Michael Sharpe skewered by @JohntheJack on Twitter

I actually got my reply a bit muddled, and mistakenly had some of an old edit in the mix, which I thought I'd abandoned

 

Any minute now he will claim he didn't make that quote in the Daily Mail and that his remarks were taken our of context by them. That may or may not be true, however as he is such a social media bunny why hasn't he denounced that article. Perhaps because they are his beliefs and the same as the nonsense remarks he made on Australian radio after the first set of PACE results.

 

It is best they all step aside, they have been toxic, they can never be trusted again with ME research.

 

Given their track record with ME, I'm not sure they can be trusted with any research.

 

I think Sharpe should leave medicine and go into pantomime, he has demonstrated his skills this evening.

 

The cunning plan involves a sports car.

 

is that s w in the lifeboat.

 

"So here is a challenge for ME activism:
Can you articulate what treatment you want as opposed to what you don't want?"

Yep. No treatment aside from palliative support is better than treatments that make us worse and are sometimes forced on very sick patients, or where they are coerced into doing them or lose their entitled benefits, both private and state benefits.

 

The positions are usually exhaustive.

This example from eyewitness testimony research:

Does information presented after an event get incorporated into witnesses' descriptions of the event it self?
Position 1: yes
Position 2: no

(In reality the question would be phrased in a much more specific way than that).

 

I am doing great on symptomatic treatment = sleep, OI, inmune mods, and anything I need!!!
I have kept a job and a family! That is more than the CBT and GET people ahve been able to hold! If they step aside, the symptoms on Cfs are not that uncommon that cannot be treated until we get a cure or better things .

 

I would have thought his connections with the authors and with the project would need to be disclosed, and would disqualify him. But then the Lancet doesn't seem at all like a scientific journal, more like a magazine, and the editors had already promised to promote it even before it was peer reviewed, so I don't expect peer review was anything more than a rubber stamp.

I don't think they would need Simon Wessely as a reviewer, they could pick any one of a huge number of pro-BPS ideologues (in consultation with the authors), and even if a reviewer recommended 'reject', they would be under no obligation to take that reviewers' advice.

 

Or MAYBEEeeeeeee they are working for the dwp ( whatever your insurance for government is)?

 

What a nasty, nasty little man.

He's not even pretending he has any real concern for patients now, is he? His contempt is out there for all to see.

 

I think this is a variant of "You haven't read the paper"

 

UGH I almost cited every ME organization but figured he'd view it as Summoning them with my magic Twitter wand to swoop in for the attack.

So creepy, because it seems as though he's gently encouraging us to 'think positive', and because it seems like that's really bait. While the retraction of PACE is an important goal, it's hardly our only concern.

 

Can't help but add this one:

https://twitter.com/user/status/1008291611862880256

 

The man's Twitterstream is an alternate reality.

https://twitter.com/user/status/1006148686210973696

 

I myself volunteer to try drugs that are potential treatments as suggested by the ME experts hthe real experts) Cyclophosphamide comes to mind, but there are other drugs such as the ones used in rheumatology.

 

Another thing to point out to him is that we are positive and looking forwards. But the legacy of the PACE trial is holding us back. Medical professionals are still quoting the results to stop us from getiing benefits, insurance payouts, other medical treatment which might even be as basic as supplements. But we can't get any of that because we are still told to excercise and have counselling. That is why we are still banging on about it!