EU: News from the European ME Coalition (EMEC)

The ME/CFS pledge for the European elections
We, at the European ME Coalition (EMEC) call upon candidates in the European elections to commit to supporting individuals suffering from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) by endorsing our pledge. Those who have signed the pledge or actively supported the ME/CFS community in Europe in the past will be listed below on this website. We encourage EU voters to support these candidates in the upcoming elections from 6-9 June 2024.

https://europeanmecoalition.com/the-me-cfs-pledge-for-the-european-elections/

 

Important update from the European ME Coalition:

The results of the Horizon Europe call on high-burden, under-researched conditions have been made public. 3 (out of 4?) projects from the call have already been announced, receiving approximately 7 million each. They focus on endometriosis, familial hypercholesterolemia, and difficult-to-treat rheumatoid arthritis. While endometriosis fits the definition of a high-burden, under-researched condition, the other two are questionable…

EMEC was involved in a major consortium that included top ME/CFS experts across Europe. This was a professional and high-quality application that received an excellent review score which unfortunately wasn’t enough to get funding.
https://europeanmecoalition.com/update-the-results-of-the-call/

https://twitter.com/user/status/1878024563096801737

https://bsky.app/profile/emec.bsky.social/post/3lfhindccoc23

 

I posted an article about Pascal Arimont's parliamentary question to the new Commissioner in the EU thread. The question was submitted at the end of last year, so I'm not sure if this was asked independently of EMEC's efforts or is the same thing. Here is the link to the other post:

https://www.s4me.info/threads/europ...nd-the-european-parliament.34136/#post-583780