video

  1. Sly Saint

    Mount Sinai Medical Center NY (and Dr Derek Enlander)

    I came across a number of interesting Youtube videos which featured Dr Derek Enlander (who I had not heard of). One of the good guys and very anti-PACE. This was one of them from 2013 This is excerpted from the Mount Sinai Medical Center ME CFS Symposium November 2013 In it he talks about a...
  2. Andy

    Researcher Interactions Video: Science for ME Q&A with Dr José G. Montoya, 16th January 2018

    Slightly adapted text from video description: Science for ME were delighted to record this Q&A session with Stanford University's Dr José G. Montoya. Dr Montoya, among a number of positions, is head of the ME/CFS Initiative at Stanford University...
  3. Kalliope

    Prof. Mella - Autoimmunity and metabolism in ME/CFS (lecture)

    Here is a lecture from prof. Olav Mella from a conference in Oslo November 2017. Language: Norwegian Subtitles: English Duration: 26 minutes
  4. Melanie

    A 1932 ME/CFS Outbreak?

    In 1932, 100,000 people in Los Angeles became ill. 5% had Polio but others were ill with other diseases and illnesses. In 1934, blood serum from the victims of the outbreak was used on the staff of LA Hospital. Although some who never had this serum injected into them did get sick, MUCH MORE...
  5. Andy

    News from South Africa

    A thread for news from South Africa https://www.afrika-news.com/interview-cfs-foundation-founder/
  6. MeSci

    Video on need for review of NICE Guideline, and link to petition

    "It is time for NICE to carry out a proper, independent review on the recommendation to use CBT and GET on people with ME/CFS." (8 minutes - a short review) Link to petition for review...
  7. Dr Carrot

    'I have to #hustlehard just to get out of bed in the morning' - writer with ME for Woman's Hour

    Searched for this but wasn't able to find it - so apologies if it's already been posted. This is a five minute video from a couple of months ago that explains the life of a freelance writer / comedian who has ME. I thought it was worth posting as it manages to also link in general societal...
  8. Andy

    Solve ME/CFS Initiative's ME/ CFS Patient Registry: You + M.E.

    Preview of the project. http://solvecfs.org/wp-content/uploads/2018/01/Chronicle_National_Patient_Registry.pdf ETA: Title, and minor formatting corrections.
  9. Sly Saint

    NBN Television newsnight report from 1988 + documentary from 1993

    00:08 – 02:37 - John Church reports on suffers of M.E. (Myalgic Encephalomyelitis) commonly called Chronic Fatigue Syndrome. He interviews a number of suffers who are learning to live with the illness and how they cope with their daily lives. He talks to Professor Dennis Wakefield about causes...
  10. Woolie

    How does your immune system work? New Ted Ed talk

    For those new to it, Ted Ed is an initiative to create short animated talks for education purposes. This latest one provides a cute intro to the immune system. Its pretty basic, but still kind of cool. And worth a look if you're currently stuck in bed.
  11. S

    What is vexatious and harrassing?

    I found this video while pootling about on the interweb - While it is a mash up and not a true representation of overall presentations involved in the video, there is a clear section where Esther Crawley is presenting to the MRC (in 2010) about her trial. There are lots of things to comment...
  12. C

    Aluminium based adjuvants and a disease hypothesis by Gherardi

  13. Andy

    US Chronic Fatigue Syndrome Advisory Committee meeting December 2017 YouTube playlist

    Day one, part one is linked below and is the first video in the playlist covering the two day meeting.
  14. Kalliope

    Lectures from ME-conference in Sweden (in English). Includes prof. Hanson and prof. Bergquist

    The Swedish patient organisation Riksföreningen för ME-patienter (RME) organised two international ME-conferences this autumn. The lectures were filmed and today RME uploaded them. @Sly Saint has already shared one of the lectures; "ME/CFS and the immune system. Where are we now?" by Geraldine...
  15. Andy

    Video and slides of Action CIND's 2017 webinars are now available

    From their Facebook post: Our series of webinars is now complete and the videos and slides are available in the following locations: The INS and OUTS of Long Term Disability Video - Copy of Slides - http://bit.ly/2017-11-28-Action-CIND-webinar-LTD Understanding Your Workplace Rights: Work...
  16. Kalliope

    Frank Twisk interviews David Tuller

  17. MeSci

    Lecture by Emily Beardall of Action for ME

    I could only find a thread saying that this was coming, not that it had been provided: "Our November 2017 webinar was led by pharmacist and Action for M.E.volunteer, Emily Beardall, who also has M.E. A recording of the webinar, and its accompanying slides, are now available to view online...
  18. Trish

    2 day CPET testing for anaerobic threshold in ME/CFS. Share videos, papers, your experience, discuss.

    I have just watched this video from 5 years ago posted in another thread. I thought it was the best explanation I had seen about the 2 day CPET and deserved a thread of its own. I suggest you we use this thread to collect talks, published papers etc and discuss people's experiences as well...
  19. Andy

    Video presentation: Overview of Autonomic Disorders, Dr. Paola Sandroni

    Pretty sure this hasn't been shared. Found on this Facebook post https://www.facebook.com/DysautonomiaInternational/posts/1485926594839548
  20. Diwi9

    Mady Hornig interview from ME conference in Oslo - November 2017

    @Kalliope already posted this interview in the "News from Norway" thread. Mady Hornig provides some interesting insight into subtypes, how the gut is involved in immune function, hypothetical treatments, and disease progression. I hope by giving this interview its own thread, it may garner...
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