MEAction UK has sent an open letter to Matt Hancock asking him to recognise the harm caused by GET

Hoopoe

Hoopoe

Senior Member (Voting Rights)
Please email your MP and ask them to write to Matt Hancock, Secretary of State for Health and Social Care calling on him to:

  • Request NICE adds an immediate warning on graded exercise therapy to its current ME/CFS guidelines, noting that it harms a majority of people with ME
  • Ensure all government and NHS England advice on post-COVID treatment and rehabilitation addresses that patients could develop ME and that graded exercise therapy and activity harms this patient population
Click to expand...

https://www.meaction.net/2020/07/15...arming-people-with-me-and-covid-long-haulers/
 
Done.
My MP is Sir Ed Davey and I revised the ME Action letter to remind him of his statement in the WH debate in June 2018. He has also been very supportive.

"Real harm is being caused by some of the therapies recommended in the guidelines. If that is the evidence from ME sufferers—I am not a scientist, but from what I have read, that experience is widely shared—it is up to the Minister, working with the chief medical officer and others, to question whether the NICE guidelines should be suspended, at least with respect to GET. If GPs, perhaps because they have not been trained, are making medical prescriptions for treatment following NICE guidelines because Ministers and the chief medical officer have not acted, if that treatment is harming people, and if that continues until October 2020 there will, as I said in my intervention, be a case for those who are harmed to go to court and seek compensation. " ( Sir Ed Davey, Hansard)
 
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