conditions are not currently included in the eligibility criteria for DSS, but...

I saw this posted on the "ME/CFS-Evolving Science" facebook page... Changes in the transcriptome of circulating immune cells of a New Zealand cohort with myalgic encephalomyelitis/chronic fatigue syndrome Eiren Sweetman, Margaret Ryan, Christina Edgar, Angus MacKay, Rosamund Vallings, Warren...

https://anzmes.org.nz/looking-for-participants-for-a-research-study-on-the-effects-of-exercise-at-anaerobic-threshold-on-post-exertional-malaise-in-individuals-with-me-cfs/

The UK biobank have shared samples with Karl Morten at Oxford University to look for metabolites & other chemical clues. http://cureme.lshtm.ac.uk/biobank-samples-received-dr-karl-morten/

The main paper in NZ is running a series of articles on people getting diagnosed with fictitious illness disorder. It seems to be people with EDS suffering from this. Here are the links to the articles so far: https://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=12133645...

At the ANZMES (Association of NZ ME Societies) annual general meeting yesterday, Dr Ros Vallings gave a research update. Dr Vallings is NZ's only physician focused on ME. She talked positively about the presentation of Dr Markku Partinen at this year's Invest in ME C13 conference. I'll cover...

Superb article for psychologists originally published in the June 2018 edition of the Journal of the New Zealand College of Clinical Psychologists (NZCCP). In the course of her research, the author spoke to @Carolyn Wilshire.

The Royal Australasian College of Physicians Annual Congress was held in May in Sydney https://www.racp.edu.au/fellows/resources/congress-presentations-2018 There was a Tuesday session on 'Medically Unexplained Symptoms - Is it all in your head?' with four speakers. Professor Lorimer Mosely -...

The News from Scandinavia is such an interesting and useful thread, so I thought it could be worth seeing if we could sustain a similar one for New Zealand. We do have some good research being done, some active advocates and even a suggestion from David Tuller that he might get here in the next...

Articles about ME sufferers and about Professor Warren Tate's research team at Otago University. http://www.thestar.co.nz/digital-edition/?edition=STR_2018_05_10 (pages 22-23) There's an error with the digital edition and page 23 doesn't show. The Star has kindly sent a scanned image. So read...

May 13 2018 "Christchurch resident Melissa Bailey shares how she copes with the debilitating disease M.E." "I've learned a lot about the human heart and how terribly judgmental people are. Many years ago I was one of those judgmental people who on a school camp, came across a parent lying on...

I saw this in the ME Global Chronicle. I haven't watched it myself. I am interested to hear people's thoughts about whether it is worth sharing. --- WellMe AGM 2017 Guest Speaker Phillida Bunkle HD 1080p Wellington ME/CFS Support Group Published on 18 Dec 2017 Talk in the Blind Spot The...

Copied post Watching at the moment but I think it should be an interesting watch. https://youtu.be/ZZGlVJYyAO4 Discussion here Video: Professor Warren Tate's Update on His Research into ME/CFS - 11th November 2017

Published back in August but I didn't notice it then. Small pilot study. http://onlinelibrary.wiley.com/wol1/doi/10.1111/cpf.12460/abstract