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michael sharpe@profmsharpe
Well. That is how the illness is defined. I am inclined to believe patients.
I think hes mixing up, "how an illness is defined" and what symptoms a patients reports to a doctor with and how the doctor puts those symptom claims to the test.
People in the PACE trial turned up with a symptom set, they were tested on their physical capabilities and told they would be tested again at the end of the trial to measure potential improvement.
That didn't happen, at least it wasn't reported like that in the conclusions. What actually happened was that halfway through the trial the investigators changed the protocols and dropped objective measures as outcomes.
Does he believe patients over the possibility of getting worse yet still being defined as recovered when they used the revised protocol?