video

This thread has been split from the main thread about the CMRC conference here. My summary of Holgate’s fifteen minutes: Emphases the five years length of CMRC effort, ( whilst he’d been head of something very similar previously along with charities and researchers). Used the phrase “it’s...

This thread has been split from the conference thread here Prof Alain Moreau presented on the 'Identification of post-exertional dysregulated circulating microRNAs in ME/CFS pathogenesis' See also the MEA Summary page 6. Somewhere around the 25 minute mark, Moreau starts talking about a...

Sheffield ME & Fibromyalgia Group We are excited to be hosting Dr. David Tuller, DrPH, discussing scientific integrity and clinical trials in myalgic encephalomyelitis. Join us at The Leopold Hotel, 23rd October, 7pm, for what should be a fascinating evening. RSVP on the event page. Dr Tuller...

https://www.nhs.uk/video/Pages/ms-cfs-chronicpain-fibromyalgia.aspx Found this on the NHS website. I wondered whether anyone knew how this can be justified and where it came from? I also think there should be some lobbying as part of the NICE guideline review to raise this as an issue along...

This thread has been split from the Stanford Community Symposium thread. (Copied post) I'm enjoying it. I'm not sure I'll remember much of it, but I like that I'm seeing that there's real progress towards understanding at least some of what it going on. One interesting point from Maureen...

Video talk https://powerhealthtalk.com/pots-more-evidence-that-it-is-autoimmune.htm

Posted on Twitter by @Tom Kindlon. Thanks Tom.

Concept: Anil van der Zee Questions by: Roland Cheung, Celine Corsius, Lou Corsius, Mark Vink and Anil van der Zee Interviewer: Rogier Louwen Video, audio and editing: Willem Timmers

Event: Tuesday / 02 October 2018 7:00pm - Tuesday / 02 October 2018 9:00pm Mourne Country Hotel 52 Belfast Road Newry BT34 1TR https://www.communityni.org/event/pace-trial-one-greatest-scandals-21st-century Edit: Video now on Facebook

Lightning Process- is CFS/ME psychological or physical? So, Phil fully acknowledges ME is wholly physiological ... but feels he needs to remind people how the LP can fix all that very nicely for you. Clear up some misconceptions ... :rolleyes: :sick: ETA: Is this even legal? @dave30th

I just got this e-mail from OMF, its a video about 1 hour 2 minutes long

"In the following discourse I shall endeavour to shed light on how, and perhaps why, a serious disease has not been taken seriously for nearly half a century. The disease is Myalgic Encephalomyelitis. Many people think it is the same thing as Chronic Fatigue Syndrome but I shall also explain why...

http://voicesfromtheshadowsfilm.co.uk/paediatric-mecfs/ Two videos, 12 and 14 minutes. The link also lists other resources for Pediatric ME/CFS. ME/CFS in children and young people Part 1 - diagnosis, symptoms and controversies Part 2 - management. Thanks to @Tom Kindlon for flagging this up...

Unfortunately I just saw this, and as it's happening in 12 hours I won't be able to get myself there. If this was posted, I didn't see it...here or anywhere else, until just now. I'm guessing this won't be recorded, but who knows. Wish I could go to point out the webpage from Oxford, among other...

This starts with some Action for ME video that I've seen before. Then it goes on to discuss the young woman's case, and progression to full-time work!!! There is also a link to the NHS page which still recommends CBT and GET... Station: TeessideLive / AfME Date: September 2, 2018 WebTV...

7-minute video on the BBC website today: https://www.bbc.co.uk/news/av/stories-45369402/fibromyalgia-like-red-hot-lava-radiating-through-my-body

Source: Solve ME/CFS Initiative Date: September 13, 2018 Time: 15:00-16:00 UTC URL: https://register.gotowebinar.com/register/7863577812392103170 Appropriately and Accurately Assessing Symptoms in Patients with ME ---------------------------------------------------------- Join Leonard A...

Some of you may have heard about Dr. Pimentel. He's done some great things for IBS sufferers and is a good example of a doctor who cares. Link to the interview It's worth a read. Basically he's saying that physicians are about 10-20 years behind the current research.. Very similar problems to...

There are a number of tools available for journals to use to help assess RCTs. I wondered if anyone here had 'tried them out' for PACE and/or any of the other 'RCT's by Crawley or Chalder? I've seen CASP mentioned...

This study has been ongoing a while - they want your 23andME etc. data - but it's a long-term one that needs tons of patients so it's worth mentioning again: http://www.nova.edu/nim/research/mecfs-genes.html Interesting short video explaining what's what...