I agree that there is a need to change the narrative but the trouble is that everyone has a different personal take, and Valerie E-S's is not mine. If the aim is to get recognition as a medical condition it needs to involve a rigorous re-writing of the narrative within the medical community and that means sticking to science, in the broad sense of basing things on facts and evidence. The rest, it seems to me, IS just PR.
I don't buy the sexism bit. If there are fewer female advocates that is not sexism, it is a reflex ion of women not shouting so loud. And it does not seem to be the case anyway. Who is the most high profile advocate - JB most would agree. And the highest level advocates in the U.K., in Parliament, are three women, Monaghan, Mar and Morgan.