ME/CFS services in the United Kingdom

this job ad appears to be for a private company used by the NHS

Advanced Sports Therapist or Osteopath or Physiotherapist
Haddington, Lincoln

https://www.totaljobs.com/job/sports-therapist/connect-health-job97756152

@PhysiosforME

 

I wonder what their idea of tangible results are . considering the amount of people who complain about how useless the pain clinics they have visited have been .

 

Patient doesn't come back.

 

Senior Clinical Psychologist/Senior Psychotherapist in ME/CFS

https://findajob.dwp.gov.uk/details/9365237

bolding is mine. what are indirect interventions?

 

I think in the context it means this:

from: Section 10: Using health and social care information –direct care and indirect care purposes

"The term ‘indirect care’ is defined as activities that contribute to the overall provision of services to a population as a whole or a group of patients with a particular condition, but which fall outside the scope of direct care. It covers health services management, preventative medicine, and medical research. Examples of indirect care activities include risk prediction and stratification (see note below on borderline cases), service evaluation, needs assessment, and financial audit.

The key reason for distinguishing between purposes in this way is that it is generally possible to imply consent for the use of confidential information for direct care purposes but not for other purposes.

There are some exceptions and some tricky borderline cases on which specific guidance is provided. "

 

Post NICE guidelines.
GET by any other name

https://twitter.com/user/status/1535001652385796096

 

Agreed @Amw66

Messaged “Lizzy H” with helpful details

https://twitter.com/user/status/1535198073982418945

 

The trouble is as far as i'm aware it doesnt say that gradually increasing mustn't be done...., but rather that it must not be done in 'fixed increments'

 

Putting out a call to any ME patients or carer's in North East Essex who would like to take part in a drive to deliver a new Integrated Care & Support Service for Suffolk & N E Essex Alliance?
Colchester MESH Support Group has closed down and they have no one available or no one to sign post on.

Please private message me for details and contacts within the CCG Alliance.
The work for this is well in hand and has been underway for a while.
It is going really well!

 

another job ad for a supposed 'new' long covid service.

Practitioner Psychologist (Long Covid Programme)Salford

https://www.totaljobs.com/job/practitioner/salford-royal-nhs-foundation-trust-job97944776

 

GP with Specialist Interest
Lowestoft
Department
East Coast Community Healthcare

https://vacancies.essexprimarycarecareers.nhs.uk/vacancies/3400/gp-with-specialist-interest.html

interesting wording
"to provide an agreed clinical service for patients with ME/CFS, in line with best practice, evidence-based medicine and national standards including NICE".

 

The job advert includes:

It is always worrying to see the phrase ‘evidence-based care’ in relation to both ME and Long Covid, as there is currently little or no evidence relating to any care strategies. Indeed here the offending paragraph is stressed by repeating it word for word. This means that anyone willing to go along with this advert and to apply for the job as it stands is automatically disqualifying themselves for the job as advertised.

 

I'm only going by the pseudonym but @Suffolkres might either be interested in this or shed light (if already aware). Agree that it is refreshing to see Nice, but you don't have to be cynical to think it could have been carried over from an old job description or they mean the old 2007 ones.

 

I feel this GP with Special Interest post advert is potentially more promising, and, though someone with more knowledge about this specific service may comment differently, they seem to be saying the right things, which hopefully means they will end up doing the right things.

Do others think this linking of ME and Long Covid services is a positive step, and hopefully will counter the shift to sending people with ME to ever more generic services be it fatigue clinics, pain clinics, IAPT or MUS/FND services? Does this also mean that in some areas at least our fears that GET/CBT will continue through diagnosing people with ME as having FND or MUS instead, circumventing the new NICE ME guidelines, is not materialising?

 

a couple of points;
although this is happening, the public are being told that 'new' LC services are being set up, with no mention of the fact that a lot of them, if not all, are ME clinics.

I am not sure which guidelines (if any) these services are following; the ones for LC or the ones for ME. Are they 'treating' both patient groups as the same?

I imagine many will be BACME affiliated.

