Esther Crawley

Maybe they offer it off-label for private payers You know, "science has shown it can cure you"...and desperate people will believe...

 

Gaslighting the public is in vogue these days...

 

Do the NICE guidelines say to rediagnose people with PRS if they don't improve with the current treatments.

 

Slides from a presentation (not sure when)
"What a journey! - Esther Crawley"
https://www.nihr.ac.uk/funding-and-support/documents/Day 1 - Career journey Ester Crawley.pdf

eta: she started her career in CF/CFS because she was bored.

 

That's a couple of years old I think - maybe from around the time she got NIHR funding?

I remember thinking it was funny.

 

Hubris is rarely expressed this clearly. Great example of Dunning-Kruger as well. This is exactly the opposite attitude someone working in a life or death profession should adopt. This explains a lot. Don't get high on your own farts, people.

 

after she started in CFS she contacted Peter White and asked him how to win grant money - he became her mentor

she then asked Davey-Smith how could she access the ALSPAC dataset - he helped her with that

her NIHR talk is very very informative - she was bored, gave up research after PhD, started in CFS because of an advert to set up service

 

she tells quite a different story in her inaugural speech; talks about her epiphanies.

eta: presentation is from Dec 2016

 

For all of you out there bored as hell, just take a moment to reflect on the damage that you are currently not doing.

...

Good. Carry on with your distractions.

 

I' m sorry. I have not long eaten and now feel sick

 

Words to the wise... and the not so wise.

 

See:
https://forums.phoenixrising.me/thr...awley-inaugural-lecture-on-february-24.49493/

 

CCAH report 2016-2017;
details Crawleys projects and costs including FITNET which is just under £1Million.
http://www.bristol.ac.uk/media-libr...FINAL VERSION-Jan18 (Julie Munro updated).pdf

 

When I saw this it struck me how similar this seems to the BPS people who never discuss, but simply bludgeon.

 

Yup. The parallels are obvious. The common foundation is hubris and shamelessness. Promote your idea, no matter what reality says. If you push it long enough, you can substitute reality (as long as you have friends in high places).

Before them few people were talking about fatigue. Now it's all people know, no matter how wrong it is, because of relentless self-promotion and silencing of all opposition. This isn't science or even medicine, it's mostly politics and ideology, the illusion of competence through performative delivery of useless services.

 

its not even just the idea ideology - its self promotion- lead cbt trials, get funded, get promoted---£1 million trial= professorship

listen to Wearden's professorial talk 'the mrc advertised funding so we went after it'

White wrote letters to mrc saying he will apply for money

and so on ...

 

I know it's not good but I thought being a bit ad hominem today could help me digest that some people still like to think the SMILE trial was a properly designed and conducted randomised controlled trial.

 

I'd prefer to be waterboarded than stand up and give such a self-congratulatory presentation as that.

 

She has children! How can she actually think that other mothers don’t know their own children, or feel differently towards their children than she does towards her own? What would she want for her children if they got ME?

 

That magical woo known as the Lightning Process of course! After all, she has scientifically proven it works.