A Life Hidden - Blog posts by Naomi Whittingham

Thank you @Jonathan Edwards I think there’s a risk of this becoming too complex for very ill readers to take in. I’m now thinking of stripping it right back. Whilst I appreciate this removes detail, as long as the following isn’t incorrect then I think I will go for simplicity:

“The DecodeME study, published in 2025, pointed to the involvement of the immune and nervous systems, and indicated that susceptibility to ME is partly genetic.”
 
Another gem today titled: You Are Not Forgotten: The Gift of Being Remembered.

Also shared in the thread for the ME Awareness Day 12th May.

quote:

I’ve come to understand that what can look like a lack of caring is often paralysis in the face of suffering. Society in general is not equipped to cope when someone falls seriously ill and never gets better. In the same way that the newly bereaved might be shunned because of their proximity to mortality, so we chronically ill provide an uncomfortable reminder of all that cannot be controlled, and all that cannot be put right.

alifehidden.com

You Are Not Forgotten: The Gift of Being Remembered

You are not forgotten. How powerful four words can be. They tell us that we are still part of the world; that our lives matter; that we are held in the hearts of those who know us, eve…
alifehidden.com alifehidden.com
 
alifehidden.com

The Burden of Chronic Illness That I Rarely Talk About

Being ill is hard. What an obvious thing to say – and yet how often it goes unspoken. I’ve written about many aspects of life with long-term illness: from the grief of dreams shat…
alifehidden.com alifehidden.com

The Burden of Chronic Illness That I Rarely Talk About​

Posted on 30th Jul 2026
by Naomi Whittingham

Being ill is hard. What an obvious thing to say – and yet how often it goes unspoken.

I’ve written about many aspects of life with long-term illness: from the grief of dreams shattered, to the isolation and lack of support. But there’s a hardship at the core of it all that I’ve never directly addressed: the struggle of living in a body that is the source of so much suffering. It can be exhaustingly, relentlessly difficult.
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