Michael Sharpe skewered by @JohntheJack on Twitter

Joel said:
I hope we don't see a misleading quote in the press at some point in the future, such as, "I've received abuse on Twitter. I had to block dozens of activists."
Click to expand...

Yes, he's baiting us for a reason, just not sure what that is yet. He might use it in his defence to try to show that he has tried to engage with patients (Never mind that he hasn't bothered for years before now). Of course he will either forget to mention he blocked everyone whose questions he didn't want to answer, or will in some way try to use the 'blockings' against us.
 
Joel said:
I hope we don't see a misleading quote in the press at some point in the future, such as, "I've received abuse on Twitter. I had to block dozens of activists."
Click to expand...
I hope we do, the reply will be they said you didn't declare conflicts of interest (with photographic evidence), you called a reporter a paid shill and you claimed that objective measures are pointless.
 
As far as I’ve seen these twitter exchanges are challenging but not badly behaved ive not seen anything that would lead me to think someone should be blocked I think anyone looking in from the outside would be baffled by the blocking rather than outraged by the way people are engaging with MS.
 
NelliePledge said:
As far as I’ve seen these twitter exchanges are challenging but not badly behaved ive not seen anything that would lead me to think someone should be blocked I think anyone looking in from the outside would be baffled by the blocking rather than outraged by the way people are engaging with MS.
Click to expand...
From his point of view we are probably being disrespectful, mean, challenging his authority, following his every tweet, impolite, unforgiving and persistent.
 
NelliePledge said:
As far as I’ve seen these twitter exchanges are challenging but not badly behaved ive not seen anything that would lead me to think someone should be blocked I think anyone looking in from the outside would be baffled by the blocking rather than outraged by the way people are engaging with MS.
Click to expand...

There was the bit where someone compared him to a serial killer and nazi scientist, unfortunately
 
Dr Carrot said:
There was the bit where someone compared him to a serial killer and nazi scientist, unfortunately
Click to expand...
That idiot played right into his hands...

If ever we needed a facepalm
another-triple-facepalm.jpg
 
To be frank. Anyone could make an Anonymous Twitter handle and say something stupid - be they a real or fake patient for that matter. It's a measure of power and influence that instances of such behavior are able to be attributed to a 'group' of 'activists' who 'campaign' against 'Science'.

There are plenty of ad-hominem free, cogent, patient & academic criticisms of the PACE trial that exist. There are plenty of reasonable questions that have not been substantially addressed.

The reality is thus, the re-analysis is strong enough to gain considerable media traction and potentially influence the upcoming NICE Guidelines process. There is some noise coming out of Cochrane that things might even change there. A lot of the criticism of the PACE trial is in my opinion irrefutable.

I think it's just possible that people are perhaps overly-concerned with debating Sharpe on Twitter. Understandably, the idea of having a genuine exchange of ideas with some concessions is motivating. But I see little evidence of that.

Since the release of the PACE minutes recently, what we do have is a ton more data on the specifics of the trials. Within that data is no doubt further evidence for methodological critiques to add to the literature. It may be that actually, now is the time to be cautiously optimistic, keep focusing on the detail rather than look for the gotya.
 
''But it is not objective - you choose how active to be.''

So after all these years he still doesn't understand what ME is.

I don't choose how active to be, my energy envelope determines the upper limit which is very low. If I had a choice I would have gone for a long walk in the countryside in the sunshine today. Instead I walked slowly from one room to another in my house for the minimum number of times necessary to keep myself fed etc. Some choice, Mr Sharpe.
 
Trish said:
''But it is not objective - you choose how active to be.''

So after all these years he still doesn't understand what ME is.

I don't choose how active to be, my energy envelope determines the upper limit which is very low. If I had a choice I would have gone for a long walk in the countryside in the sunshine today. Instead I walked slowly from one room to another in my house for the minimum number of times necessary to keep myself fed etc. Some choice, Mr Sharpe.
Click to expand...

Absolutely agree.
Does he think patients like to spend days in bed?

The trouble is....I think he does. We are .....well I'm speechless. How can he think that?
These tweets are proving very illuminating.
 
You must log in or register to reply here.
Back
Top Bottom