Esther Crawley

https://www.researchgate.net/profile/Esther-Crawley
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Publications 2023 to the present:

Graded exercise therapy compared to activity management for paediatric chronic fatigue syndrome/myalgic encephalomyelitis: pragmatic randomized controlled trial 2024 (the exercise therapy was found to not be useful)

"not one size fits all” The challenges of measuring paediatric health-related quality of life and the potential role of digital ecological momentary assessment: a qualitative study 2023

Investigating the factors associated with meaningful improvement on the SF-36-PFS and exploring the appropriateness of this measure for young people with ME/CFS accessing an NHS specialist service: a prospective cohort study 2023

Correction to: Anxiety in children with CFS/ME 2023

Correction: The impact of CFS/ME on employment and productivity in the UK: a cross-sectional study based on the CFS/ME national outcomes database 2023

Correction: What stops children with a chronic illness accessing health care: a mixed methods study in children with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) 2023

Long COVID in Children and Youth After Infection or Reinfection with the Omicron Variant: A Prospective Observational Study 2023

Digital tools for assessing chronic pain in children (5–11 years): Systematic review 2023

Corrigendum to “Chronic Fatigue Syndrome (CFS) symptom-based phenotypes in two clinical cohorts of adult patients in the UK and The Netherlands” [Volume 81C (2016) 14–23] 2023

Correction: Defining the minimally clinically important difference of the SF-36 physical function subscale for paediatric CFS/ME: triangulation using three different methods 2023

Patient-centred outcomes following non-operative treatment or appendicectomy for uncomplicated acute appendicitis in children 2023
 
MSEsperanza said:
Couldn't resist to try google and found this note on a study that seems unrelated to ME/CFS:

Acknowledgments

"The GenROC study was originally conceptualised with significant mentorship and guidance from Professor Esther Crawley who has now retired. We thank her for her significant contribution to the concept of the GenROC study. [...]"

Low KJ, Watford A, Blair P, et al
Improving the care of children with GENetic Rare disease: Observational Cohort study (GenROC)—a study protocol
BMJ Open 2024;14:e085237. doi: 10.1136/bmjopen-2024-085237

https://bmjopen.bmj.com/content/14/5/e085237
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Wow, this could be Brilliant news, hopefully she has retired from any medical interaction with children.

The Bath Clinic she runs/?used to run, now makes no mention of her, still the same old info and leaflets:
https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/leaflets.asp?menu_id=1
 
I've asked on a parents' site if anyone has seen Crawley recently, linking to the acknowledgement in the BMJ paper.

Was shocked, but not terribly surprised that currently, several families are having their youngsters diagnosed as FND!!!
 
Andy said:
Dave Tuller reports on Twitter that
"Professor Esther Crawley apparently relinquished her right to practice medicine last September, according to the UK's General Medical Council, which oversees physicians. No explanation provided. 1/ gmc-uk.org/doctors/3545946"
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Now that is interesting.
Amw66 said:
New ducks being lined up .
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Yep, as long predicted here, they are doing a bait and switch, simply swapping ME/CFS for another, more psychosomatic-friendly, diagnostic label to keep us under their control.

They really do think they own us, and nobody, not even the highest levels of their own profession, and least of all patients, have any right to say otherwise.
 
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I note that the RUHB page for the Paediatric Specialist Chronic Fatigue service does not appear to list the name of any new lead paediatric consultant: https://ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/index.asp

The only current paediatric consultants I can find associated with the Bath paediatric CFS service are:

Dr Jan Cribb and Dr Rachel Chute (Dr Chute was appointed as a Consultant Paediatrics/Psychiatrist on 10th. May 2022. Dr Chute was already working as a Locum Consultant at the hospital).


This Job description and Person spec document (January 2024) for a Locum Paed (but not for a position within the CFS service, per se), also does not mention any paediatric lead consultant for the CFS service. See Job Description and Person spec document under heading: Consultant Staff (and special interests)


"Chronic Fatigue Service

Dr Jan Cribb
Dr Rachel Chute"

https://www.jobs.nhs.uk/candidate/jobadvert/C9427-24-0035


Possibly the Trust has not yet recruited a replacement clinical lead, or if they have, the replacement has yet to take up the position; or possibly they intend to operate the service without a clinical lead to replace Prof Crawley. (Neither Dr Cribb nor Dr Chute is designated as clinical lead.)
 
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These Bath Chief Executive’s Report documents include references to consultant recruitment. This document, below, mentions the appointment of Dr Rachel Chute (under section: 16. Consultant Appointments) in May 2022:

https://www.ruh.nhs.uk/about/trustboard/2022_07/documents/08.pdf

I have been looking at Chief Executive’s Reports for the period 2022 to 2024, to see whether there is any reference to the resignation of Dr Crawley and the appointment of a replacement clinical lead.
 
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Dx Revision Watch said:
These Bath Chief Executive’s Report documents include references to consultant recruitment. This document, below, mentions the appointment of Dr Rachel Chute (under section: 16. Consultant Appointments) in May 2022:

https://www.ruh.nhs.uk/about/trustboard/2022_07/documents/08.pdf

I have been looking at Chief Executive’s Reports for the period 2022 to 2024, to see whether there is any reference to the resignation of Dr Crawley and the appointment of a replacement clinical lead.
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"appointed as a Consultant Paediatrics/Psychiatrist"
 
Dx Revision Watch said:
These Bath Chief Executive’s Report documents include references to consultant recruitment. This document, below, mentions the appointment of Dr Rachel Chute (under section: 16. Consultant Appointments) in May 2022:

https://www.ruh.nhs.uk/about/trustboard/2022_07/documents/08.pdf

I have been looking at Chief Executive’s Reports for the period 2022 to 2024, to see whether there is any reference to the resignation of Dr Crawley and the appointment of a replacement clinical lead.
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Interesting that scanning the same document I found the following:

10. Launch of Innovative New Feedback Tool for Patients and Families In June our Emergency and Orthopaedic departments' waiting rooms launched a pilot project to allow patients to give real-time feedback about the service they are receiving by simply scanning a QR code on their mobile device or sending a text.

Patients are able to give feedback on a range of different topics, from their overall experience of the waiting room and what could be improved, to the welcome they received from staff when they arrived and how well they have been communicated with during their visit.

This feedback compliments the RUH's Friends and Family Test, a national NHS survey which is a simple and anonymous way for patients, their friends, family and carers to give views on the care or treatment they have received at their local Trust and results are used to build on what we are doing well and identify any further improvements we can make.
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I wonder how, given the suggestion is that the MEA PROMS will include service feedback, this will 'marry' with that?

Sounds a lot more what service assessment normally is based on if you actually are focused on reactive and swift improvement - qualitative boxes etc
 
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