Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

Examples must be pretty easy to imagine. Anyone being indoctrinated into ignoring symptoms of physical ailments is potentially at risk of harm. What if patients were misled into believing their cancer treatment was not needed? Or their broken leg should still be used to its full limit whilst mending. Some time in the future, when ME/CFS is much better understood, people might similarly cite: What if people with ME/CFS were lured into exercising way beyond their limit ...

I find it astonishing and appalling that such treatments are below the radar of medical harms. It just gives free reign to charlatans.

 

Entirely relevant @Caroline Struthers @Hilda Bastian
https://www.s4me.info/threads/compl...nce-underwriting-etc-vs-me.20482/#post-344774

 

I thought that too - but unfortunately it turns out there's actually one day less, because the 31st is a bank holiday in the UK (and that's where it needs to go online and the email will be sent out). Plus I want it to go online at a time when I'm not asleep. So going public might end up a day or two over.

PS: Just hit me - that *is* what you meant. Because I was already the day ahead, when I counted 3 it was *with* the 31st.

 

Thanks for the update. I just wanted to re-stress the urgency of this review. Trudie Chalder is training health professionals on Long Covid and is making wild claims that exercise is not harmful for ME/CFS or Long Covid.

https://twitter.com/user/status/1396847147287461888

 

And of course many governments are already using the same evidence base to dismiss Long Covid as a "cultural illness", Cochrane reviews feature prominently in those decisions (to my immense puzzlement). Those consequences are cumulative, more and people are losing more and more to it every day.

And then there's Garner's weird tall tales being pushed by Michael Sharpe at psychosomatic conferences. The damage done here is incredible and Cochrane features large in justifying it.

 

Now less than 14 working hours, the tension is building.....

 

Where is Dr Who when we need him?
Cochrane reports may need a Tardis to be read properly.

 

It's now her remember ;-) hehe

 

I'm looking forward to the "behind the scenes" part of the process being over.

 

Ah but is it? If a Dr Who is always some time else then there is no particular Dr Who now.

 

haha -you got me!

 

I can empathise, given how long we the patients have looked forward to it.

Just over 6 working hours left of May before the revised deadline passes and we move on to the new revised deadline.

 

I am sorry about that. It'll be easier to discuss why it's taken so long soon. And next time I'll know to factor in more time for getting things online - and to note UK holidays.

Meanwhile...when is midnight on 31 May in Pago Pago? Asking for a friend!!

 

About 21 hours after your Australian deadline!

 

”looking forward” a bit like the way I used to look forward to Dr Who – with my eyes shut, hiding behind my Dad’s armchair.