Esther Crawley - (what drives her) plus quotes

When I saw this it struck me how similar this seems to the BPS people who never discuss, but simply bludgeon.

 

Yup. The parallels are obvious. The common foundation is hubris and shamelessness. Promote your idea, no matter what reality says. If you push it long enough, you can substitute reality (as long as you have friends in high places).

Before them few people were talking about fatigue. Now it's all people know, no matter how wrong it is, because of relentless self-promotion and silencing of all opposition. This isn't science or even medicine, it's mostly politics and ideology, the illusion of competence through performative delivery of useless services.

 

its not even just the idea ideology - its self promotion- lead cbt trials, get funded, get promoted---£1 million trial= professorship

listen to Wearden's professorial talk 'the mrc advertised funding so we went after it'

White wrote letters to mrc saying he will apply for money

and so on ...

 

I know it's not good but I thought being a bit ad hominem today could help me digest that some people still like to think the SMILE trial was a properly designed and conducted randomised controlled trial.

 

I'd prefer to be waterboarded than stand up and give such a self-congratulatory presentation as that.

 

She has children! How can she actually think that other mothers don’t know their own children, or feel differently towards their children than she does towards her own? What would she want for her children if they got ME?

 

That magical woo known as the Lightning Process of course! After all, she has scientifically proven it works.

 

She recommended the Lightning Process to an old school friend whose son was diagnosed with CFS!

 

Puke, vomit etc etc.

 

This blog seems to have been taken down?

Here's a copy of it at web.archive, though it doesn't seem available at NIHR anymore.

https://web.archive.org/web/2017021...g-what-is-right-in-a-controversial-field/5370

Crawley's other NIHR blog is available here: https://www.nihr.ac.uk/blog/worries-that-keep-you-awake-at-night/11067

 

It still there for me. (chrome w7)

 

Do you just mean the archived page I linked to?

The original page is here: https://www.nihr.ac.uk/blogs/doing-what-is-right-in-a-controversial-field/5370

 

I can't see the difference.

The link you posted that I quoted you, that said was down.

https://web.archive.org/web/2017021...g-what-is-right-in-a-controversial-field/5370

It is not. It is up.

however the last link you sent

The original page is here: https://www.nihr.ac.uk/blogs/doing-what-is-right-in-a-controversial-field/5370

is not working

Either I'm missing something or life is currently confusing.

 

In this post:

I was saying that the blog seemed to have been taken down from the NIHR site, and linked to an archived copy of it so that people could see what was originally there. Pages saved on web.archive are available there even when taken down from their original address.

I'll edit that post to make it clearer.

 

Found this in my drafts folder and thought it didn't warrant an own thread so just leave it here. (From July, didn't check for updates)

I did some search on PROSPERO (International Prospective Register of Systematic Reviews)

https://en.wikipedia.org/wiki/PROSPERO

There seem to be quite a couple of PROSPERO-registered systematic reviews for which Esther Crawley was a co-applicant and to which the concern mentioned in Wikipedia applies (listed by PROSPERO as "ongoing" but started some years ago and now way beyond the anticipated completion date).

(Edited to add: don't remember if I checked whether the studies have been published, maybe with a slightly different title.)

Recovery in paediatric CFS/ME
https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=9303

Using MRI as a neuroimaging technique to investigate Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: a systematic review
https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=50569

Children’s experiences of living with CFS/ME: a systematic review and synthesis of qualitative studies
https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=9896

Maria Loades, Esther Crawley. Systematic review of depression in paediatric CFS/ME
https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42015016813

Systematic review of the relationship between cortisol levels and CFS in children
https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=29144

This one is registered as completed but couldn't find it published:

Systematic review for the treatment of CFS/ME via dietary manipulation/nutritional supplementation
https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=10756

(Edited to fix a URL & spelling)

 

This one appears particularly strange to me:

Children’s experiences of living with CFS/ME: a systematic review and synthesis of qualitative studies
https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=9896

 

Professor Esther Crawley wins Mentor of the Year Mar 11 2020

http://www.bristol.ac.uk/academic-child-health/news/2020/esther-crawley.html

 

Excuse me while I go and throw up.