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Europe: European ME Alliance (EMEA) (also EMECC and EMERG)

Discussion in 'News from organisations' started by Andy, Jan 18, 2019.

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  1. Andy

    Andy Committee Member

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    Andy, Apr 8, 2022
    #21
    It's M.E. Linda, Trish and Hutan like this.
  2. Andy

    Andy Committee Member

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    ME/CFS and post Covid in the Balkans

    "The next roundtable webinar on Myalgic Encephalomyelitis (ME/CFS) in Europe will be held on Friday 27 May 14:00 CET.

    This webinar will try to begin the process of raising awareness of ME in Slovenia, Croatia and Serbia, and the Balkan countries in general, in order to improve research and services for people with ME, and thereby overcome the inherent stigma and misinformation about the disease that still exists."

    https://www.europeanmealliance.org/news-Q22022-001.shtml
     
    Andy, May 1, 2022
    #22
    RedFox, MEMarge, cfsandmore and 5 others like this.
  3. Andy

    Andy Committee Member

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    ME/CFS IN THE NORDIC COUNTRIES

    "Status of Health Care and Research and Suggestions for Joint Actions and Policies

    In November 2021 the Medical Association of ME/CFS in Finland (SLME) organised an online conference with the purpose to assess the existing Nordic ME/CFS health care and research resources and discuss how best to put them into good use. A report was produced from this conference."

    https://www.europeanmealliance.org/emea-nordic-web.shtml
     
    Andy, May 1, 2022
    #23
    RedFox, Amw66, cfsandmore and 3 others like this.
  4. Wyva

    Wyva Senior Member (Voting Rights)

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    I haven't watched it yet, but this is a video from the 9th Congress of the European Academy of Neurology

    One of the people participating in the discussion was Gracemarie Bricalli, representing the EMEA, talking about ME/CFS of course.

    Edit: she starts talking at around 13:30
     
    Last edited: Jul 3, 2023
    Wyva, Jul 3, 2023
    #24
    ME/CFS Skeptic, RedFox, MeSci and 5 others like this.
  5. rvallee

    rvallee Senior Member (Voting Rights)

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    That's a weird way to spell deliberately neglected.
     
    rvallee, Jul 3, 2023
    #25
    RedFox, Peter Trewhitt, obeat and 2 others like this.
  6. Hutan

    Hutan Moderator Staff Member

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    Wonderful presentation and question answering by Gracemarie Bricalli - approx 10 minutes all up.:thumbup: I hope that we have Gracemarie as a member here.

    There's an interesting discussion about pain that follows, there's a mention of fibromyalgia and gender issues. Also a discussion of the importance of patient involvement in research.
     
    Last edited: Jul 3, 2023
    Hutan, Jul 3, 2023
    #26
    Sean, RedFox, MeSci and 6 others like this.
  7. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    Agree, she is really fluent and professional, job well done.

    The other presenters were also good.The first one talked about restless leg syndrome, the last one about chronic pain.
     
    ME/CFS Skeptic, Jul 8, 2023
    #27
    Sean, RedFox, Peter Trewhitt and 1 other person like this.
  8. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Last edited: Apr 7, 2024
    Dolphin, Apr 7, 2024
    #28
    Samuel, Sean, Deanne NZ and 10 others like this.
  9. Hutan

    Hutan Moderator Staff Member

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    Hutan, Apr 14, 2024
    #29
    MeSci, Peter Trewhitt and Trish like this.
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