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3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

Discussion in 'General ME/CFS news' started by Andy, Apr 30, 2019.

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  1. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Kalliope, Sep 7, 2019
    #21
    Simone, Aroa, Trish and 4 others like this.
  2. Ben H

    Ben H Established Member (Voting Rights)

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    Hi @Rain

    I'm not sure about YouTube but as it's being streamed on Facebook I think you can view it's straight away after its finished on there. I don't use Facebook much so not totally sure but I think that is the case. If I find out, I'll update r.e. YouTube.


    B
     
    Ben H, Sep 7, 2019
    #22
    ukxmrv, alktipping, Samuel and 5 others like this.
  3. Ben H

    Ben H Established Member (Voting Rights)

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    Ben H, Sep 7, 2019
    #23
    Ebb Tide, ukxmrv, Marky and 8 others like this.
  4. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    @Jonathan Edwards if I understood correctly, Dr Moreau is finding that PEM provoked with a stress test he is developing is associated with reduced time in REM sleep (it is a bit hard to understand because he talks quickly and has a French accent).
     
    Hoopoe, Sep 7, 2019
    #24
    alktipping, Saz94, Simone and 10 others like this.
  5. Ben H

    Ben H Established Member (Voting Rights)

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    Ben H, Sep 7, 2019
    #25
    Ebb Tide, mariovitali, alktipping and 5 others like this.
  6. Cinders66

    Cinders66 Senior Member (Voting Rights)

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    Cinders66, Sep 7, 2019
    #26
    Saz94, oldtimer, Annamaria and 1 other person like this.
  7. andypants

    andypants Senior Member (Voting Rights)

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    cyclo paper has finally been submitted, great news.
     
    andypants, Sep 7, 2019
    #27
    ukxmrv, Marky, John Mac and 14 others like this.
  8. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

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    Yup, good news....His lips are sealed.......
     
    Jaybee00, Sep 7, 2019
    #28
    oldtimer, Annamaria, Hutan and 1 other person like this.
  9. Andy

    Andy Committee Member

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    Andy, Sep 7, 2019
    #29
    Colleen Steckel, ukxmrv, Simone and 4 others like this.
  10. Ben H

    Ben H Established Member (Voting Rights)

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    Ben H, Sep 7, 2019
    #30
    ukxmrv, Marky, Nellie and 20 others like this.
  11. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    Hanson seemed unusually confident about ME/CFS being caused by a virus. I wonder if that is related to something they've recently found.

    PS she also thinks that we're no longer seeing larger epidemics because the virus responsible for ME/CFS has become endemic. And that is has gone unnoticed because it doesn't cause obvious problems like HIV, polio, or Zika do.
     
    Last edited: Sep 7, 2019
    Hoopoe, Sep 7, 2019
    #31
    ukxmrv, Skycloud, alktipping and 15 others like this.
  12. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    ME/CFS Skeptic, Sep 7, 2019
    #32
    Ebb Tide, MarcNotMark, rvallee and 25 others like this.
  13. Hutan

    Hutan Moderator Staff Member

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    Juan Santiago with his red blood cell mechanics work came across as a really careful good scientist. His team have been doing what appears to be useful work on how to measure RBC deformability - useful for many purposes beyond ME/CFS.

    Sadly, despite quite a large sample, they didn't find any difference between healthy controls and PwME. He's not ruling out differences but there seems to be a huge amount of variability between individual samples. Santiago suggests that there is a lot of noise, with things like a bit of exercise potentially changing deformability.

    I'm thankful that scientists of his quality have applied their expertise to studying ME/CFS. I hope that he'll keep looking - perhaps tracking individuals before, during and after exercise.
     
    Hutan, Sep 7, 2019
    #33
    MarcNotMark, Marky, Annamaria and 18 others like this.
  14. Ben H

    Ben H Established Member (Voting Rights)

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    Ben H, Sep 7, 2019
    #34
    Annamaria, Skycloud, Squeezy and 3 others like this.
  15. Ben H

    Ben H Established Member (Voting Rights)

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    Ben H, Sep 7, 2019
    #35
    Ebb Tide, Annamaria, Skycloud and 5 others like this.
  16. Ben H

    Ben H Established Member (Voting Rights)

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    Ben H, Sep 7, 2019
    #36
    Annamaria, Skycloud, Simone and 3 others like this.
  17. Ben H

    Ben H Established Member (Voting Rights)

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    Ben H, Sep 7, 2019
    #37
    Ebb Tide, Annamaria, Simon M and 5 others like this.
  18. Amw66

    Amw66 Senior Member (Voting Rights)

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    Reduced time in sleep full stop here. PEM provokes an adrenaline spike which can mean very little sleep at all. Generally very little deep sleep at all.
    It may be worthwhile to collate data if people have same Fitbit type device. There is a lot of available data from wearables. Algorithms may unlock commonalities
     
    Amw66, Sep 7, 2019
    #38
    Andy, mariovitali, alktipping and 3 others like this.
  19. Hutan

    Hutan Moderator Staff Member

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    Mike Snyder was saying the same things. His team have found that an increased resting heart rate can be an early warning of episodes of acute illness. He's interested in how that might work in chronic illness too. He's doing a study (not specific to ME/CFS) with people wearing wearable devices.

    Certainly I have an increased resting heart rate when I'm worst, ME/CFS-wise.
     
    Hutan, Sep 7, 2019
    #39
    Ebb Tide, jpcv, Annamaria and 13 others like this.
  20. Stuart

    Stuart Established Member (Voting Rights)

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    Hillary Johnson‏ @oslersweb

    "I suspect there is a central cause of the disease, I agree with Maureen....ultimately we want to figure out what that organism is and get rid of it. Many people are trying to sort that out." Ron Davis

    11:57 AM - 7 Sep 2019


    ULTIMATELY?? How About F***ing NOW!
     
    Stuart, Sep 7, 2019
    #40
    Annamaria and alktipping like this.
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