pacing

Heart Rate Thresholds to Limit Activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients (Pacing): Comparison of Heart Rate Formulae and Measurements of the Heart Rate at the Lactic Acidosis Threshold during Cardiopulmonary Exercise Testing C. (Linda) M. C. van Campen, Peter C...

International Journal of Qualitative Studies on Health and Wellbeing Patient's experiences and effects of non-pharmacological treatment for myalgic encephalomyelitis/chronic fatigue syndrome - Anne Marit Mengshoel, Ingrid B. Helland, Mira Meeu, Jesus Castro-Marrero, Derek Pheby & Elin Bolle...

FYI useful summary from:

Copied from this thread I haven't looked at the update myself yet https://www.actionforme.org.uk/resources/our-publications/booklets/ https://www.actionforme.org.uk/uploads/pdfs/pacing-for-people-with-ME-Jan-2020.pdf

Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique https://onlinelibrary.wiley.com/doi/abs/10.1002/msc.1430 (not yet available on sci-hub)

There's a new facebook group, replacing the old facebook group on the same topic: ME/CFS - Pacing with a Heart Rate Monitor #2 https://www.facebook.com/groups/MECFS.HRM2 Posting on behalf of a member, so sorry, I can't help with more information. I'll put a link to this page on the Pacing...

Not a recommendation. Although there has been something published recently by the same people running this trial I think this is something different, albeit related. https://bepartofresearch.nihr.ac.uk/trial-details/trial-detail?trialId=2460&location=&distance=

There is a post today on MEA facebook - https://www.facebook.com/pg/meassociation/posts/?ref=page_internal one of the personal quotes accompanied by pics, that they've been running recently - for awareness week i think? There is a photo of the lady on her stair lift with the accompanying text...

This thread on pacing has been split from this thread: Consumer contested evidence: why the ME/CFS exercise dispute matters so much. Plos blog post by Hilda Bastian It is good, especially for someone from outside the usual ME advocacy circles. This definition of pacing bothered me though. I...

Personally, I come down as a nay on the side of spoons. I can see where people might find this a useful help, but it does not help me, or I guess I don't feel it applies to me. When I wake up each day I don't have any spoons. There is no way to allot any spoons for my day, because I never have...

Source: Disability and Rehabilitation Preprint Date: November 18, 2018 URL: https://www.tandfonline.com/doi/abs/10.1080/09638288.2018.1504994 Effects of activity pacing in patients with chronic conditions associated with fatigue complaints: A meta-analysis...

This is a self help book on pacing that has been doing very well in Norway and has just been printed in its 2. edition. From next month it will be available also in English! The author is Ingebjørg Midsem Dahl who suffers from ME herself. Website with presentation of book Blurb from dr...

There have been several posts on other threads where pwME have mentioned particular ways they use to measure their state of health. Some of these may be useful in enabling us to gauge whether we are well enough to do stuff or need to rest more, and to predict crashes and adjust our activity...

This was apparently in the @Action for M.E. journal earlier this year. https://www.metrust.org.uk/2018/07/06/article-by-dr-paul-worthley-in-interaction-magazine/ I don't know anything about Worthley or the ME Trust, though I see Countess of Mar is a Patron. It reads to me as very similar to...

hi all on the thread about GET being camouflaged as pacing we were looking at the actual patient handbook that the NHS CFS/ME clinics use nowadays At post #52 on the thread on this page https://www.s4me.info/threads/re-framing-get-as-pacing-or-vice-versa.4030/page-3 (sorry couldnt work out how...

So, I encountered something unusual and was wondering if anyone else had as well. I was talking to someone from Australia who has a sleep disorder, and she was talking about graded exercise therapy that she'd been given for her issue. I started to protest that GET doesn't work in all...

Physiotherapy. 2018 Mar;104(1):129-135. doi: 10.1016/j.physio.2017.07.005. Epub 2017 Aug 4. Symptoms of chronic fatigue syndrome/myalgic encephalopathy are not determined by activity pacing when measured by the chronic pain coping inventory. Thompson DP1, Antcliff D2, Woby SR3...

Free full text: Activity pacing: moving beyond taking breaks & slowing down https://link.springer.com/article/10.1007%2Fs11136-018-1794-7 It's interesting to see how "activity pacing" is now being defined by some in a way that could cause problems for some people with ME/CFS...

Does anyone else use one? I've been doing mine for two years now, and I'm starting to wonder if it helps or not... Any thoughts out there ?

Severely affected ME (Myalgic Encephalomyelitis) analysis report on questionnaire 25% ME Group (UK) 2004 Link to survey ME 2008: What progress Action for ME and Association of Young People with ME (UK) 2008 Link to survey Ervaringen van de achterban van patiëntenorganisaties met de...