Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

MEMarge said:
Great article in the Healthwatch Spring newsletter, by @Caroline Struthers

https://www.healthwatch-uk.org/publications/newsletter/newsletter-114/221-114-cbt-get.html
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The assumption that any intervention that isn’t a drug or device probably won’t do any harm, even if it doesn’t work, is preposterous.
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Examples must be pretty easy to imagine. Anyone being indoctrinated into ignoring symptoms of physical ailments is potentially at risk of harm. What if patients were misled into believing their cancer treatment was not needed? Or their broken leg should still be used to its full limit whilst mending. Some time in the future, when ME/CFS is much better understood, people might similarly cite: What if people with ME/CFS were lured into exercising way beyond their limit ...

I find it astonishing and appalling that such treatments are below the radar of medical harms. It just gives free reign to charlatans.
 
Entirely relevant @Caroline Struthers @Hilda Bastian
https://www.s4me.info/threads/compl...nce-underwriting-etc-vs-me.20482/#post-344774

InfiniteRubix said:
Unmanaged post-viral disease risks and rising pandemic exposure

(Updated with addition of version history)

"Post-viral disease is an undermined field of risk assessment, pricing, budgeting, compliance management, reputation management, liability generation and discrimination. Elevated probability of unlawful clinical judgement and/or administrative decision-making in this field pervades clinical and therapeutic services and related contracting parties. Risks are routinely misjudged and exacerbated. "

"Medico-legal issues, requirements and enforcement factors are discussed. Legal obligations on service providers versus current risk generation are then outlined, along with their impacts on liability, malpractice-risk and indemnification. Risk-mitigation measures are offered throughout and are followed by compliant education resources.

This pre-released draft is specifically not structured for scientific audiences and will receive ongoing updates.

Communication of factual or typographical errata or other suggestions is welcome."

https://www.linkedin.com/posts/pand...alomyelitis-activity-6799785407891427328-OgXJ

Image Credit: Weiss & Paarz Medical Malpractice Attorneys

#LongCovid #covid #MyalgicEncephalomyelitis #MECFS #riskmanagement #medicaleducation #doctors #insuranceindustry #underwriting #claimsmanagement #practicemanagement #generalpractice #physiotherapists #covid19impacts
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Risks from the following factors are routinely misjudged and exacerbated by normalised procurement of fallacious services or testimony:

Clinical judgement, administrative decision making, policy formulation or policy implementation that fail to meet the requirements of the law are not lawful by definition and carry risk

Claims that do not meet the thresholds of scientific probity, rigour and/or process cannot be described as science and are thus legally unsustainable and carry risk (regardless even of partial or total contradiction by bodies of work that are sufficiently substantive)

Clinical judgement or administrative decision making that depends on such claims cannot therefore sustain claims of lawlulness and carry risk

Education or organisational policies that encourage otherwise and carry risk, by directly cultivating unlawful behaviour, versus statutory provisions, duties of care, policy and regulation
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I thought that too - but unfortunately it turns out there's actually one day less, because the 31st is a bank holiday in the UK (and that's where it needs to go online and the email will be sent out). Plus I want it to go online at a time when I'm not asleep. So going public might end up a day or two over.

PS: Just hit me - that *is* what you meant. Because I was already the day ahead, when I counted 3 it was *with* the 31st.
 
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Hilda Bastian said:
I thought that too - but unfortunately it turns out there's actually one day less, because the 31st is a bank holiday in the UK (and that's where it needs to go online and the email will be sent out). Plus I want it to go online at a time when I'm not asleep. So going public might end up a day or two over.

PS: Just hit me - that *is* what you meant. Because I was already the day ahead, when I counted 3 it was *with* the 31st.
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Thanks for the update. I just wanted to re-stress the urgency of this review. Trudie Chalder is training health professionals on Long Covid and is making wild claims that exercise is not harmful for ME/CFS or Long Covid.

 
Adam pwme said:
Thanks for the update. I just wanted to re-stress the urgency of this review. Trudie Chalder is training health professionals on Long Covid and is making wild claims that exercise is not harmful for ME/CFS or Long Covid.

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And of course many governments are already using the same evidence base to dismiss Long Covid as a "cultural illness", Cochrane reviews feature prominently in those decisions (to my immense puzzlement). Those consequences are cumulative, more and people are losing more and more to it every day.

And then there's Garner's weird tall tales being pushed by Michael Sharpe at psychosomatic conferences. The damage done here is incredible and Cochrane features large in justifying it.
 
Hilda Bastian said:
I thought that too - but unfortunately it turns out there's actually one day less, because the 31st is a bank holiday in the UK (and that's where it needs to go online and the email will be sent out). Plus I want it to go online at a time when I'm not asleep. So going public might end up a day or two over.

PS: Just hit me - that *is* what you meant. Because I was already the day ahead, when I counted 3 it was *with* the 31st.
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Andy said:
I can empathise, given how long we the patients have looked forward to it.

Just over 6 working hours left of May before the revised deadline passes and we move on to the new revised deadline.
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I am sorry about that. It'll be easier to discuss why it's taken so long soon. And next time I'll know to factor in more time for getting things online - and to note UK holidays.

Meanwhile...when is midnight on 31 May in Pago Pago? Asking for a friend!! :geek:
 
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