BPS attempts at psychologizing Long Covid

Wow, those doctors are so out of touch with the actual problems facing patients. They are simply assuming that these patients only have mild complaints and that it is the perception of their symptoms that is preventing them from usual activities. Do they not realise that many longcovid patients are severely ill and no amount of pushing though is going to allow them to achieve their usual activities?

 

Nope. They've assured themselves that two legs good, four legs bad. Once people have been dehumanized, anything can be done to them and it doesn't matter what actually happens to them.

A variation on a familiar theme: patients have rights, but those people are not patients and therefore don't have rights.

 

I'd love it if you could write to the authors and help them out

 

I'd love to but I've given up trying to write more than off-hand comments, I can't edit myself. I can write OK as a stream of thoughts but can't edit a coherent whole, it's too difficult. I tried many times. I'd probably put them off, saying the wrong thing backfires quickly. Ego-massaging is especially exhausting.

I do save many of those streams of thoughts for later. I may have many things to write in the future once I get my brain back. Vexatious things, with just enough diplomacy to bite politely.

 

I've returned to the forum, briefly, to provide a series of posts over the next two or three weeks with updates on SNOMED CT and ICD-11. These updates will be posted in the thread: Updates on status of ICD-11 and changes to other classification and terminology systems.

But as I'm currently here (and on the assumption that it has not already been posted in another thread), there is a Job Vacancy for an Occupational Therapist, Physiotherapist or Mental Health Nurse with Oxford Health NHS Foundation Trust:

(My highlighting re Covid-19)

https://www.jobs.nhs.uk/xi/vacancy/916084835

CFS/ME Specialist Practitioner

Job Reference: 267-CH2482797
​

Edited: Sly Saint advises that this Job Vacancy has been posted already in this thread:

https://www.s4me.info/threads/possibility-of-me-or-pvfs-after-covid-19.14074/page-51#post-276699



A PDF for the Oxfordshire CFS/ME Service can be found here:

https://www.oxfordhealth.nhs.uk/wp-content/uploads/2014/01/OP-068.14-CSF-ME-Service.pdf

"CFS/ME is classified by the World Health Organisation as a neurological condition although its cause remains unclear..."

"...People affected are often highly motivated, hard working and caring for others. There can be a variety of triggers, both physical and emotional..."



If this job vacancy has already been posted in an associated thread, let me know and I will delete this post.

Suzy

 

Interesting tweet given current concerns
https://twitter.com/user/status/1288556917074333698

 

I don't know him but he seems to be known mostly as a satirist and... yeah, I definitely like the cut of his jib:

 

I loved Clive James.
@rvallee there are several youtube videos of his shows eg

Code:

https://www.youtube.com/watch?v=VK2Z9hVH9YQ

 

It's like a deja vu seeing a whole new cohort of perplexed, frightened people who until recently thought they had rights and that the medical system was there to help people running into the same wall of lies and abuse we've been dealing with for decades.

 

. . . and witnessing post-COVID long hauler doctors being eaten by their own.

 

At least they're not going through it thinking they're the only ones. Thanks to the internet they can easily contact others struggling through the same problems.

They've also got us fighting their corner.

That would have certainly have made a difference to me.

 

I'll check it out! Thanks.

 

I've read several talking about how it should not be treated this way but none so far about what their experience has been like and what they think of it. Too vexatious, I guess. Because this is something that is often role-played with fake "difficult" patients as part of training, like those ridiculous training videos featuring Clare Gerada or anything by the likes of Chalder. Weird how caricatures are not exactly a reliable replacement for real life.

 

Yup, there's a Canadian fb group with 925 members so far.

 

@rvallee since this is a pandemic and not isolated cases of PVFS, it might be treated differently. That being said, I have worked with several doctors in my career, and illness such as flu, EBV type illnesses were taken very lightly amongst even their own doctor family members who became ill. They are very hard on each other.

 

You're right Mij. When I was in the process of becoming disabled & diagnosed, all the doctors, nurses, psychologists etc. that I had worked with (and in some cases also been friends with) for years instantly threw me under the bus. It was like being accused of witchcraft in medieval Europe. These people thought of themselves as rational and evidence-based but when it comes down to it anything with a whiff of 'medically unexplained' or 'functional' terrifies them on a primal level like bad juju. Instant ostracism from the village.