nih

Overcoming Chronic Fatigue - In the NIH now on track? One can answer yes or no.

I got some email today from the The Trans-NIH ME/CFS Working Group. (I guess I signed up for their mailing list but had forgotten all about it) ===== start of mail ===== We request your participation in a telebriefing about updates on NIH’s efforts to advance research on ME/CFS. The...

https://tinyurl.com/ybkbkvrv i.e. https://www.cdc.gov/budget/documents/fy2019/fy-2019-detail-table.pdf The CDC CFS budget is substantial: $5.4 million per year. --- The Prevention and Public Health Fund is solely used to fund the CDC's CFS program. An article about cuts to that is here...

Q&A: Avindra Nath, MD Leading NIH study of post-infection chronic fatigue syndrom https://www.medpagetoday.com/neurology/generalneurology/71257

Huge thanks to everyone who took part in the poll and shared it on social media. In January, our small group of research-oriented ME/CFS patients including Simon McGrath, Graham McPhee, Carly Maryhew and others, asked our fellow ME/CFS patients to complete an important poll. The poll related to...

https://www.wired.com/story/scientists-hate-the-nihs-new-rules-for-experimenting-on-humans/amp?__twitter_impression=true "This week, after almost a decade of work, some new rules go into effect for researchers funded by NIH. If they’re using human beings in their experiments, most of them now...

The Unrest film team sent out a rather long email today. At the bottom of the mail there are links to three actions to take. I thought the action to call NIH Director Collins was worth posting in its own thread. The idea is for callers to ask him to watch Unrest and also schedule a screening...

Science for ME are pleased to announce that we have today submitted the following critique of the Chalder Fatigue Questionnaire to the NIH/CDC review. All credit for this submission should go to the authors, we are very grateful for all their hard work. We have replicated the submission below...

https://www.hhs.gov/about/budget/fy-2018-hhs-contingency-staffing-plan/index.html#summary-of-activities Also this: and

A small group of ME/CFS patients with an interest in research, including Simon McGrath, Graham McPhee, Carly Maryhew and others, are asking for the help of fellow ME/CFS patients with an important issue that will affect biomedical research in the US and elsewhere for years to come. The NIH/CDC...

by Amy Maxmen Very long article that speaks about Dr Jose Montoya, Dr Anthony Komaroff, Dr Leonard Jason, the Rituximab trial, Dr Derya Unutmaz, the NIH program, Dr Ron Davis and David Tuller https://www.nature.com/articles/d41586-017-08965-0?WT.feed_name=subjects_biotechnology Edit: Amy...

Apparently the NIH ME/CFS Working Group have developed Common Data Elements (CDEs) for ME/CFS and they'll be made public tomorrow. The public can comment until 31 January 2018. No link as yet. Here's some info about CDEs: https://clinfowiki.org/wiki/index.php/Common_Data_Element_(CDE)

http://blog.precise.ly/2017/11/15/precise-ly-new-name-same-mission/ A couple of reviews, the first that appeared in a Google search, of the Oura ring https://www.alexfergus.com/blog/the-one-wearable-to-rule-them-all-oura-ring-review https://sleeptrackers.io/oura-ring/

Edit: As of 13 December, a recording and transcript are available here. Full info here: http://www.twitlonger.com/show/n_1sqb52r I'm a bit baffled about what number you should phone from the UK if you're not in one of those five big cities...

A thread to collate all the announcements from the different centres that were awarded funding by the NIH, and articles about the news. NIH announcement - https://www.nih.gov/news-events/news-releases/nih-announces-centers-myalgic-encephalomyelitis/chronic-fatigue-syndrome-research Cornell...

Columbia's announcement of the grant award. https://www.mailman.columbia.edu/public-health-now/news/nih-awards-96-million-grant-columbia-myalgic-encephalomyelitischronic-fatigue-syndrome-collaborative NIH announcement...

The journalist quotes Avindra Nath, Ian Lipkin, Jose Montoya, Zaher Nahle. https://www.webmd.com/chronic-fatigue-syndrome/news/20171020/solving-the-mystery-of-chronic-fatigue