Action for M.E.'s big survey, 2019

Discussion in 'General ME/CFS news' started by Andy, May 2, 2019.

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  1. NelliePledge

    NelliePledge Moderator Staff Member

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    I did it. Tried to make full use of white space. Pity there isn’t a box at the end otherwise could have offered a critique of the survey. I’m wondering if they’ve gone with using the same wording for questions as the last survey to enable comparisons which would explain why it reads like something the NHS could have put together.
     
    Wonko, Andy, MEMarge and 1 other person like this.
  2. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Hopefully their data showing that c 90% of people have stopped or reduced work, they will produce information on work and ME that is better than their SeeME toolkit.
     
  3. Wonko

    Wonko Senior Member (Voting Rights)

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    Flying bacon sarnies would save the effort of lifting them I suppose.

    I am not expecting anything revolutionary to occur as a result of this survey as, basically, PwME have told them exactly the same things they have been telling them for years, and that they've ignored.

    I expect no policy or publicity changes from them, because they have exactly the same info as they've had previously, from the same source (PwME), and they carried on with their own little agenda then, so I expect them to now.
     

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