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Michael Sharpe skewered by @JohntheJack on Twitter

Discussion in 'General ME/CFS news' started by Indigophoton, Apr 9, 2018.

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Page 12 of 114
  1. Jan

    Jan Senior Member (Voting Rights)

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    498
    Yes, he's baiting us for a reason, just not sure what that is yet. He might use it in his defence to try to show that he has tried to engage with patients (Never mind that he hasn't bothered for years before now). Of course he will either forget to mention he blocked everyone whose questions he didn't want to answer, or will in some way try to use the 'blockings' against us.
     
    Jan, Apr 17, 2018
    #221
    alktipping, Sean, arewenearlythereyet and 4 others like this.
  2. Alvin

    Alvin Senior Member (Voting Rights)

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    3,309
    I hope we do, the reply will be they said you didn't declare conflicts of interest (with photographic evidence), you called a reporter a paid shill and you claimed that objective measures are pointless.
     
    Alvin, Apr 17, 2018
    #222
    sea, Inara, alktipping and 3 others like this.
  3. Allele

    Allele Senior Member (Voting Rights)

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    Happily, there's a public record.
     
    Allele, Apr 17, 2018
    #223
    sea, Hutan, alktipping and 4 others like this.
  4. NelliePledge

    NelliePledge Moderator Staff Member

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    As far as I’ve seen these twitter exchanges are challenging but not badly behaved ive not seen anything that would lead me to think someone should be blocked I think anyone looking in from the outside would be baffled by the blocking rather than outraged by the way people are engaging with MS.
     
    NelliePledge, Apr 17, 2018
    #224
    janice, Hutan, alktipping and 11 others like this.
  5. Alvin

    Alvin Senior Member (Voting Rights)

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    From his point of view we are probably being disrespectful, mean, challenging his authority, following his every tweet, impolite, unforgiving and persistent.
     
    Alvin, Apr 17, 2018
    #225
    sea, Inara, alktipping and 1 other person like this.
  6. Dr Carrot

    Dr Carrot Senior Member (Voting Rights)

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    266
    There was the bit where someone compared him to a serial killer and nazi scientist, unfortunately
     
    Dr Carrot, Apr 17, 2018
    #226
    Allele and adambeyoncelowe like this.
  7. NelliePledge

    NelliePledge Moderator Staff Member

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    Location:
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    Ok so that’s one person. Not ideal but it is Twitter he’s chosen to engage on isn’t it. It’s like standing on a soap box on the high street and being surprised if someone shouts at you
     
    NelliePledge, Apr 17, 2018
    #227
    Maggie, alktipping, Snowdrop and 8 others like this.
  8. Alvin

    Alvin Senior Member (Voting Rights)

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    That idiot played right into his hands...

    If ever we needed a facepalm
    [​IMG]
     
    Alvin, Apr 17, 2018
    #228
    janice, alktipping, Jan and 7 others like this.
  9. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    That's awful, I wish people would stop with that.
     
    Snow Leopard, Apr 17, 2018
    #229
    Sarah Restieaux, janice, Jan and 6 others like this.
  10. Indigophoton

    Indigophoton Senior Member (Voting Rights)

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    Indigophoton, Apr 17, 2018
    #230
    Maggie, Inara, Carolyn Wilshire and 22 others like this.
  11. Indigophoton

    Indigophoton Senior Member (Voting Rights)

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    Indigophoton, Apr 17, 2018
    #231
    Sly Saint, Carolyn Wilshire, Joh and 8 others like this.
  12. Matt (@DondochakkaB)

    Matt (@DondochakkaB) Established Member (Voting Rights)

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    34
    To be frank. Anyone could make an Anonymous Twitter handle and say something stupid - be they a real or fake patient for that matter. It's a measure of power and influence that instances of such behavior are able to be attributed to a 'group' of 'activists' who 'campaign' against 'Science'.

    There are plenty of ad-hominem free, cogent, patient & academic criticisms of the PACE trial that exist. There are plenty of reasonable questions that have not been substantially addressed.

    The reality is thus, the re-analysis is strong enough to gain considerable media traction and potentially influence the upcoming NICE Guidelines process. There is some noise coming out of Cochrane that things might even change there. A lot of the criticism of the PACE trial is in my opinion irrefutable.

    I think it's just possible that people are perhaps overly-concerned with debating Sharpe on Twitter. Understandably, the idea of having a genuine exchange of ideas with some concessions is motivating. But I see little evidence of that.

    Since the release of the PACE minutes recently, what we do have is a ton more data on the specifics of the trials. Within that data is no doubt further evidence for methodological critiques to add to the literature. It may be that actually, now is the time to be cautiously optimistic, keep focusing on the detail rather than look for the gotya.
     
    Matt (@DondochakkaB), Apr 17, 2018
    #232
    alktipping, Sean, Jan and 6 others like this.
  13. Allele

    Allele Senior Member (Voting Rights)

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    So sciency!
     
    Allele, Apr 17, 2018
    #233
    Maggie, Inara, MEMarge and 13 others like this.
  14. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

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    2,092
    :rofl:
     
    arewenearlythereyet, Apr 17, 2018
    #234
    Inara, MEMarge, Missense and 3 others like this.
  15. Estherbot

    Estherbot Senior Member (Voting Rights)

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    Estherbot, Apr 17, 2018
    #235
    MEMarge, Jan, Allele and 1 other person like this.
  16. Indigophoton

    Indigophoton Senior Member (Voting Rights)

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    Indigophoton, Apr 17, 2018
    #236
    Maggie, Inara, MEMarge and 15 others like this.
  17. Trish

    Trish Moderator Staff Member

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    ''But it is not objective - you choose how active to be.''

    So after all these years he still doesn't understand what ME is.

    I don't choose how active to be, my energy envelope determines the upper limit which is very low. If I had a choice I would have gone for a long walk in the countryside in the sunshine today. Instead I walked slowly from one room to another in my house for the minimum number of times necessary to keep myself fed etc. Some choice, Mr Sharpe.
     
    Trish, Apr 17, 2018
    #237
    Maggie, sea, Inara and 23 others like this.
  18. Lucibee

    Lucibee Senior Member (Voting Rights)

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    Presumably, you also choose how ill to be. :confused:
     
    Lucibee, Apr 17, 2018
    #238
    Maggie, sea, Inara and 19 others like this.
  19. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    2,416
    Absolutely agree.
    Does he think patients like to spend days in bed?

    The trouble is....I think he does. We are .....well I'm speechless. How can he think that?
    These tweets are proving very illuminating.
     
    Binkie4, Apr 17, 2018
    #239
    Maggie, sea, janice and 13 others like this.
  20. Alvin

    Alvin Senior Member (Voting Rights)

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    3,309
    Great line, if patients are doing better then they can certainly wear a wristwatch or ankle bracelet.
     
    Alvin, Apr 17, 2018
    #240
    MEMarge, Estherbot, Jan and 3 others like this.
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