BPS attempts at psychologizing Long Covid

My ME brain read it as:

Not that it makes much of a difference.

 

https://twitter.com/user/status/1469319857770536971

 

Hopefully it won't be turned into some sort of "long hauler campaigners are making it impossible for researchers to do their job, they are blocking science" kind of narrative.

 

What Could Explain Long COVID?
The connection between mind and body could help us understand the ailment.
https://www.psychologytoday.com/us/blog/the-new-normal/202112/what-could-explain-long-covid

No point quoting anything, it's the same old tripemill of sophistry and Freud-of-the-gaps rhetoric with a dash of "medicine can test for literally everything" hubris.

The author:

https://twitter.com/user/status/1468967377245130758


Yeah, that dude seems to be out there psychologizing whiplash and car accidents as psychological for the insurance industry:

 

There is nothing in the LC guidelines that forbids recommending LP. But that response. Damn, how low has medicine sunk? And how much lower will it?

https://twitter.com/user/status/1469430483494789122

 

https://twitter.com/user/status/1469736279936012294

 

That is certainly an issue about which a sensible debate could be held?

Is condoning putting scarce resources into poor quality research, unlikely to provide useful information, a good look?

 

MS also preceded the above tweet with this one —

 

Campaigning to stop marketing and empire building disguised as research is a worthy endeavour in my opinion. What's this focus on "a good look" anyway? Just illustrates how Sharpe has got his priorities all wrong - not everyone is interested in building a career on looking good to the right people.

 

In fact Michael Sharpe can congratulate himself - for years he has been complaining that ME sufferers have been blocking psychological research, making himself believe that it is true, talking as if it were true, and now it has come to pass. What an amazing demonstration of the power of Michael Sharpe's mind.

 

Looking over the thread, comments about people with psychosomatic disease being more likely to attribute symptoms to physical rather than psychological causes reminded me of a research study in the early days of BPDS involvement which made me understand exactly what type of people were now involved with my health.

In order to research this question they did a study comparing the answers from ME patients to those from a control group. They specifically stated that they could not use a control group with chronic disease because "people with chronic disease are more likely to attribute symptoms to physical rather than psychological factors"

So they already knew the answer but did not consider ME a chronic disease and I bet this study was used to "prove" that it was just psychosomatic disease not all chronic disease that was the problem.

Their chosen control group was A&E on a Saturday night!

 

Whatever this is... not even gonna bother reading, mostly to keep track.

"I believe". OK, don't. Beliefs have no place in health care or medical practice.

Also, uh, "post-pandemic". Whatever, some people truly live a universe of their own.

https://twitter.com/user/status/1470515870053117960


Edit: having seen a few quotes since, it's even dumber than usual, these people have lost all connection to reality please make it stop it's unbearable knowing so many efforts are happening to maximize the failure, this is not the way to do anything it's complete madness

 

Yet another opinion piece on long covid as a cultural illness, by Swedish journalist Hanne Kjöller

Now with added smear against the postcovid specialist clinic in Solna and the Swedish Covid Association and its chairperson, as well as a rerun of the old comparisons to dental amalgam poisoning, resignation syndrome (apathetic asylum-seeking children), and so on.

Postcovid: Jakten på en biologisk förklaring och vad som gör patienterna friskare
https://kvartal.se/artiklar/postcovid/

Google Translate, English

 

Do you have a screen shot of the deleted tweet?

 

https://twitter.com/user/status/1470807395345567745

https://twitter.com/user/status/1470834248189988867

 

Sorry, no.

 

So Long Covid has basically opened up the floodgates for even more open hostility. Are the newspapers just milking this or is this narrative being pushed by authorities? Most of the claims made in this last one are farcical and obviously nonsense, what kind of responsibility does a newspaper have in enabling discrimination with real life consequences against a disabled community? This is a blatant campaign of hate-mongering and maligning of a vulnerable population. What is the journalistic value of publishing hate speech like this?

I thought I saw the ugliest side of humanity in politics but this is on another level. It's cruel for the sake of cruelty alone, using it as a hammer to make us more hated and keep us voiceless. And meanwhile the overwhelming reports from the patients is that this is a dystopian nightmare, and the only response to that is more and worse dystopian nightmare. Complete indifference to consent, in a way that suggests that this is likely a major problem that needs to be evaluated independently all over health care systems this, it's impossible to be that cruel to so many and be a completely unique exception.

Again, what lessons from the AIDS crisis? Every single one of the failures remain in full, in some cases worse than ever. It even got uglier, somehow, probably with the understanding that patient advocacy can easily be crushed as long as it's so hated no one wants anything to do with it. And as long as we can't mount a real threat.

That's kind of a big own:

If you see in us razor-sharp and articulate people, it may be because your idea of razor-sharp and articulate is to mindlessly peddle recycled 19th century snake oil. They easily have a 100:1 advantage over us and still whine that we don't have zero.