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Not pretending to understand that much of this, but it seemed interesting.

" Prestatyn film maker drafts sequel for ME drama after ‘crazy’ response THE second episode of a drama series which seeks to raise awareness of chronic fatigue syndrome is already in the making. Tom Ellis, of Prestatyn, teamed up with a group of young film-makers to tell the story of myalgic...

I’m watching this now and wow, the amount of life-altering devastation these poor women and men have suffered due to being implanted with inadequately tested medical devices gone wrong reminds me, in a way, to what we’ve gone through with ME/CFS. Check out “The Bleeding Edge” on Netflix...

Don't know if ME will be a theme, but might be of interest nevertheless for some to be aware of: Medical stories and the public 12 November 2018 at Royal Society of Medicine, London For this special event, Stephen Fry, esteemed comedian, actor, writer, presenter, activist and expert...

This article has just been posted to the ABC (Australia) website, ahead of a story on the current affairs show, 7.30, on the same network tonight. Based on the article, we are on tenter hooks about the story tonight...

Action for ME have instigated and delivered a series of webinars for GPs and Health professionals; most are accessed via the Webinars for GP website - medics amongst you may be able to access these. webinars potentially offer a great form of information dissemination, and educating professionals...

Have yet to watch it, but given Dr Systrom's SFNP findings, this may be interesting...

I don´t think this was posted elsewhere.

A new video by @Graham, the first in a series of three, explaining the PACE trial (about 8 mins),

Read more here https://batemanhornecenter.org/dr-derya-unutmaz-explains-collaborative-research-center-crc-bhc/

With the scheduling of the debate in Westminster hall in June and the ongoing NICE guidelines review I wondered if there was any way to mount a campaign to get this 30min version of 'Voices from the Shadows' (which clearly illustrates what has being going on in the UK particularly with regards...

Register for the livestream here, https://register.gotowebinar.com/register/8156426135278094337 I'm sure it will also appear on YouTube shortly afterwards.

The long version of this clip where Howard Bloom recalls having severe ME has been viewed 500000 times in 1 day...

The Institute of Social and Cultural Anthropology (University of Hamburg) shared this video on facebook today. "John Oliver discusses how and why media outlets so often report untrue or incomplete information as science."

Janet Dafoe - The Whitney Plea Janet Dafoe has shared a special plea from her son Whitney, and she's asking for your help to amplify his voice as part of the #MillionsMissing day of action this Saturday...

Just saw this had picked up 4k views in the first hour, so thought it was worth mentioning: Looks like the creator is mainly a fashion vlogger, and she has a connective tissue disorder, pain, fatigue and hearing difficulties. This is her description of the vid: I've not watched it yet, but...

The new #MillionsMissing campaign video 2018 was published today.

I don't think there is an existing thread for this yet? There are various posts about it in other threads but thought it might be useful to have its own thread. http://www.bbc.co.uk/mediacentre/proginfo/2018/19/me-and-me Now available to view at...

Pa. state Rep. Peter Schweyer speaks on House Resolution 854 designating May 12, 2018, as “Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day” in Pennsylvania.

23-second clip of a segment of Michael Sharpe's appearance on Victoria Derbyshire Talking therapies and exercise for #ME are "not magic cures but useful treatments": Professor Sharpe on his report Does anyone have the full broadcast?