 

Unlikely without outside intervention ending this cycle of mediocrity. This nonsense is baked into the profession and they don't want to hear anything that contradicts their textbooks, even when the textbooks are clearly wrong. Medicine is broken in so many ways.

https://twitter.com/user/status/1541061886426349577

 

I have tweeted about the issue of services blatantly ignoring the guideline. The tweet is not specifically about this instance—more my general thoughts on why the current approach (a letter from Charles) is not sufficient.

https://twitter.com/user/status/1542488182339641344

 

Excellent @InitialConditions

I added some back up info and the additional thought about how Sajid Javid has declined to consider the request for a national reporting system because 'NICE no longer recommends CBT/GET'

https://twitter.com/user/status/1542503354022014977

 

I've concluded from the number of these new jobs that seem to undermine the guideline that those in the current services genuinely believe that they are for them and all about them.

And that nothing can move forward until they are cleared out. I feel so much less sympathy for any 'poor me' arguments they make to that given these are such clear and blatant screw you we will do what we want hard-to-undo actions. And because they are for new staff, the whole supposedly care about people losing their jobs is nonsense - these are new people who will be leaving other posts, if we were to belief that one-liner they would be acting with caution on recruitment.

 

A new way of working and developing ME services......


https://www.sneeics.org.uk/resources/flipbooks/expo-2022-programme/

INAUGURAL MEETINGS OF THE NEW STATUTORY SUFFOLK AND NORTH EAST ESSEX ICS

On Friday 1st July 2022 the Suffolk and North East Essex ICS will transition to new statutory arrangements subject to the Health and Care Act, 2022.

This introduces two new statutory features for the ICS:

• an NHS Integrated Care Board (ICB), responsible for NHS strategic planning and allocation decisions, and;
• an Integrated Care Partnership (ICP), responsible for bringing together a wider set of system partners to develop the strategy to address the broader health, public health and social care needs of the local population.

The inaugural meetings of both the ICB and ICP will take place at ‘Can Do Health and Care’ Expo 2022 on the
event Main Stage in the Millennium Suite which is located on the 2nd floor of the Millennium Grandstand. Members of the public are invited to attend the meeting in person.

Alternatively, you can view both meetings either live via YouTube or watch the recording at a later time.


Please see details below.


NHS SUFFOLK AND NORTH EAST ESSEX INTEGRATED CARE BOARD (ICB) SUFFOLK AND NORTH EAST ESSEX INTEGRATED CARE PARTNERSHIP (ICP)

12:00pm– 1:00pm, Main Stage –Millennium Suite
3:00pm – 4:00pm, Main Stage – Millennium Suite

The NHS Suffolk and North East Essex Integrated Care Board (ICB) plans and buys healthcare services for our population. This function is commonly referred to as ‘commissioning’.

With a budget of around £1.5 billion, set by NHS England, the ICB will work closely with local government and the NHS providers in our area. Our performance will be judged by how well
our local health and care system as a whole is working, including the health outcomes of our communities.

The ICB has delegated some authority to the three health and wellbeing alliances that operate in Suffolk and North East Essex to act on its behalf to ensure that the needs of smaller, local areas are addressed.

Local residents have a big role to play in the operation of the ICB. We rely on the experiences and perspectives of our communities to help shape our decision making.


Information about the inaugural meeting of the ICB including the agenda and meeting papers are available to view online at:

https://suffolkandnortheastessex.icb.nhs.uk/ event/icb-board-meeting-july-2022/

The establishment of a statutory ICP in Suffolk and North East Essex is a natural next step in the evolution of the current ICS. It will enable an equal partnership between
partners in the ICS with a focus on population health and reducing health inequalities, underpinned by Outcome Based Approaches. The approach is about ‘Thinking

Differently Together’ to develop whole system strategy, working closely with both Health and Wellbeing Boards, Healthwatch and people with lived experience – also facilitating system relationships and positive engagement with wider system partners including the VCSE sector.

Based on the principle of the ICP working as a statutorily equal partnership between the NHS and local government, the Suffolk and North East Essex ICP Committee is Co-Chaired by Cllr. John Spence - Essex County Council, Cllr. Andrew Reid - Suffolk County Council and Professor William Pope - NHS Suffolk and North East Essex, supported by ICP Director, Susannah Howard.
Information about the inaugural meeting of the ICP including the agenda and meeting papers are available to view online at:

www.sneeics.org.uk/can-do-health-care/working together/suffolk-and-north-east-essex-integrated-care partnership/