Action for ME: "We need your help! Connect M.E. survey"

What would AfME's liability be for any volunteers who took some kind of advantage of patients? Checks only catch known ppl and even then only if ID can be certain which is actually tricky as you have to prove the ID then that it's the same person who actually turns up at the patient's door. It's a good idea - I came up with the same idea myself a few years ago but I decided it would be v difficult to implement it safely. You have to remember there are predatory ppl out there looking for access to vulnerable victims and you'd have to safeguard against that.

 

Makes me wonder if the idea has been tried before to assist other groups of people like the elderly, perhaps we could learn some lessons from how it worked out for them. I've not found anything yet but it seems quite unlikely to me that something approximating this hasn't been attempted before somewhere in the world.

 

Is there no PVG process in England / Wales/ NI?

In Scotland if you work/ regularly volunteer with groups classed as vulnerable , you have to be vetted via a national scheme: there are degrees of checks depending on the interaction.
It is only as good as the records that are checked.

I have to have certification for working on some contracts within a mental health setting. My employer pays for this.

My son has a higher level of certification for working with autistic males (aged 16-25) .

It is not a cheap process, as each person has to be checked.

 

@Action for M.E. Can you tell us more?

 

At least 1 person on the AfME board of directors believes they were cured of ME by the lightning process. Their overarching philosophy seems to be to try everything and see what works.

This is not an organization I personally trust. I will say no more.

 

No evidence I can post on a public forum, sorry. But PM me if you have questions.

 

While not the Lightning Process, I saw this quote recently on the Optimum Health Clinic site. The OHC is, in my opinion, of a similar ilk.

“After 10 years as a trustee of Action for ME, and after struggling to get clarity when I wrote a book on ME in the late nineties, I just wish that the thorough and integrated approach at The Optimum Health Clinic had been available then.”

Gill Jacobs

https://www.theoptimumhealthclinic.com/patient-stories/

(Not sure if the trustee status is past or present?)

 

Past I assume as there is no sign of them here, https://www.actionforme.org.uk/about-us/board-of-trustees/

 

This might have worth, they’re presenting it as a helping hand, more like you might call on a friend. People with me can be hit as many friends fall away with this illdue to skepticism and it’s limitations

However AFME specialise in DIY self management and volunteer stuff, part funded by government and in a country that medically also gives us the DIY ticket on everything I get frustrated. But AFME are never going to be what I want them to so perhaps I should stop judging them according to my own standards for a general national charity where they always fail.

 

Thanks @Sly Saint. Not much use for housebound or bed bound then.

(my bolding)