In this series: Getting to Know ME, we will explore what it's like living with a life-limiting condition ME (Myalgic Encephalomyelitis). We will...
Long Covid/Post-Acute-Covid Syndrome as a‘hybrid condition’-A common framework for patients’ experience and pathophysiology AUTHORS Dirk...
ABSTRACT Introduction: Research regarding students with myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) has been limited. This...
This thread has been moved from the News subforum and renamed following a published paper based on Cheston's work. Respect and Shame in...
‘Reimagining a self’: an evocative autoethnography of living alongside Myalgic Encephalomyelitis(ME) Orlagh Farrell Delaney RGN, MA A thesis...
SAGE Open Nursing "Can Someone as Young as You Really Feel That Much Pain?" - A Survey on How People With Fibromyalgia Experience Healthcare in...
Full title: The impact of Post-COVID-Syndrome on functioning – results from a community survey in patients after mild and moderate...
This thread contains excerpts from and links to all of Veronica's published poems. Veronica Ashenhurst, a friend of mine who is a Canadian lawyer...
2 of their interviewees have/had CFS...
Chronic diseases like Ehlers-Danlos Syndrome, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and Fibromyalgia have long been...
Very good writing here….(cancer, not ME/CFS). “Are you someone who enjoys the unsolicited opinions of strangers and acquaintances? If so, I can’t...
Highlights • Long Covid is a patient-defined illness which gained legitimacy in online communities. • We analysed long Covid narratives using...
Jennie Jacques on living with ME: ‘I am a shadow of my former self physically’ , The Times, August 18 2021 by Sean O' Neill As her 30th birthday...
I have no idea what this is like. Free full text https://journals.sagepub.com/doi/full/10.1177/23743735211034962 Successful Psychological...
Is this more likely due to an immune system problem? For me there came a point where after many years with very severe ME where resting finally...
Full title: “Because the country, it seems though, has turned their back on me”: Experiences of institutional betrayal among veterans living with...
A young person who thinks there are effective treatments for cfs. https://bmjpaedsopen.bmj.com/content/5/1/e001165
The German/French TV channel ARTE premiered a documentary yesterday: "Living with Chronic Fatigue Syndrome". German and French can be chosen as...
A performer (actress, singer), leader, mentor, and community volunteer with her hands on a number of projects, Madeline is a joy to know. She...
This is long. If any one reads it, and have any information about some of the questions i have in there, especially if anyone have information...
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