Action for M.E.'s big survey, 2019

[NelliePledge]

I did it. Tried to make full use of white space. Pity there isn’t a box at the end otherwise could have offered a critique of the survey. I’m wondering if they’ve gone with using the same wording for questions as the last survey to enable comparisons which would explain why it reads like something the NHS could have put together.

 

[MEMarge]

Hopefully their data showing that c 90% of people have stopped or reduced work, they will produce information on work and ME that is better than their SeeME toolkit.

 

[Wonko]

Hopefully their data showing that c 90% of people have stopped or reduced work, they will produce information on work and ME that is better than their SeeME toolkit.

Flying bacon sarnies would save the effort of lifting them I suppose.

I am not expecting anything revolutionary to occur as a result of this survey as, basically, PwME have told them exactly the same things they have been telling them for years, and that they've ignored.

I expect no policy or publicity changes from them, because they have exactly the same info as they've had previously, from the same source (PwME), and they carried on with their own little agenda then, so I expect them to now.