nhs

Interview in the Guardian. full article here: https://www.theguardian.com/tv-and-radio/2018/nov/12/i-was-preety-much-mute-at-school-the-bake-offs-kim-joy

Moderator note This post has been copied from this thread and subsequent posts moved across. I think it was the BACME response to NICE that said only 8,000 ME patients use the NHS clinics. That's only 3.2% of the estimated 250,000 ME patients nationwide (or 6.4% if the number was actually only...

https://www.nhs.uk/video/Pages/ms-cfs-chronicpain-fibromyalgia.aspx Found this on the NHS website. I wondered whether anyone knew how this can be justified and where it came from? I also think there should be some lobbying as part of the NICE guideline review to raise this as an issue along...

(Note - this post was actually made on 4 Jul 2022) Note from the moderation team: This thread is for posts about ME/CFS services in the United Kingdom generally. If you have comments about specific services, please post on the relevant service thread (listed below or make a new thread). We...

RSM The NHS at 70 Podcast: Episode 8: Prof Sir Simon Wessely, President of the RSM - The Challenges for Mental Health In this episode, Professor Sir Simon Wessely, Regius Professor of Psychiatry & Past President of the Royal College of Psychiatrists, discusses the changing attitude towards...

https://www.thetimes.co.uk/article/nhs-demands-legal-costs-from-failed-homeopathy-challenge-sm80w8kjp (Soft paywall).

As you may recall Suffolk NHS have begun to commission care from Dr Nacul (who leads the ME Biobank team at LSHTM) but commissioners from Norfolk and Waveney could not agree on a way forward. Norfolk patients are understandably unhappy about this. There is an article in today's Eastern Daily...

https://www.economist.com/britain/2018/06/30/the-three-myths-of-the-nhs

Another article by Steve Topple using ME and PACE as illustrative of current government policy, https://www.thecanary.co/opinion/2018/06/18/esther-mcvey-and-her-department-are-now-totally-out-of-control/

I'm not sure if this has been posted yet. Just published with the topic 'Mental Health'. (Emphasis added). https://www.england.nhs.uk/publication/the-improving-access-to-psychological-therapies-manual/

@Tom Kindlon posted a link to the following on fb (sorry but I've l lost without trace Tom's original fb post), but thought I'd capture this here, seeing as the Royal Liverpool have been deleting comments people made. Captured this too late for those deleted comments, but in case any more get...

Found on twitter Interesting reading https://www.theyworkforyou.com/whall/?id=2018-04-23a.231.0&s=%28%22full+fact%22+OR+fullfact+OR+%22fullfact+org%22%29#g272.4

Moderator note - three threads on questions in the UK House of Lords and House of Commons have been merged at the request of the original posters We have subsequently broadened the scope of the thread to include mention of members of parliament and Lords relevant to ME/CFS "The Countess of...

http://www.healthwatchhackney.co.uk/news/mental-health-pulls-out-city-and-hackney-chronic-fatigue-service

I was just browsing this site today : https://my-oscar.nhs.uk/ And I clicked on the link for advice on Pain Management. This, unexpectedly, then leads to the Chronic Fatigue Syndrome (CFS/ME) Care Pathway...

Just found this on another forum : -------------------------------------- https://petition.parliament.uk/petitions/205106 Just found this petition on Facebook about imminent changes to the NHS... "If you live in the UK, for you and your family this could well end up being the single most...

Occupational Aspects of the Management of Chronic Fatigue Syndrome: a National Guideline Oct 2006 "Chronic fatigue syndrome (CFS) is a medically unexplained illness characterised by severe, disabling fatigue and other symptoms. Although there is a large body of research into CFS and its...

The HOME Study https://oxfordpsychologicalmedicine.org/research/thehomestudy/ Research assistant Job being advertised "We are looking for two highly motivated and enthusiastic research nurses / research assistants to join the Oxford Psychological Medicine team. You will work with clinicians...

Came across this on Facebook and thought it was worth highlighting, not least for the attitudes it exposes towards ME patients within the NHS. http://www.sayer.abel.co.uk/MES-Nnye.html

This was highlighted on @Tom Kindlon 's Facebook page. Delightful presentation from just under a year ago from King's Health Partners (https://www.kingshealthpartners.org/), explaining how, among other conditions, CFS is a MUS (or Persistent Physical Symptoms condition, the term us patients...